Supplements

What has worked very well for my PN has been Benfotiamine
300-600 mg/day. Pretty amazing actually.

Thanks for reply. Is your neuropathy diabetic? Or do you know what caused yours?

One sentence here caught my eye. I have small fiber neuropathy. One of the hallmarks is symmetrical pain. Yes, both feet (or hands, or hips, etc) at the same time.

The na-R-ALA I take now is just one of the supplements in the combined capsules I take with the Protocol - (FAQs - https://theprotocolworks.com/faq/). We used to individually order the supplements from an updated list with links to the individual manufacturers website or through Amazon until the group worked with a Florida pharmaceutical company to combine the different supplements into fewer capsules per day. Before we switched to na-R-ALA we had previously been using a Premium Supplements brand that is not sodium stabilized - https://www.amazon.com/R-Alpha-Lipoic-R-LIPOIC-count-STRENGTH/dp/B01M0QS5C7/.

If I remember right I think we also used Geronova Research na-RALA but it was more spendy. Here's the product link but it's only 115mg so it would depend on how much you take daily as to the cost - https://www.amazon.com/Geronova-Research-Lipoic-Acid-vcaps/dp/B003JOBI3C/. I'm taking 1200 mg daily (600 mg morning and evening) so it would be expensive.

Thanks for your reply. So both feet and calves would burn at exact same time?

Yes, that’s right.

Thank you. Mine is not Diabetic. Dont know cause yet. Can get into Neurologist until mid March. What type neuropathy do you have? And do you have burning? And do you take any supplements that would help relieve burning, or know of any? Sorry so many questions. I have only had this for around 4 months. First just bottom of feet. Now going up ankles and shins and calves. Sure seems to be progressing rapidly. Any help 🙏 is appreciated.

Has anyone ever had a problem taking Benfotiamine and NA R-Alpha Lipoic Acid the same day?

jerryw
I’ve had neuropathy for 35 years now. It started on the bottom of my feet and slowly progressed up to just pass my waist. I no longer suffer the excruciating pain I once did. As my neuropathy worsened the pain decreased and changed to numbness. Although the numbness is irritating, it’s much better than the pain. However, the complications that come with it sometimes make me think I’d rather have the pain back. As a result of neuropathy, I have bladder, bowel and ED problems my doctors believe were caused by it. Hopefully it won’t it won’t afect my heart, respiration or muscle weakness any more than it already has.
Always have any new symptoms checked.
If those symptoms aren’t properly addressed, they can become permanent.
Hopefully yours has progressed as far as its going.
Take care,
Jakei

@jerryw I have been to a variety of neurologists during the past 8 years and a comment made to me by several was to exercise when you can. Johns Hopkins told me they are not 100% sure why but neurologists feel that exercising will, perhaps, slow down the progression of PN. I figured what do I have to lose so I do my best to walk 3 times a week. My progression has remained about the same for the past 2 years. And I don't mind losing a few pounds!