Can our doctors call Mayo long haul clinic to guide and help us?

Unfortunately my doctor does not believe in long covid. I was in the hospital five times dealing with long covid. I was dizzy and falling forward, I had major heart palpitations and chest pain. My right arm would get tingly. Several times I thought I was having a heart attack. I learned from another doctor at my pcp's office, the primary care doctor will get a mark on their doctors score if a patient goes to the emergency room several times. I had never heard of such a thing, but I thought why are you telling me this? I realized there must have been discussion about me going to the ER in the doctor's office. Not how I was doing, but my visits to the ER. Are you kidding me? The ER told me if I still have these issues to come right back, evidently my doctor didn't feel the same way. My point to this is, my doctor does not believe in long covid. I asked him if he believed in LC, his answer was, well something's going on why don't I send you to a psychologist they may be able to help these issues. I wanted to scream! I had been dealing with so many crazy health issues that I never gad before covid. I'm a 64 year old woman, an avid tennis player and was very healthy. The health issues started six months after my covid. For my own doctor not to not believe in me I was very hard and stressful for me. If anybody else has dealt with these issues with their doctor, I feel bad for you, I know how it feels when you own doctor does not believe in you. I had never had any ongoing health issues and barely went to the doctors before covid as I mentioned before, I do not have mental issues, theres nothing bearing on me, or stressing me out. Just the health issues with long covid. I wanted to go to Mayo Clinic, in order for me to be able to make an appointment I had to go through my primary doctor, I knew that would never happen. I hope everything works out well for you I'm sure it will. Hang in there, I am feeling much better regarding my long covid. It was close to two years that I dealth with the LC health issues. I am now feeling much better, rarely do I get palpitations, chest pain. I'm back on the tennis courts, I take walks by myself because I no longer get dizzy. It's been a long haul per se. I am getting much better. The only answer I have for this change is, time and perhaps the probiotics that I'm taking. That's the only change that I have done on my own besides never giving up and thinking as positive. I refused to own it!

They said no. And survivor corps is out of date. And no one in my state or surrounding can help.

I believe that @daxel1 mentioned they have a long COVID doctor in Montana.

Here are a few discussions where members share what helped them:
https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/?search=helped#discussion-listview

Non of mine do either. I am being financially destroyed as I am a single senior and u nable to work.

arichards3,

I agree completely. The doctors are at the limits of known science.
It is unfortunate that the lived experiences of people with Long Covid were ignored or dismissed for so long at the beginning of the epidemic.
It continues to be unfortunate that some doctors are "deny-ers." My sympathy to their patients!!

Like you, I also went to: cardiologist; ENT; neurologist; another ENT. Add in gastro-enterologist, dermatologist, and my usual rheumatologist. At the very beginning, my PCP had the decency and the intellectual honesty to admit that he did not know what was going on, and so referred me without hesitation to all of those specialists. I'm guessing that his network wasn't really happy about all of those referrals and all of the tests that the specialists ordered. Unrelated to Covid, I also had to go to heart nutrition counseling; 2 different genetic counselors; mental health counseling; and gynecological oncology in that year-18 months. I think I can say that my PCP is not in it for the money.
Oh, I forgot the pulmonologist! Multiple visits to him as well.

Sadly, none of those doctors was able to prescribe or suggest anything that helped significantly, except the inhalers and steroids at the very beginning. But this was in 2020. I'm slowly improving, but not back to pre-Covid.

PAXLOVID really, really helped when I got Covid a second time. I highly recommend it.

Good luck to all of us who are suffering emotionally, financially and physically-- and slowly recovering, I hope.

Hi @colleenyoung thank you for moderating the groups and for your contributions by assisting members with similar symptoms to network. Could you please advise of members who have LC symptoms with legs pain/ muscle pain post Covid ? I would like to message them. New to these forums so not sure if I can private message them. Thank you in advance.

Unfortunately my doctor does not believe in long covid. I was in the hospital five times dealing with long covid. I was dizzy and falling forward, I had major heart palpitations and chest pain. My right arm would get tingly. Several times I thought I was having a heart attack. I learned from another doctor at my pcp's office, the primary care doctor will get a mark on their doctors score if a patient goes to the emergency room several times. I had never heard of such a thing, but I thought why are you telling me this? I realized there must have been discussion about me going to the ER in the doctor's office. Not how I was doing, but my visits to the ER. Are you kidding me? The ER told me if I still have these issues to come right back, evidently my doctor didn't feel the same way. My point to this is, my doctor does not believe in long covid. I asked him if he believed in LC, his answer was, well something's going on why don't I send you to a psychologist they may be able to help these issues. I wanted to scream! I had been dealing with so many crazy health issues that I never gad before covid. I'm a 64 year old woman, an avid tennis player and was very healthy. The health issues started six months after my covid. For my own doctor not to not believe in me I was very hard and stressful for me. If anybody else has dealt with these issues with their doctor, I feel bad for you, I know how it feels when you own doctor does not believe in you. I had never had any ongoing health issues and barely went to the doctors before covid as I mentioned before, I do not have mental issues, theres nothing bearing on me, or stressing me out. Just the health issues with long covid. I wanted to go to Mayo Clinic, in order for me to be able to make an appointment I had to go through my primary doctor, I knew that would never happen. I hope everything works out well for you I'm sure it will. Hang in there, I am feeling much better regarding my long covid. It was close to two years that I dealth with the LC health issues. I am now feeling much better, rarely do I get palpitations, chest pain. I'm back on the tennis courts, I take walks by myself because I no longer get dizzy. It's been a long haul per se. I am getting much better. The only answer I have for this change is, time and perhaps the probiotics that I'm taking. That's the only change that I have done on my own besides never giving up and thinking as positive. I refused to own it!