@cathy56
I audibly gasped when I read the cruel (and untrue) comment about nurses. I have worked with hundreds of nurses in a hospital setting and wish I had a dollar for every catch they made, often that docs missed. Working in a teaching hospital taught me to trust, but verify.
I’m so sorry this has been such a difficult journey for you.
Be the squeaky wheel. Pleasant but insistent. It will serve you well.
I believe you would be well served to get a Mayo workup. One big advantage is that the various subspecialties have immediate access to one another’s notes. There is less likelihood that important results will be missed.
Best of luck. Wishing you the best possible outcome.
Patty