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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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Windyshores,
After my first injections of Evenity, I was tired the next day. After that, no problems.
No
I rescheduled!
Please give Reclast infusions a chance. I have had 6 infusions in the past 6 years and not one side effect unless you call a headache one. I am hypothyroid and get bone scans every 2 years. My osteopenia has not turned into osteoporosis so it must be working!
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1 ReactionGood Morning, I'm in my fourth month of having Evenity injections. So far, I have had no side effects from the Evenity. My body is sensitive to so many things, including natural products, that I was hesitant to start Evenity but I have had several fractures and weighed the options of doing nothing and risking further fractures and weakening bones or trying the Evenity to build bone ... I chose to build bone with Evenity and so far it has been good and I have increased bone density. I would like to add that I am 73-years old and working full time. I'm still recovering from a femur and hip fracture.
Good luck to you in whatever you choose.
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3 ReactionsI just had my 11th dose. The only effect I’ve experienced is soreness at injection site for a few days afterward. No fatigue at all for me but as you said, everyone it’s different. I hope you do well and don’t experience any side effects.
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2 ReactionsWhat are you going to take after evenity?
We’ve talked about going back on monthly infusions of Reclast. I’m doing my own research so not positive that will be the one yet.
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1 ReactionI am supposed to start Evenity after putting off for a year to be honest, I am terrified by possible side effects, my score is at 4, I am 65, athletic, had never had a fracture and can't understand why my Doctor insists this very aggressive treatment is the way to go, my friend just started Forteo, she is my age and other than an achy body, she had not had major issues, can someone share their experience with Tymlos? I am considering it... I would welcome any thoughts, I am really terrified and don't know what to do...
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1 Reaction@ccduplass I did 2 years of Tymlos. For those of us sensitive to meds, Tymlos comes in a pen with adjustable dose, with "clicks." I was able to get on Tymlos by starting at 2 clicks (full dose is 8) and moving up to let my body adjust. This helped with side effects. I got up to 6 or 7 clicks (it varied) and had excellent gains.
COVID delayed my treatment and I fractured- painful and disabling. I hope you can find a way to start meds and Tymlos might be good if you are nervous.
I am trying Evenity after Tymlos (you can't do the other way around) but may go right to "locking in" gains with Reclast. Then I can take med breaks with monitoring. It's a journey but so is fracturing!!
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