Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@vradifegari

Hello to everybody.
Wishing you all have a nice day.
Hugs

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Vardi, Thank You So Much ! How wonderful the world would be if we all Hugged One Another! What a Pleasant night sleep we would all have!
Blessing and Hugs to you and all others!
We all need to Pass this on to everyone we know!
Sundance (RB)

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@jkgraham393

Wow! Being focus on your wellness and persistent is apparently very important!

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Being focused on Your Wellnes is at the Heart and Soul of any recovery! Persistenes is the added incrediant that makes it happen! They are the Ying and Yang of being well! Without one you can't have the other.
Sundance (RB)

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@vradifegari

Hello Linda. How did you were diagnosed? When I was a teenager one specialist in clinic medicine told me I had fibromyalgia. He made made me a corporal test. He touched several points causing strong pain. (No treatment for fibromyalgia?. Then came the poly-radiculo-neuropathy diagnose, with treatment.
Because of my migraine my neurologist prohibited these foods:
black tea, chocolate, lacteous, banana and mango, tomatoes, beans, eggs, proceeded food, white bread. He said: all this foods irritate Central Nervous System.
I comment about this because my dayly diet is breakfast (1 cup of coffe, 1 cup of not balck tea, 2 two slides of bread). Launch (white rice, boiled chicken, vegetables or potato, or sweet potato). Dinner, the same.

Before this strong crisis started. I wet under a storm rain and. My dad gifted me an almond milk package. I drank it in the evening and late at nigth it started the migraine. I didn´t related. Next day I drank again and that was the point of begening. And among all the medications, increase carbamazepine plus clonazepan, prednizone, (which is dangerous for me), paracetamol of 1g and B complex, I can say injections of difenidramine and duralgine has been the only which bring me some relief. I think I did an allergic reaction to that milck of almond...!

What do you think of this Linda?
To be seatting hurts. I most go now. Thank´s for nightshade,
Greetings,
Vradi

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Chronic migraines, through my experiences (the last 50+ years), have taken many winding roads. I have tried numerous natural and pharmaceutical approaches. Presently, they are stable with quarterly injections of Botox, preventative medication, abortive medication, a gluten free diet, and absolutely no alcohol. I believe doctors make their best guesses when it comes to this chronic illness, especially in the realm of naturally-based interventions. Regular massage for years used to be very beneficial, along with current, gentle forms of exercise. I even tried the Diamond Clinic’s diet for a year with no positive outcome for me, but I believe it must be successful for many to publish it for migraines.

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I would like to introduce myself. I have 4 family members with 4 legs each. 2 dogs, 2 rare Savannah cats, 2 sisters who were given to us at 7 weeks old. Does anyone have that breed? Dog rescues, male Mastiff/ Black Lab mix. He's a big boy. than Bella is a Mountain Cur. I mention them because they know when I need them. Their love helps me. 2008 I had a 'Failed Laminectomy," The more I researched the more I realized that those 2 words may mean, something else as in my case. removed was S-1 L-2 L-3 L-4 L-5 No fusion. I did not realize I was going down the road to a life of pain, severe nerve damage, scar tissue wrapped stuck to the nerves. As an uneducated Lay person in the medical field I trusted the Neurosurgeons, Pain Management drs. Ablations, 2 implanted stimulators. 1 had to be removed due to pain, battery put in the wrong place, frayed leads AND more Lamina removed. I asked him to remove the Stim he refused. 2nd stimulators. different dr. he found blood clots around the battery. As pain worsened, searching for answers. Fusion 2016. that failed. that same week I had a fractured vertebrae while in rehab? Emergency surgery. More medical failures after that. My condition is getting worse. Diagnosis, Adhesive Arachnoiditis, Most have never heard it because it may have another word for it as I mentioned it before. Cause, Neurosurgeons, Pain Management DRS. Positive note, I now have a Doctor that knows why I have this pain, and who caused it. And is doing everything he can to make me comfortable. He is also an Anesthesiologist who has expertise in chronic pain. I would like to help if I can. Thank You

