Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
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I appreciate the update. As you know I got a lot of joint pain in my hands with Evenity (stopped after 9 months) and with the Reclast followup. Anyway, I'm due to get another dosage of Reclast in February which I don't want to do. Actonel looks like it might be a possibility. It doesn't stay in the body so long. I seem to recall the half life is 30 days. Now if it just will not cause any gastrointestinal problems.
Good luck with the shoulder. I had shoulder surgery it does really get better it just seems to take so long.
Thank you for the encouragement about the shoulder! I was afraid to do Reclast as it is in your system for so long and the Evenity adverse effects made me so cautious! Hoping the Actonel continues to be user friendly! I have had not GI issues with it.
I had elevated blood pressure 150/101 4 days after an injection.
Yes I had increased BP and palpitations, that's why I had to stop. The minor side effects- headache, tiredness, pain at injection sites I could live with, but I got too worried when the heart issues happened. I never had any issues with my BP before taking Evenity.
I have been on a number of OP meds over the years, including 2 years of Forteo, which did help. Then, I had started Prolia, (one injection), but stopped and had no OP treatment for about 2 years because of dental work.
I have had high cholesterol that seems to be creeping up with age but avoided statins because my total and HDL were pretty good( in 2022:Total-287, LDL-182, HDL-91.) Prior to starting Evenity my primary recommended statins. I did an appointment with a cardiology NP who thought it was a good idea but she wasn't insistent on it. I started Pravastatin and stopped after about 7-10 days because I felt horrible: more trouble sleeping, brain fog and horrible taste so that I couldn't enjoy food and drinks. Now, I just had new lab work prior to my 6th Evenity injection and my cholesterol has jumped (Total-352, LDL-233, HDL-102). I'm wondering if this jump is due to the Evenity, but I can't find any studies that specifically report increase cholesterol. There of course is the black box warning regarding increase risk of heart attack and stroke, and I assume they are related to high cholesterol, but I haven't found that specific side effect. Has anyone experience increased cholesterol on Evenity?
Help! what do those initials stand for?
@suga I am also in eastern MA. I went in person in 2019 and again in 2023 and otherwise talk to McCormick by phone.
Interesting. I have been on Evenity for 7 months. My cholesterol went up also and they have me on Rosuvastatin. I’m not taking it every day. Doctor says even 2 week will help. I hate all these meds. I had to take risks of Evenity. I have broken both feet June and July!! Still don’t know why my cholesterol is high.
We do our best.
May I ask what did you take after forteo before tymlos?
Will you take anything after tymlos before you take evenity?
If possible, could you share before and after treatment dexa scores and/or tbs please?
Thank you very much and best of luck!
I had a one hour phone consultation and half hour follow up with Dr McCormick recently on the phone. I would have preferred in person, but I live in Canada, so it wasn’t convenient. It went very well. I appreciated his insight and suggestions. He requires a brief medical history, three past Dexa scans (full report with pictures), plus a copy of your most recent bloodwork.