1. < Breast Cancer
Profile picture for jlc082261

Anyone diagnosed with DCIS breast cancer?

Posted by jlc082261 @jlc082261, Jun 22, 2023

Has anybody here in this group been diagnosed with DCIS breast cancer?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Profile picture for ema1
ema1 | @ema1 | Dec 8, 2023
In reply to @galbooboo "My DCIS was very small and the lumpectomy showed good margins. My surgeon was open to..." + (show)
Profile picture for galbooboo @galbooboo

My DCIS was very small and the lumpectomy showed good margins. My surgeon was open to me looking into radiation, but she felt that it may be overkill. I learned that any body part can only be treated with radiation once. If the cancer comes back after radiation, the only option would be mastectomy.
I decided that I would keep the radiation card in my pocket in case I need it in the future.

Jump to this post

I also had dcis insitu and just completed lumpectomy. Meet with oncologist next week but for same reason as you, will not be doing radiation and probably not hormone treatment either. Thanks for sharing. Makes me feel I am not alone in this decision.

REPLY
3 replies
Profile picture for rc2147
rc2147 | @rc2147 | Dec 8, 2023
In reply to @surpriseca "I had a DCIS diagnosis July 2022. Surgery for lumpectomy, followed by radiation." + (show)
Profile picture for surpriseca @surpriseca

I had a DCIS diagnosis July 2022. Surgery for lumpectomy, followed by radiation.

Jump to this post

Same - diagnosed in March, lumpectomy in July, radiation ended a month ago. I found in talking to others there are so many different experiences even if on the surface it looks like the same path. I did not rush any decisions.

REPLY
Profile picture for sue417
sue417 | @sue417 | Dec 8, 2023
In reply to @galbooboo "Hi. I was very afraid to try tamoxifen also, after reading about all of the possible..." + (show)
Profile picture for galbooboo @galbooboo

Hi. I was very afraid to try tamoxifen also, after reading about all of the possible side effects. My oncologist encouraged me to try it- most patients tolerate it very well. I’m happy that I have zero side effects.
As for how tamoxifen works- it does not “stop estrogen” production. Tamoxifen blocks estrogen from attaching to cancer cells. Estrogen is fully present in the body, but the drugs stop it from connecting with and fueling the tumor.
It’s an old drug that has been proven to be effective. I would encourage you to try it, if your doctor is recommending it.
Good luck. I know this is scary.

Jump to this post

Hi
I have osteopenia with a compression fracture in my spine so I do not want to take anything that will effect my bone density. Does it affect your vaginal area? My urologist wants to put me on vagifem . I am very overwhelmed

REPLY
2 replies
Profile picture for galbooboo
galbooboo | @galbooboo | Dec 8, 2023
In reply to @sue417 "Hi I have osteopenia with a compression fracture in my spine so I do not want..." + (show)
Profile picture for sue417 @sue417

Hi
I have osteopenia with a compression fracture in my spine so I do not want to take anything that will effect my bone density. Does it affect your vaginal area? My urologist wants to put me on vagifem . I am very overwhelmed

Jump to this post

I have mild osteopenia as well. That was why the oncologist opted for tamoxifen over the aromatase inhibitors. Tamoxifen is not harmful to bones. I have not experienced any vaginal problems while on this medication.

REPLY
Profile picture for msandbreastcancerwarrior
msandbreastcancerwarrior | @msandbreastcancerwarrior | Dec 9, 2023

Yes, about a 2 cm patch of DCIS grade 2/3 which had turned into multifocal IDC with lobular features.

Had lumpectomy 8 weeks ago, no cancer in lymph nodes.

Will be doing 20 radiotherapy treatments (16 regular, 4 boosts) and then five years of Letrozole.

My risk of recurrence with treatment is only about 3-4 percent over ten years so my oncological surgeon said just go live a normal life and don’t worry.