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@kimspr3

I would like to introduce myself. I have 4 family members with 4 legs each. 2 dogs, 2 rare Savannah cats, 2 sisters who were given to us at 7 weeks old. Does anyone have that breed? Dog rescues, male Mastiff/ Black Lab mix. He's a big boy. than Bella is a Mountain Cur. I mention them because they know when I need them. Their love helps me. 2008 I had a 'Failed Laminectomy," The more I researched the more I realized that those 2 words may mean, something else as in my case. removed was S-1 L-2 L-3 L-4 L-5 No fusion. I did not realize I was going down the road to a life of pain, severe nerve damage, scar tissue wrapped stuck to the nerves. As an uneducated Lay person in the medical field I trusted the Neurosurgeons, Pain Management drs. Ablations, 2 implanted stimulators. 1 had to be removed due to pain, battery put in the wrong place, frayed leads AND more Lamina removed. I asked him to remove the Stim he refused. 2nd stimulators. different dr. he found blood clots around the battery. As pain worsened, searching for answers. Fusion 2016. that failed. that same week I had a fractured vertebrae while in rehab? Emergency surgery. More medical failures after that. My condition is getting worse. Diagnosis, Adhesive Arachnoiditis, Most have never heard it because it may have another word for it as I mentioned it before. Cause, Neurosurgeons, Pain Management DRS. Positive note, I now have a Doctor that knows why I have this pain, and who caused it. And is doing everything he can to make me comfortable. He is also an Anesthesiologist who has expertise in chronic pain. I would like to help if I can. Thank You

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@kimspr3 I'm so sorry for all your pain your having at the Dr.s expensive. You are a good example for everyone to check their Dr.s credentials before they submit to anything. Again I'm so sorry for your pain Have you looked into alternative meds for your pain ? maybe someone can help you with this? May God be with you and give you comfort.

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Hi ,I am Linda and I live with chronic pain. I have been taken off all pain meds because I had overdosed. Now they won’t give me pain meds so I am suffering with restless leg syndrome and I am at wits end.

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I am nearly crazy with RLS and no sleep for so long. I am so tired and no doctor here will help me . I am desperately looking for a doctor that can help with RLS and neuropathy.

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@linedancer18337

Hi ,I am Linda and I live with chronic pain. I have been taken off all pain meds because I had overdosed. Now they won’t give me pain meds so I am suffering with restless leg syndrome and I am at wits end.

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Sorry to read about your pain. Try CBD oil topical . It can be purchased over the counter. Why not try a new doctor or a pain clinic ? But bring all your records since you have a history of over dosing. Pain meds over a long period of time is not the best for you anyway or it wasn't for my best friend. My best friend was given pain meds for many years and at the age of 78 was diagnosed with Crohn's ! Hope you find relief soon or a pain clinic that can help.

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@linedancer18337

I am nearly crazy with RLS and no sleep for so long. I am so tired and no doctor here will help me . I am desperately looking for a doctor that can help with RLS and neuropathy.

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Have you tried CBD oil. Can you get a medical marijuana card? Do you see a neurologist?

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@linedancer18337

I am nearly crazy with RLS and no sleep for so long. I am so tired and no doctor here will help me . I am desperately looking for a doctor that can help with RLS and neuropathy.

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linedancer18337 Welcome to connect Linda This is Linda love your dog. We aren't Dr.s but can help with what helps us . I have had RLS in the past and found some solutions The Dr. told me to drink more water with the electrolytes in it. Potassium and magnesium is needed by out bodies and RLS. Believe it or not for a starting of a cramp is drink pickle juice the dill juice not the sweet. Potassium is the important one along with drinking water don't get dehydrated. Hope some of this will help. A friend of mine use to keep mustard packets in her purse when out . When RLS would start out came her mustard she would swallow it ug. But claimed it helped her . For sleep at night time I drink a cup of warm milk with cinnamon in it .

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