Has anyone experienced internal vibrations?

I have used those EXACT same words to desribe to my Dr. how I feel...." I have internal vibrations" and they will last for months. As I recall, nothing helped them until they just bent away. I got the same answers as you did with not relief. Cory in CA

Hey there. I seen your post and wondered if your vibrations have been solved ? I’ve had them since Sept of 20’.. Done all the tests. Taken pills. Gabapentin 300mg 2/daily. Nothing helped. EEG showed nothing and it was on my Birthday and I know my vibrations was very angry and I thought oh boy they’ll figure this out! Nope, it didn’t register for the test. I’ve seen my Neurologist n Neurosurgeon and only thing that they see is my Stenosis of course but in my mid back spine(area at back bra), there’s a cyst that could be causing fluid not to flow through smoothly. I had a Spinal Cord Stimulator back in 2007, it was removed in May 21’ so I could have MRIs. So that area at the top just smidge below it was where the leads were. Now if anybody knows vibrations I’m sure you’ll hear Reviews on People having Spinal Cord Stimulators having them. It’s just like the Vibrations I feel now, just as when one has the Implant knows when you’re driving and come to a stop, you’ll feel that pull or Vibration as your neck/body shifts a bit. So I know vibrations well. But no idea what these are now. Because they started a year before it was taken out. ( it didn’t work for me, 5 yrs tops, I feel like it’s when you’re on a medication you feel that tolerance).
They started in my left foot in mid Sept. 20’ then around Nov. It had moved up to my knee. THEN by Dec. it had gone up to my upper waist line in BOTH Legs. So my thoughts are if it’s a Cyst in my Back then Why did it all start in my foot ? I’ve seen a few diff Drs. Nobody knows anything of course or is it one of those things they don’t tell us completely about ? ((keep you coming back situation) Been there n Done that- like I said it’s been 3 years and 3 months now and NO Solution. They did however tell me that it may be a Mayo Clinic Consultation.. These Vibrations r really Angry n annoying. I’ve cried so often. I’ve wished for anyone ( a Dr) to feel these for 30 seconds. Maybe He/She would have an idea of what’s causing this. I wake up to them and I go to sleep. When I can sleep that is. I don’t sleep much. 2 hrs here n there. ( my daughter got me a Fit Bit and I Monitor it and see that I get roughly 4-6 hr sleep)
Drs say it’s either a Brain Issue or Spine but I’ve seen Same Drs over n over and still NO Idea 🤷‍♀️. I’m 63 now and my Family has suffered through this struggling just as much as I have. When Mom complains, Everyone is involved!
I’m used to them but very annoying to have my Body buzz like this. I feel Body buzzing when I’m near anything like a fridge kicking on or when at a Dr office and ya feel the heating system come on and able to feel that Vibration. When the Dr uses the Tuning Fork on me, it’s the very SAME Vibration that I get 24/7 and only time it’s every stopped was if I had a TKR or high intense Surgery. But after 1-2 days it’s back. I know!_one other time was when I had Bronchitis back in March. My Dr gave me Predisone 20mg ( diff doses throughout the script)- Ana-histamine and I forget the 3rd one but it Stopped for about 3 Weeks. Then Bamm back like a Vengence. And these Vibrations are intense, they don’t calm down, I can sit in my Recliner and ya know how you’re twisted n such well I feel like the most intense vibrations are at my whole Bottom, than just the legs. It’s all the same Frequency but I feel stronger at the Bottom area. I’m like, ok I had a surgery, Did anyone drop a Pager 📟 in ME?
I’m serious, you’re reading this and saying, “ That’s Me” I was like that when I first started having these and reached out to here for any advice Help, a push in the Direction to who can help me. And I noticed then, I’m NOT the only one. So I pray there’s still hope that these can be resolved. If Anyone knows of any relief, Please do Share..I tell me Drs “I’m Not the only one going through this, Why is it so hard to Narrow it Down to the Nerve Root “? My Family has been a great support throughout this Madness, Without their support no telling what condition I’d be in. I know I couldn’t have gone this far without them. So, Is it a Brain or Spinal Issue ? God Bless our Country!!!

