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@cathy56

I have been dx MGUS decade ago went to Mayo in FL in 2018. My 24 hr proteins were 1000 and slight beta globulin fraction but then R shoulder pain constant worse at nite so MRI shoulder indicated metastatic disease in 2018 and 2020 marrow showed C138 rare positive plasma cells then a bone biopsy suspected B cell lymphoma but no flow cytometry done as I awoke during bone biopsy finally PET scan indicated focal osseous bone lesion L lower limb dx C40.22 cancer Mets but I foolishly left hospice in April referred by Ocala, FL oncology to a radiation oncology for chemo or radiation therapy and have special PET scan in Ocala only to have wrong scan done they did only knees up with radioactive serum! This was done 2 months ago and now they want me to go to Mayo and how much can a patient take when my health and QOL has diminished with other symptoms that effect quality life and why can’t local oncologist contact Mayo resources for better outcomes for patients! It is discouraging.

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Replies to "I have been dx MGUS decade ago went to Mayo in FL in 2018. My 24..."

@cathy56 Welcome to Mayo Clinic Connect. I see you have been a member here for a while, and this is your first post.

Have you asked your local oncologist about contacting Mayo Jacksonville for their input? With a diagnosis of MGUS a decade ago, have you been followed by a hematologist since then for periodic monitoring of those symptoms? From your post, it seems like you are dealing with more than one condition right now, and that certainly can contribute to a lessened sense of quality of life! Perhaps your local cancer clinic has a patient advocate or social worker who can help you?
Ginger