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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7, 2024 | Replies (104)

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@lac74

I was diagnosed with a thigh Myxofibrosarcoma on August 2nd, had my first surgery on the 3rd and on the 9th, after the pathology report came out, I had my second surgery because the borders weren’t clean. Started physical therapy the day after my second surgery and radiotherapy 6 weeks later for 6 weeks. My tumor was a bit less than 5 cm.
Today I started to walk without a cane. Feel happy.

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Replies to "I was diagnosed with a thigh Myxofibrosarcoma on August 2nd, had my first surgery on the..."

So happy to hear you are walking without your cane. Congratulations on your progress after such a difficult journey.
My myxofibrosarcoma took 1 1/2 years to diagnose. 1st surgery Sept 2020 and 2nd surgery Dec 2020.
Then had to be completely inmobile for one month. Then 3 months later 6 1/2 weeks radiation.
Then physical therapy.
It's been a long journey but so very grateful to still have my lower leg.

@lac74, walking without a cane is a huge accomplishment. I bet you're feeling happy. That's quite an accomplishment is such a short time - although I bet it didn't feel like a short time. You've been working hard to regain muscle and mobility. What tip would you offer to others who are new to this diagnosis?