1. < Lung Cancer
Moderator

Living with lung cancer - Introduce yourself & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Mar 2, 2017

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

cmcguire10 | @cmcguire10 | Dec 15, 2023
In reply to @easydoesit1928 "I would like to give hope to lung cancer patients. I was diagnosed in 2017 and..." + (show)
@easydoesit1928

I would like to give hope to lung cancer patients. I was diagnosed in 2017 and am still here and plan Christmas with my family. I was given first Tarceva and now taking Tagrisso. Thank you.

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easydoesit1928- So Honestly Happy for you and your family! Any of us fighting lung cancer understand what a wonderful milestone that is! Hope you and your family enjoy a Beautiful Christmas Season! And Many many more years!
Cindy

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spikeb1 | @spikeb1 | Dec 15, 2023
In reply to @merpreb "@spikeb1- Good morning. Did you have a biopsy? Perhaps call the surgeon's office that did the..." + (show)
@merpreb

@spikeb1- Good morning. Did you have a biopsy? Perhaps call the surgeon's office that did the biopsy and ask if genetic testing was done. Your sample should still be around and they can still test it. That's how mine was done.

Merry

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I did have a biopsy but not sure if they did genetic testing. Is it possible that they wait for staging to do that. I had nothing show up in PET Scan and all nodes removed during surgery were negative. So how important is it that it be done now? If I ever have a reoccurrence, I suppose it could be done then?

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2 replies
spikeb1 | @spikeb1 | Dec 15, 2023
In reply to @merpreb "@spikeb1- Good morning. Did you have a biopsy? Perhaps call the surgeon's office that did the..." + (show)
@merpreb

@spikeb1- Good morning. Did you have a biopsy? Perhaps call the surgeon's office that did the biopsy and ask if genetic testing was done. Your sample should still be around and they can still test it. That's how mine was done.

Merry

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I will check with them though. Thanks!

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pb50 | @pb50 | Dec 15, 2023
In reply to @spikeb1 "I did have a biopsy but not sure if they did genetic testing. Is it possible..." + (show)
@spikeb1

I did have a biopsy but not sure if they did genetic testing. Is it possible that they wait for staging to do that. I had nothing show up in PET Scan and all nodes removed during surgery were negative. So how important is it that it be done now? If I ever have a reoccurrence, I suppose it could be done then?

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I didn’t have an oncologist and my surgeon took out a 1.5cm tumor, tested modes and margins and everything was clean. So I didn’t do any DNA evaluation - didn’t even know to ask the question then. But the truth is I watched this one in annual ct
Screenings go from 6 to 14mm over four years. So if I were to see another one, I won’t have surgery again. Therefore I don’t care about the dna 🙂

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1 reply
spikeb1 | @spikeb1 | Dec 15, 2023
In reply to @pb50 "I didn’t have an oncologist and my surgeon took out a 1.5cm tumor, tested modes and..." + (show)
@pb50

I didn’t have an oncologist and my surgeon took out a 1.5cm tumor, tested modes and margins and everything was clean. So I didn’t do any DNA evaluation - didn’t even know to ask the question then. But the truth is I watched this one in annual ct
Screenings go from 6 to 14mm over four years. So if I were to see another one, I won’t have surgery again. Therefore I don’t care about the dna 🙂

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I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment but if not done, won’t request it. If I have a reoccurrence, would have it then just to see. But heck, I’m already 73.

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2 replies
pb50 | @pb50 | Dec 15, 2023
In reply to @spikeb1 "I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment..." + (show)
@spikeb1

I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment but if not done, won’t request it. If I have a reoccurrence, would have it then just to see. But heck, I’m already 73.

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Yea me too. That’s why I say I’m not having any more surgery
So…

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soupycampbell | @soupycampbell | Dec 15, 2023

Just an update on my lung cancer. As you know from previous posts I had said I did not want chemo or radiation because I’m healthy and just wanted to enjoy my life. Well, I decided to go with 5 treatments of lower dose radiation and have just got results of the latest scan. The one larger on the upper lung has actually shrunk some so good news. Also in the last months I’ve had another on my lower back and now from this scan one on my higher thigh. They’re small so no worries. I’m now good to next scan in June. I’m still travelling some with my daughter and walking as much as I can depending on weather. Life is good. Merry Christmas to all and praying for all who needs it! 🙏💕
Joan Campbell

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2 replies
pb50 | @pb50 | Dec 15, 2023
In reply to @soupycampbell "Just an update on my lung cancer. As you know from previous posts I had said..." + (show)
@soupycampbell

Just an update on my lung cancer. As you know from previous posts I had said I did not want chemo or radiation because I’m healthy and just wanted to enjoy my life. Well, I decided to go with 5 treatments of lower dose radiation and have just got results of the latest scan. The one larger on the upper lung has actually shrunk some so good news. Also in the last months I’ve had another on my lower back and now from this scan one on my higher thigh. They’re small so no worries. I’m now good to next scan in June. I’m still travelling some with my daughter and walking as much as I can depending on weather. Life is good. Merry Christmas to all and praying for all who needs it! 🙏💕
Joan Campbell

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That is very encouraging. Warm healing thoughts coming your way - and Merry Christmas.

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1 reply
soupycampbell | @soupycampbell | Dec 16, 2023
In reply to @pb50 "That is very encouraging. Warm healing thoughts coming your way - and Merry Christmas." + (show)
@pb50

That is very encouraging. Warm healing thoughts coming your way - and Merry Christmas.

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Thank you and a very Merry Christmas to you.

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bernl | @bernl | Dec 16, 2023

I was diagnosed with stage 1 lung cancer .. had a lobectomy upper right lobe. Lymph node are clear . Had surgery 2 1/2 wks ago .. waiting to see post op surgeon and oncologist.. the hardest thing for me was unable to understand what was happening to me.. No one to talk to that understood what I was feeling and going through. The waiting time for all test, biopsies and doctor appointments were like a life time to me.. Now the thought of it returning stays on your mind.. there is no support group out there for you to get help mentally.. I am positive most of the time .. need other to talk to that understand..

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