Chronic Pain members - Welcome, please introduce yourself

Hello, I’m. A 55 year old male. Very active until suffering from joint and nerve pain that radiates from joints and extremities. Change diet to advoid gluten, processed foods, refined sugar and developing a supplement and vitimin protocal. Also have a MTHR gene blip so I don’t process forms of Vit B. My diagnosis continues via the traditional route and functional medicine route. The function medical route found the gene mutation and seems a more comprehensive individual diagnostic care. Looking for others to share what works and what doesn’t. Thank you for reading! Marty

@rsnowflake Thank you for the shout out for medical cannabis. And a thank you to your physician for the recommendation and cooperation. All of my efforts to control the pain of chronic mayofascial syndrome (CMPS) and small fiber neuropathy (SFN) have been successful by researching and understanding what products work and how to use them. Very worth the effort. I have simplified my regimen to tinctures, vape capsules and topicals for tingling and needles in my hands and fascia pain that can be anywhere and everywhere.

Staying just ahead of the pain works best. Yoga, meditation, and mindfulness practices add to my quality of life from an approach of acceptance and tolerance. Giving back to others gives purpose to my life. Be safe and be free of pain today. Chris

Thank you so much for reading my post. I appreciate it. I just want people to know that they have other options then pain pills. I also journal every day to keep track of my pain and what sets iit's off. I'd encourage anyone to do the same. I also read as much as I can on spiritual help. Have a blessed day!

I recently purchased a tincture with 1000 mg of medicine in 30 ml of oil, no THC. Do you have access to both? I don't in Alabama.

@mam14, Greetings. Yes, I have access to all. I use two dosages: 2:1 CBD/THC and 1:1 CBD/THC. The 2:1 I just use under the tongue. The 1:1 I put in tea or another beverage. You do need to make sure you have something in your tummy and you never mix cannabis with alcohol. I have found the nighttime tincture reduces both anxiety and pain. That guarantees peaceful, restorative sleep. My goal is to be free of suffering and I wish that for you. Chris

@renee, do you have a name for your painful condition? Though it is rare, there are a lot of people on this forum and someone may have it or know another that does. Just wondering. Blessings.

It's called complex regional pain syndrome, and I've spoken to several people in the forum that have it. It's bizarre we have the same thing, but we've all have different stories. There are only 200,000 people in the us have been diagnosed, I can guarantee you that many more suffer from it but can't find someone to diagnose them. That's more terrible than me knowing what I have. And i am lucky enough to be in a state that has medical marijuana
It helps... though I'm a mom of a 16 year old, i took her to all the appointments so she would understand. This diagnosis crps/ or red is 1 of the 23 disorders on the medical marijuana list. Thanks for asking !!! I try and help any in the forum who need it or just needs a shoulder to lean on kinda...lol. I'll always be around for any chronic pain people who feels like no one gets it!!!

@artscaping Hi Chris! Are you an artist? Also, where do you get your CBD oils?

Thank you, Renee. For those of us who know very little about CRPS, would you mind explaining a little about how this came on? What symptoms did you present with? How things developed as years went by?

Delighted you get relief from marijuana. My brother was stage4 cancer and he swore by it. He suggested I try some. So I would crumble it on food or stir it in yogurt. Had little effect so he said I may need to heat it to release the medicinal properties. Little effect. Then I smoked it and hated the effect because it made me feel like I did after stroke. Off balance and foggy. Just as well, since I had no MM card and didn't want to operate like that. I also did not want to mess up getting the only med that does help, which is a scheduled med. My med of choice is not a popular one, except for non-law abiding citizens, lol. I am given a 20 day supply, 10 days off, then new script. My ten days off serve the purpose of rebooting my brain, so the med is effective in time for my next 20 days. It's a bit of a rollercoaster, but I don't need to bump up mgs or use a more powerful med. Don't want to go there. Don't want to go over the 10mgs oxycodone I get now. Do you need to deal with tolerance issues with MM? Use more frequently because your body is used to it? Public opinion and medical professionals would like to see this med (oxycodone) go away, and I do not disagree, but as yet there is nothing out there I respond well to. Nerve medications not only are not effective usually, but even if they are i get brain issues, i fall, pass out, amnesia. I use a stimulator, have been in therapy for long time, and those are beneficial along with heat and ice, but they do not give me my 20 good days which I use to travel ( 6 kids, 14 grandkids to play with :)) , care for my dad, and maintain a minimal level of comfort I would not have otherwise. At 60 years old, I'm not looking for thrills. There are none anyway. Like most on these forums, just looking to function and not have a pain cloud hanging over me every day. Thank God, my doctor knows me, my conditions, my lifestyle, and allows me this relief. I have no reason or desire to abuse. But I do deal with "chronic pain shame" If relief came in another fashion, I'd be on board. After 17 surgeries throughout my adult life, surgery at this point and by my choice, is only to save my life. A body can only be traumatized so many times before it throws in the towel. Doesnt heal well, and we don't bounce back.

All that^^^^^^^is about me. Oh, why do I do that??? It's CRPS I wanted to know sbout, and here you get my story, lol. When you're up to it, would love to hear your story. In the meantime, I'll go reread what you did post. Maybe I just need to refresh my memory, which is like a collander. Lots of info slips out the holes. God bless.

@windwalker, Good Morning. No, I only wish I was an artist. I am awed by the creative and talented folks who add beauty to our lives. I owned a gallery and was an interior designer. What a great chapter in my life. I use vape capsules, and tinctures as well as topicals.....all from the medical cannabis section of the dispensary. All of my solutions contain both CBD and THC at different levels depending on how and what I medicate. I have been exploring cannabis solutions for chronic pain for several years with the knowledge and cooperation of my neurologist and primary care provider (pcp). Be well and safe from harm. Chris