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Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Blood Cancers & Disorders | Last Active: Aug 12 7:56pm | Replies (44)Comment receiving replies
@cathy56 Welcome to Mayo Clinic Connect. I see you have been a member here for a while, and this is your first post.
Have you asked your local oncologist about contacting Mayo Jacksonville for their input? With a diagnosis of MGUS a decade ago, have you been followed by a hematologist since then for periodic monitoring of those symptoms? From your post, it seems like you are dealing with more than one condition right now, and that certainly can contribute to a lessened sense of quality of life! Perhaps your local cancer clinic has a patient advocate or social worker who can help you?
Ginger
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Being 68 yr old on Medicare and the delay of correct diagnostics ! And leaving Hospice in April cause my local oncologist referred me to radiation oncology but again another test incorrectly performed and ? Of what happened ! I am not going back to local oncologist as I have no trust left so what do I do ??? The radiation oncologist suggested Mayo as he is a affiliated with Mayo and I know Mayo is the only place to get a confirmed diagnosis and repeat PET scan even if I have to pay for it as no one deserves to suffer with tests not completely done or wrong test done ! I can’t believe I was a former RN and going thru this as I would like to give up but something is keeping my brain alive with a disabled broken body with heart attacks, blood clots ( I have Quebec Platelet Disorder dx my Mayo in 2018 with widespread worsening Livedo whole body but no hem wants to deal with it even though there are labs and drugs to treat high lipoproteins and fibrinoloysis ) neuropathy limbs, falls, and just a array of issues ! And not to mention my NASH and 53 inch waist but accused of being alcoholic by one oncologist ! Reallly !! How much more can one person take