Supplements

Posted by jerryw @jerryw, Nov 25, 2023

Hello everyone. Has anyone here ever tried any of these supplements like, " Nuphoria ", " Nerve Renew", or R- Alpha-Lipoic-Acid". Would like to see if someone has actual experience with them. Thank you.

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I took Nerve Renew and took it over a year, and absolutely no results and then tried Revitive, a electronic pulsing device you put both bare feet on and adjust amount of frequency to shock nerves in feet and ankle areas, and seemed to make neuropathy worse, instead of better! Still hoping some research clinic/Dr., will figure out "MGUS" and neuropathy and give us all some relief! Cam you imagine IF someone found the cure for cancers and neuropathy? There would be an unemployment line 10,000 miles long of "supplement" makers, medical equipment makers, Drs., neurologist s, therapists, drug company employees, and the line would never end!

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Profile picture for jerryw @jerryw

I have been having burning in bottom of feet for the past 3 1/2 months. Sometimes in shins and calves. TERRIBLE. I am finally going in next week for EMG. Took 3 months to get in. Appointment with Neurologist not until March, there waiting list was 6 months out. I do take medications that apparently can lead to neuropathy, Amlodipine 5mg, stopped it. 40 mg Statin for just 9 months, only had 20% and 40% clog in artery, stopped it. Eating very healthy now and exercise. Also for 3 years a PPI for acid reflux. Tapering off that now. Have not had heartburn in over a year actually. Ambien for sleep, will be stopping that in February. Right now tapering off of Valium, about another 2 months for that. But I have seen alot of research, even from Government websites that say all these meds can possibly lead to neuropathy. I am hoping for the best.

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I am currently doing research on neuropathy since no doctor seems to want to focus on it for longer than 30 seconds. I have been plagued for about 5 years with neuropathy in my feet, a lot of numbness with limited pain. I have plenty of pain in my head to make up for the small amount in my feet. I just started ALA at 200mg/day. It seems to be helping almost immediately.
I take little Big Pharma drugs, only for my hypothyroidism and my hypertension. I just completed a six-month course of prednisone to treat my PMR (polymyalgia rheumatica). Currently we are treating my hyperparathyroidism with vitamin D and calcium supplements. No other drugs except Tylenol for pain.
My PCP wanted to start me on statins because my Lipid Panel was creeping up. I totally resisted and decided to give up refined sugar. It took about two months to no longer crave sugar, but I was able to kick the habit. The serendipity was my Lipid panel has not looked this good in 25 years. That was two years ago. I still do not eat refined sugar, no longer even want it.
I eat organic at home, and do not go to fast food places or eat in chain restaurants where the food is processed so that every site is serving the exact same food.
I applaud your efforts to get off of Big Pharma. My experience is that fewer drugs allows our body to do what it does best, that is, to heal itself. Hang in there and you will be able to better identify and treat your problems with fewer drugs and more healthy living lifestyles.

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Profile picture for golfgame @golfgame

I started on "Nuphoria" but gave it up quickly. I also ordered their Nerve repair but trashed that after my GP said NO, She felt there was an overabundance of Vitamin E and that could cause bleeds. I can't say why but I just felt that those products fell into the Snake Oil category.

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Surely if you cannot say why, it's not fair to categorize it as 'snake oil'.
You immediately affected the mindset of others. Without offering some type of reasoning.

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Profile picture for jenan @jenan

Surely if you cannot say why, it's not fair to categorize it as 'snake oil'.
You immediately affected the mindset of others. Without offering some type of reasoning.

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Hello @jenan, Welcome to Connect. Like most neuropathy cures, there are no clinical trials to support the companies claims. It does contain some of the supplements that are known to "help" nerve health but I would want to see more clinical tests that have also included a placebo group. The last webinar from the Foundation for Peripheral Neuropathy on July 10 covered the topic pretty well. Might be worth watching for those that missed it.