Hi. I too have Internal Vibrations since Sept of 20’.. Has yours been resolved yet ? I see you posted few years ago. I have Hoshimoto, Tinitus , Pots.
Started in my left foot up to my knee then other foot took off and by Dec the Vibrations are at my upper waist. Occasionally I’ve noticed in the past year it crawls up across my left chest. I’ll feel it in both arms now. I read where one person says it’s in their head. Gheesh I don’t know what I’d do if it goes that far. But your diet n meds, is there anything you do differently now than you did before that they calmed down ?

Hey there. I see your post is few years ago. Have you gotten a solution for your Internal Vibrations ? I’m still struggling with mine of just over 3 years now. My Drs don’t know what it is cept maybe a Cyst in my upper spine, that could be preventing fluid from getting through. All the Drs I consult on this says it’s either Brain or Spinal issues. But it took me couple yrs to understand Brain and nerve functions. They’re not visible but at most times I can feel like there’s outside vibration. From having a pet lay next to me I can feel my vibration bigger if I’m touching him. (Very lightly touch) my Tinitus is just as loud as my Vibrations. I feel like I can hear them. I have them 24/7 and they don’t die down unless I’m having a surgery then the vibrations come back the next day. So that tells me there that it’s the Brain )I’m 60+ and when this all started I wasn’t having any health issues. Drs don’t have a clue, but I gather they just want ya coming back. I tell them I’m not the only one that’s going through this. One Of my Neurologists mentioned that if they can’t solve this then “Mayo Clinic “ may be best option. I’m like, SO Mayo Drs knows everything ? 🤔 Well if that what it takes where do I sign up? I’m tired of all this. I want to live my life and not have to keep going to Drs and Spending $$$$ when I could be filling up my Gas tank or freezer.. Someone gotta be able to figure this out. The Gabapentin 300 helps in my hands and arms about 70% I had a Cervical neck fusion at C4 through C7 in 21’ A muscle relaxer don’t touch it. I’ve had a spinal cord stimulator in 2007 n taken out in 21’ so I could have MRIs. It didn’t help w my RSD. I feel like it’s when ya take meds you feel that tolerance level and same w this implant that I had. Possible ? Does that sound right ? So I still have these and I’m at my drs feet asking if MRIs or Cats been reviewed for a diagnosis ? I just can’t believe this is happening to me and Nobody can figure this out. I know I’m Not the only one struggling with this issue as you’re here Too ! SO who knows something and What can calm these Vibrations down ? I’m miserable as my family is too from hearing and seeing me go through this. SO what can Mayo Clinic do for Me ? I’m ready.. But I’m wondering if my Health Insurance will cover this ? I do have good Insurance, for Now that is, I’m 63, So Hubby says couple more years I can go on cheaper insurance 😠 Then I feel, will I get that same Care as I pay out to BCBS? God Bless us All, God Bless our Country 🇺🇸

I also have them for about 1,5 years. Anti inflammatory diet, intermittent fasting, no gluten, no sugar, no fast food, and no lactose have helped me. A day fasting and they almost dissappeared for a day which means eating less and eliminating certain foods seem to help. I ate however lots of clean nuts, meat, chicken, fish, vegetable yet no sweet fruits for a long time. Also to rest and stay away from stress as much as you can also help to reduce them in my case. They have increased since my stress have increased and I now eat sweet fruits, gluten and lactose every now and then. I need to return my strict diet... It is horrible, I know and doctors have no idea about it except they keep teeling it is stress. I wish you the best...

