Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for detc @detc

Absolutely. I was diagnosed with vaccine induced neuropathy after my first Moderna booster shot. I was not the only patient with the same condition seen by my neurologist.

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I read last night that the NIH talked about people with neuropathy that took the shots. They say it's related to their neuropathy. I will be seeing a new neurologist and I will pose the same question to that person. I asked the first one I saw how many patients do you have that woke up with full onset of pinpricks? He said none its rare. I will be rereading those articles again.

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Profile picture for rnlorena @rnlorena

I read last night that the NIH talked about people with neuropathy that took the shots. They say it's related to their neuropathy. I will be seeing a new neurologist and I will pose the same question to that person. I asked the first one I saw how many patients do you have that woke up with full onset of pinpricks? He said none its rare. I will be rereading those articles again.

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I didn’t get the shot but did have a bad case of Covid. The tingling in my hands and feet started right after-long Covid symptoms? The only time it bothers me is when I’m sleeping. I exercise regularly and eat a low carb diet and feel great during the day.

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Profile picture for golfgame @golfgame

Thinking back my PN started at about the time of my last Pfizer booster. I have not had any medical person tell me that the Vax caused it, I am just convinced that it did. Now there is more being written or blogged on the subject.
When my PN began I was assuming that it was an inner ear issue as I noticed it first in a slight balance issue.
I feel fortunate that I have been diagnosed as having only mild PN after an EMG was done. So far the PN has been confined to the ankle area with a tightness, however, I have had a couple of issues of shooting pain up the lower leg.

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If it was the Vax they will never admit it!

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Profile picture for golfgame @golfgame

Thinking back my PN started at about the time of my last Pfizer booster. I have not had any medical person tell me that the Vax caused it, I am just convinced that it did. Now there is more being written or blogged on the subject.
When my PN began I was assuming that it was an inner ear issue as I noticed it first in a slight balance issue.
I feel fortunate that I have been diagnosed as having only mild PN after an EMG was done. So far the PN has been confined to the ankle area with a tightness, however, I have had a couple of issues of shooting pain up the lower leg.

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Thank you. Wishing you the best. Bcool123

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Profile picture for jonelson4 @jonelson4

I didn’t get the shot but did have a bad case of Covid. The tingling in my hands and feet started right after-long Covid symptoms? The only time it bothers me is when I’m sleeping. I exercise regularly and eat a low carb diet and feel great during the day.

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It is so very different how it affects people. I had my sixth Moderna in September of this year. I really don't want Covid because I have enough to contend with.

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Profile picture for mebee @mebee

Anyone associate their PN/ symptoms with Covid vaccinations? I

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No. I had all of my COVID shots/boosters many months before the onset of my neuropathy symptoms. I had my fourth shot about four months before my symptoms presented themselves. I had no flare-up of my condition when I received the bivalent a few months ago.

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Profile picture for bcool123 @bcool123

Has anyone noticed increased peripheral neuropathy after COVID boosters? It’s time for my COVID booster but I’m worried about it increasing my PN symptoms. I stay out of crowds but I’ve read on Connect about COVID causing or increasing PN . Appreciate any input.
Bcool123

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Does Mayo Clinic have any reliable information for someone who seemed to have gotten peripheral neuropathy after covid vaccines? We are very concerned about getting or not getting the fourth injection. Please inform!

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Profile picture for bcool123 @bcool123

Has anyone noticed increased peripheral neuropathy after COVID boosters? It’s time for my COVID booster but I’m worried about it increasing my PN symptoms. I stay out of crowds but I’ve read on Connect about COVID causing or increasing PN . Appreciate any input.
Bcool123

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I’ve been wondering the same thing . After my 2nd vaccine neuropathy jumped all over my feet , and now up my calves . The tingling and tightness at my ankles is unbearable. The neurologist said I have neuropathy, I shouldn’t be able to feel my toes , but I do , he said I shouldn’t feel the cold or hot at floors , and bath water , but I do . I asked him some straight up questions, and he said I don’t know , he said he doesn’t specialize in neuropathy. So , I feel hot and cold at my feet, I also feel pressure… like driving a car at the petals. It’s all strange to me . I’m tired of all the adds to fix neuropathy, snake oils and such . I truly hope someone can help

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I have bad neuropathy and restless leg syndrome: burning feet and electrical jolts up my calves that prevent my being able to sleep, and makes walking quite difficult at times. My iron % saturation and ferritin have been low since at least as far back as 2017, but no doctor picked up on it since technically, I'm still within 'normal range'. Also, my hemoglobin and hematocrit are within normal range. However, Silber et al. (2021) Mayo Clin Proc 96(7):1921, "The Management of Restless Leg Syndrome: an Updated Algorithm", states that IV administration of iron should be first-line therapy if moderate to severe chronic persistent or refractory RLS is present, i.e., if serum ferritin is < 100 mcg/L (see page 1924).

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Profile picture for kathleen123 @kathleen123

I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2 weeks ago. It exacerbated my neuropathy symptoms. I’m scheduled for my 2nd shot on Wednesday but I don’t know whether to get it since the 2nd shot is much more likely than the first to have significant adverse effects. I called Pfizer and they claim that Covid-19 vaccination is not related to any neurological side effects although I have read elsewhere it can exacerbate PN. My internist says there is just no data to know whether the 2nd shot is likely to make my symptoms worse.

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Hola.
Tengo neuropatía desde hace más de 10 años. Empezó de forma suave. Sospecho de varias cosas,entre ellas el Tamoxifeno que empecé a tomar en 2006 después de una operación de cáncer de mamá.Tambien recibí rayos,pero no quimio. A los pocos meses de empezar con mi tratamiento de tamoxifeno empecé con terrible calambre. Y o los suponía causados por el tamoxifeno.Insisti mucho a mí medico oncólogo que me permitiese dejar el Tamoxifeno,pero nunca me permitió hacerlo. Solo me libero , 5 meses antes de lo que debía ser el final. Lo tomé 4 años y medio.No tengo bien en claro cuando comenzó mí neuropatía por qué no fue un comienzo claro,exacto. Recuerdo que empecé a tener la sensación que mis zapatos sandalias ,estaban desabrochados y me los ajustaba permanentemente. También tenía una pesadez al caminar. Y me di cuenta que cuando quería saltar ,por ejemplo.a la soga,no podía. Mí cuerpo no respondía a mí orden mental. Tampoco correr,.Todo eso se fue convirtiendo en absoluto y permanente.Consulte a unos neuróloga,que inmediatamente me ordenó un electromiograma,a lo que me negué,pues me aterra el efecto que produce la electricidad. Me tuve que exponer a un sin fin de análisis de sangre para descartar posibilidades.. El diagnóstico de 3 neurólogos fue el mismo. Aún me encuentro con que insisten con el electromiograma , a lo que me sigo negando,pues creo que no tengo por qué sufrir esa prueba,para corroborar algo que ya está casi corroborado.
He perdido algo más de sensibilidad en la parte superior de una de mis piernas. Una está más afectada que otra. Tengo en los pies bastante espasticidad en los movimientos. Pero ningún dolor,cosa que considero un lujo. Nunca he tenido dolores de ningún tipo. Soy una agradecida a la vida.
Y cómo dijo el poeta. " Muy cerca de mí ocaso,yo te bendigo vida...."

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