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Essential Thrombocythemia (ET) and viruses
Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)Comment receiving replies
Welcome to Connect, @marty8888. Thank you for sharing your experiences with having ET. It’s really encouraging to hear you’ve had such good results with taking HU and that your foot and ankle pain is gone! Equally interesting is the change you’ve had with adding electrolytes on a regular basis.
Was this something you found on your own or did you have blood work done that indicated some of your numbers were low? What type of electrolytes do you take?
Replies to "Welcome to Connect, @marty8888. Thank you for sharing your experiences with having ET. It’s really encouraging..."
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Hi Lori
It's called sustain. A powder I mix with water. I read high platlets can cause dehydration so that's when I started and it helped. My platlets, white cells and potassium levels have been high for last ten years. My doc said it was because I smoked. After collapsing 3 times and a new doctor and bone marrow biopsy they got it figured out. I did lose some vision in one eye that glasses can't correct but can live with that. Thank you Lori for inquiring.