-- Neuropathic Pain - Jul 10, 2025, 10:00am - 11:00am CST
https://www.foundationforpn.org/events/neuropathicpainmanagement/
I only have numbness with my idiopathic small fiber peripheral neuropathy. Do you have pain symptoms with your neuropathy? Have you found anything that has provided some relief for you?

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Profile picture for jabrown0407 @jabrown0407

I am currently doing research on neuropathy since no doctor seems to want to focus on it for longer than 30 seconds. I have been plagued for about 5 years with neuropathy in my feet, a lot of numbness with limited pain. I have plenty of pain in my head to make up for the small amount in my feet. I just started ALA at 200mg/day. It seems to be helping almost immediately.
I take little Big Pharma drugs, only for my hypothyroidism and my hypertension. I just completed a six-month course of prednisone to treat my PMR (polymyalgia rheumatica). Currently we are treating my hyperparathyroidism with vitamin D and calcium supplements. No other drugs except Tylenol for pain.
My PCP wanted to start me on statins because my Lipid Panel was creeping up. I totally resisted and decided to give up refined sugar. It took about two months to no longer crave sugar, but I was able to kick the habit. The serendipity was my Lipid panel has not looked this good in 25 years. That was two years ago. I still do not eat refined sugar, no longer even want it.
I eat organic at home, and do not go to fast food places or eat in chain restaurants where the food is processed so that every site is serving the exact same food.
I applaud your efforts to get off of Big Pharma. My experience is that fewer drugs allows our body to do what it does best, that is, to heal itself. Hang in there and you will be able to better identify and treat your problems with fewer drugs and more healthy living lifestyles.

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@jabrown0407 you are having good results with ALA. Me too!

One comment I have about the other conditions you mentioned. The Hyperparathyroidism. I suffered with that 20 years ago. It made me feel awful, almost like I had the flu.
I’m really surprised you are being treated with calcium and Vitamin D.
To be diagnosed with Hyperparathyroidism, your blood Calcium has to be high. Do you know your calcium level?

When I got up to 11.2, and was feeling awful I had the offending tumor removed. I immediately felt 1000% better!

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Profile picture for jabrown0407 @jabrown0407

I am currently doing research on neuropathy since no doctor seems to want to focus on it for longer than 30 seconds. I have been plagued for about 5 years with neuropathy in my feet, a lot of numbness with limited pain. I have plenty of pain in my head to make up for the small amount in my feet. I just started ALA at 200mg/day. It seems to be helping almost immediately.
I take little Big Pharma drugs, only for my hypothyroidism and my hypertension. I just completed a six-month course of prednisone to treat my PMR (polymyalgia rheumatica). Currently we are treating my hyperparathyroidism with vitamin D and calcium supplements. No other drugs except Tylenol for pain.
My PCP wanted to start me on statins because my Lipid Panel was creeping up. I totally resisted and decided to give up refined sugar. It took about two months to no longer crave sugar, but I was able to kick the habit. The serendipity was my Lipid panel has not looked this good in 25 years. That was two years ago. I still do not eat refined sugar, no longer even want it.
I eat organic at home, and do not go to fast food places or eat in chain restaurants where the food is processed so that every site is serving the exact same food.
I applaud your efforts to get off of Big Pharma. My experience is that fewer drugs allows our body to do what it does best, that is, to heal itself. Hang in there and you will be able to better identify and treat your problems with fewer drugs and more healthy living lifestyles.

Jump to this post

I applaud your positive attitude and your willingness to conduct research. Big Pharma will only create more problems for our bodies if not now, eventually. Today's New York Post contained an article about linkage of gabapentin to dementia. I, too, did some research into diets for diseases like MS and RA. I had decided to eliminate gluten and added sugar. My recent visit to my neurologist led to my getting a blood test for celiac disease. He explained that celiac disease can cause neuropathy--he did say that I have a mild case. So the blood test turned up positive--so its farewell gluten. Along with dietary changes and some physical therapy I notice improvement. I even gained 3 lbs which was great since I was underweight thanks to celiac issues. And, organic is the way to go whenever possible!!

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