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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: May 25 10:40pm | Replies (135)

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@colleenyoung

Welcome, @djf31. It is all too common to dismiss symptoms as a sign of getting older and hard to distinguish the difference when living with a chronic conditions, especially Waldenstrom macroglobulinemia where fatigue is one of the top symptoms.

I'm tagging @ejrquast @sagenest @sstouten @psue4 @squidlee and others who live with WM and can share their experiences.

You mention that the tired spells or the shortness of breath don't last long. Do you notice a pattern? Do they happen at specific times of the day or are triggered by certain activities?

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Replies to "Welcome, @djf31. It is all too common to dismiss symptoms as a sign of getting older..."

They happen when I’m hiking (up, not down) and going up more than one flight of stairs. I’ve known I have anemia for the last 5 years at least which has been gradually getting worse and I attributed it to that. I’m otherwise in the best shape I’ve ever been in (at age 67).

Yes, the tiredness and shortness of breath are more common in the morning when I get up.