WOW, I never would’ve thought Diet was related. I’m gonna have to start paying more attention. I don’t do a lot of take out foods. Pizza for get togethers. If I do have a burger I try and work for it first. I’ve lost 173 pounds over last 6 years. (My husband 100) (Daughter 30)- were Rockhounds and hunting them. I myself can walk the beach for hours. Winter too. So trying to stay fit. But the vibrations came out of nowhere. Don’t have a clue what triggered them. I just woke up n there they were. It’s so intense and insane that I can’t get an answer and being pushed towards Mayo Clinic. I’ve seen my Neurologist in Ann Arbor in Michigan at the U of M Hospital but after 2 yrs he has no clue and suggested I see Mayo Clinic for option. I have all my tests n bloodwork. CDs.
I just don’t know where to get started. I’ve had a TKR in 21’ which failed me. Apparently I’m allergic to Nickel n Formaldehyde n lotions. So thinking allergy to the knee implant they did a knee revision this Sept. but all this started before those surgeries. A Cervical Fusion in 21’ a Subtotal Colectomy, hysterectomy which I almost died. Had sepsis so bad. Was in hosp 2 weeks then home with a pic line. But I have noticed in past 2-3 years my hair had been coming out in hand fulls after a shower. I lightly comb as I’ve lost so much n fear loosin it all. I’ve taken a baggie to Dr to show but I get the occasional reply, “Look at mine, I’m bald” -guy versus women. Finally after getting a new Dr. ( other closed up office n moved closer to his home) so I saw my Dermatologist who gave me men’s strength 50mg to use twice a day. ( hubby read it was for men so had to call pharmacy n ask if they gave me the wrong one) nope, just Dr prob thought I needed the extra treatments. So now I’m wondering if all my hair loss could be related to a diet that I did, all my Surgeries (anesthesia) related or Whatever.. I did get n still do lots of Protein shakes. I’ll have least 1 a day, sometimes an extra for that lil bump to steer away from temptation. Or if I do have a Brain or Spinal issue. Or a Cancer ? I wonder when Drs start testing for that ? I did get to nearly 300pds. I’m now averaging 125-28. I never thought I’d weigh less than I did than before we married 45 years ago..(135) Shocking. I’ll go to PT or Dr office n if I hadn’t been there awhile, they’ll ask what happened looking at an older drivers license..(I need a new one badly I look nothing like before). But I’m glad you posted about Diet. That clicked to maybe shy the hair loss but with these internal Vibrations I’m clueless. The only thing I can think of back in 2018 my PM sent me to this Neurologist they use. (After seeing her that was my last) I had a bad Vertigo spell where I was pulled to the right an crashed into a water heater n fell w me hitting a 2-liter pop bottle from the top. I believe back my head n neck hit the pop cap area. Doc said it was Occipital Neuralgia. That she could take care of it. She then gave me 2 Nerve blocks there in the room on first visit. Was sooo painful. It took 8 months to just get back to that same pain level as B4 those 2 injections on both sides of occipital. So of course I didn’t go back. My PM knew how bad it was for me. I couldn’t turn my head towards shoulders. Still can’t. Still a lot of pain. So now PM at a different facility is goin to do nerve blocks this Dec. a series of 3 and put asleep for the 5 min job. I can tough it n be awake but they say Best do it this way. I’m not Sqemish. Maybe it’ll help with my migraines too. But on my research from the Whiplash of hitting that pop bottle could have inflamed those nerves. I’d (found the right Dr before all this now, having gone yrs like this). So getting things done n figuring out all this is maddening. These Vibrations are a nuisance. A pain in my keister. Any other Ideas ? Thanks again about the stomach/diet. I’ll research. I’ve gone over 3 yrs now hopefully someone can help resolve this. I just like to get on with a normal life. I’m tired of going to Drs when I can be walking the Beach for Rocks.
God Bless our Country 🇺🇸

Other than a brain issue I have been wondering if it could be muscle related.
I have had mine for a few
years and it has moved to different locations

I found this diagram to be helpful. If you have any spine issues it can compress nerves causing all kinds of neuropathy symptoms. Google human spine and look at how interwoven the nervous system is. Also as you get older you might have disc’s degenerate and cause pressure where the nerves branch out through your vertebrae from your spinal cord. Don’t know if this is relevant to your situation.

Oh yes, every day for 1.5 years. Recent Mayo visit determined it to be central sensitization, a problem with the central nervous system. I am doing the therapies they have suggested. They say it will take a long time, but I am patient and persistent and want this to go away.

Yes, but they do not come as often as they use to.