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Mycophenolate or Myfortic: Do you have GI side effects?

Transplants | Last Active: Dec 2, 2023 | Replies (54)
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@janni1

I had terrible issues with Mycophenolate..ended up in Hospital for three weeks.
Lost 4stone in weight, couldn't eat or drink without it coming straight through without being digested. They took me off it and along with Tacrolimis I now take prednisilone (steroid).

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Replies to "I had terrible issues with Mycophenolate..ended up in Hospital for three weeks. Lost 4stone in weight,..."
Rosemary, Volunteer Mentor | @rosemarya | Nov 30, 2023

@janni1, Thanks for checking in and sharing your update. I have had no problems with Mycophenolate during my 14 years f taking it. Your experience really demonstrates how differently each one of us might respond to our immunosuppressant medications. I am very happy that your doctors have established a solution for you. Have your doctors indicated whether this will suffice for you for the long term? How long ago did you switch medications?
Are you re-gaining any of your weight?

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