REPLY
Profile picture for k9imnot
k9imnot | @k9imnot | Dec 9, 2023
In reply to @sue417 "Hi I was recently diagnosed with dcis insitu my surgery is Dec 15. I totally feel..." + (show)
Profile picture for sue417 @sue417

Hi
I was recently diagnosed with dcis insitu my surgery is Dec 15. I totally feel the stress and anxiety too. It's hard to wrap your head around it. I hope all goes well for you

Jump to this post

I could not accept loosing my breast.
Read everything you can.
Make sure your DCIS is invasive.
If it is only confined to your ducts you have time to look into other options.
My oncologist told me about a pill I could take to shrink my clusters. If it works I would be looking at a lumpectomy and not a full mastectomy.
During my pre op test we found out my heart is not strong enough for surgery.
My DCIS is not invasive at this time.
I was scheduled to have one breast removed.
Before we had this new information.
My oncologist is a surgical oncologist. I will be talking to a medical oncologist.

REPLY
2 replies
Profile picture for lifetraveler
lifetraveler | @lifetraveler | Dec 9, 2023
In reply to @sue417 "Hi I was recently diagnosed with dcis insitu my surgery is Dec 15. I totally feel..." + (show)
Profile picture for sue417 @sue417

Hi
I was recently diagnosed with dcis insitu my surgery is Dec 15. I totally feel the stress and anxiety too. It's hard to wrap your head around it. I hope all goes well for you

Jump to this post

Wishing you the BEST on Dec. 15! Have a complete & smooth recovery!!

REPLY
Profile picture for sue417
sue417 | @sue417 | Dec 9, 2023
In reply to @k9imnot "I could not accept loosing my breast. Read everything you can. Make sure your DCIS is..." + (show)
Profile picture for k9imnot @k9imnot

I could not accept loosing my breast.
Read everything you can.
Make sure your DCIS is invasive.
If it is only confined to your ducts you have time to look into other options.
My oncologist told me about a pill I could take to shrink my clusters. If it works I would be looking at a lumpectomy and not a full mastectomy.
During my pre op test we found out my heart is not strong enough for surgery.
My DCIS is not invasive at this time.
I was scheduled to have one breast removed.
Before we had this new information.
My oncologist is a surgical oncologist. I will be talking to a medical oncologist.

Jump to this post

Hi
I am having a lumpectomy from my biopsies it's insitu in the milk ducts and very sml.
Once pathology is back it will determine how we go forward radiation I was told will be 3 wks. I have a good oncology coordinator I talk to. Done alot if research on tamoxifen, so if I have to go on it only going to do 5mg

REPLY
Profile picture for mchler73
mchler73 | @mchler73 | Dec 9, 2023
In reply to @chm64 "I was just diagnosed with DCIS in right breast intermediate stage. My consultation with surgeon is..." + (show)
Profile picture for chm64 @chm64

I was just diagnosed with DCIS in right breast intermediate stage. My consultation with surgeon is a month away and my MRI next week. I’m feeling alone and wish I could talk to someone about what the MRI might show. Am I waiting too long before surgeon consult? My primary doctor didn’t call me back today. Feeling horrible.

Jump to this post

@chm64
Hello,
You said this was your 2 year mammo check…does that mean you had some type of Breast Cancer 2 years ago and now you also have DCIS, 2 years later after being checked?
Sorry, I am confused so I just wanted to clarify.
Xoxo

REPLY
1 reply
Profile picture for chm64
chm64 | @chm64 | Dec 9, 2023
In reply to @mchler73 "@chm64 Hello, You said this was your 2 year mammo check…does that mean you had some..." + (show)
Profile picture for mchler73 @mchler73

@chm64
Hello,
You said this was your 2 year mammo check…does that mean you had some type of Breast Cancer 2 years ago and now you also have DCIS, 2 years later after being checked?
Sorry, I am confused so I just wanted to clarify.
Xoxo

Jump to this post

No, not me. I was just diagnosed with DCIS first time. Waiting for MRI and appt with surgeon.

REPLY
Please sign in or register to post a reply.