New long COVID symptoms? Have you encountered new ones?

Hola , yo pensaba que era solo a mi que asistía a los médicos y sin respuesta solo una mirada de duda, yo en junio cumplo dos años con long COVID. Aunque los médicos no lo reconozcan todos mis síntomas comienzan a partir de qué me dio covid19. E visitado un número incontable de medicos especialistas, rehabilitación en dos ocasiones sin resultados. Los síntomas siguen siendo los mismos desde ese día hasta hoy cualquier esfuerzo por mínimo que sea me deja sin energía y si me trato de esforzar un poco más siento que voy a colapsar y caer al piso. El dolor es parte de mi me acompaña día a día. Igual que el insomnio, la fatiga es lo más duro porque no me permite avanzar. Y leyendo sus comentarios me doy cuenta que nosotros buscamos solución a nuestro padecimiento pero los médicos no tienen respuestas y no es que no nos quieran ayudar sino que desconocen cómo hacerlo.

I've tried both, but not simultaneously...
I first tried a 5-day regimen of predniSONE (a corticosteroid)—it left me feeling MUCH worse. It took me weeks to get back to where i was before trying them (and months later my sleep is still worse).
I also tried a 5-day regimen of Ivermectin—it also made me feel worse (but not nearly as severe as I did post predniSONE).

I recently tried a 5-day course of Paxlovid—it didn't make me feel worse, but didn't make me feel any better, either...

Sorry to hear of your struggles. I am in month 9 after gastrointestinal covid, and recently have had much improvement after following the recommendations of a functional medicine MD for supplements and nutrition to address covid's underlying causes of the symptoms. If you can find one, it might help you, too. I hope you feel better soon, Greg

Good feedback. Doctors are at least trying these things. I question whether a 5 day round would even be therapeutic. Years ago I had an autoimmune condition and prednisone treatment was month at least

You are very right. Thank you for sympathizing. I, too, think I need to try harder but when I do, I pay for it with fatigue and shortness of breath. My husband is constantly reminding me that I'm doing too much. He's right but I don't want him to be. 🙂

Have you read The Invisible Kingdom, Reimaging Chronic Illness by Meghan O'Rourke? It's worth reading. Even though her focus is primarily about her long undiagnosed illness, Lyme Disease, she addresses Long Covid and the frustration of people seeking solutions. If nothing else, I love the fact that a well-known journalist has written about the need for a "seismic shift in our approach to disease". I hope the medical community takes note.

Thanks for the reference! Yes, the medical community must be a step ahead of even Ms, O'Rourke. I was hoping that previous research would give them a start or insight into long covid, but I think each person has had to start from the beginning in terms of ruing out what it isn't, and then there is no straight path to help given right now they can't attribute it to autoimmune, inflammation caused by the initial infection, or a persistent infection related to the virus. Again, I'd like to know how the clinics are interacting and sharing information to that end. The frustration I see is in getting people to the best possible place as quick as possible, including a primary doctor considering other options and referring more quickly than what is done now.

Hi everyone, I have experienced multiple adverse reactions to the vaccine. One of them is the issue with my blood having trouble clotting. I also discovered that my pain is related to the reaction called demyelination where the myeline sheath on the muscle is basically destroyed and you are in pain nonstop. This is what I have been experiencing along with a slew of reactions that make me wonder if having it did me more harm than good. I mean at one point I could walk without any assistance and now it is not even possible to do that since my body is constantly in pain and I am constantly wore out from the pain I am in. I am just so frustrated right now with my situation I would prefer that I never had the shot in the first place.

I’m so sorry you’re experiencing these things. I can no longer eat beef or chocolate ( maybe other things, too). Chocolate makes me sick and beef shuts down my digestive system, causing horrible stomach pain. During Covid I had a constant furry feeling in my mouth but that’s gone now. Took over a month.

I after the booster shot, I also got weird symptoms that have gotten better but still apear. I've gone to every "ologists" and all tests come negative but the symptoms persist. It is very frustrating