Hi. It appears you are new to MayoConnect. Its a great community and some point one of our awesome mentors will officially welcome you and make sure your question is on the best focus areas. Sadly, since you have a specific question, let me say I do not have Crohn’s disease. I do have a different autoimmune disorder, Rheumatoid Arthritis. And I have flares with that. And I just had lung cancer removed six months ago.
When you say they told you there is a growth on your intestine can you talk a bit about that? Was it found in testing of some kind? Did the docs say how they want to react to it? Like more testing or imaging?
I guarantee that someone in this incredible community has walked the path you find yourself on. They will find us. Maybe not tonight tho. So in the meantime let’s just explore what you know and how you learned it. If that suits you.
As wonderful as this site is, it can be a bit confusing to find things to me.
I’m not sure what question you are answering when you say “yes for 40 years”
@tirelands I can see that you’ve been a member of Mayo Connect for sometime now but this is your first comment! So welcome again@
How have you been managing your disease all this time? Maybe you have some helpful answers for @ginabarrick.
Do you have any special questions for the group?
Becky, Volunteer Mentor | @becsbuddy | Nov 28, 2023
@ginabarrick. I could see that you’ve been a member since June but your question on Crohn’s disease is your first, so welcome! You probably haven’t heard from other members because they’re still traveling for the holiday. I’m really sorry that you’re having a flare right now. Did your doctor give you any medications to control the flare?
A growth on the intestine can mean many things and only your doctor knows. Excellent question to ask! Use the portal, if it’s available.
How long have you had Crohn’s?
As wonderful as this site is, it can be a bit confusing to find things to me.
I’m not sure what question you are answering when you say “yes for 40 years”
Was trying to text a member that said if anyone on here has dealt with crohns. But I must have sent to you. Yes this is very confusing to me thats why I have not used this. Sorry it's over my head.
Was trying to text a member that said if anyone on here has dealt with crohns. But I must have sent to you. Yes this is very confusing to me thats why I have not used this. Sorry it's over my head.
@tirelands If you want to text a specific member, put @and member’s screen name at beginning of message, just like I did to begin this message. Just keep sending messages and you’ll catch on!
Can you try and answer her again?
Was trying to text a member that said if anyone on here has dealt with crohns. But I must have sent to you. Yes this is very confusing to me thats why I have not used this. Sorry it's over my head.
Yes I have Crohns Disease but seems im in denial at times. Just disgnosed last yest but looking back i can see i have been having issues that kept getting worse.
Right now im on the Steroid Entocort but a flare started two days ago!!! When i started the Steroid 8 weeks ago i thought I had my life back, it was amazing and no side effect's. Now im feeling its time to follow a crohns diet plan. Anybody have a plan that works for them?
I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will try. I have had Crohn's for over 40 yrs and I am still here so must be doing something quasi-right. In a flair- go as low fiber as you can. Get calories from from sources that your gut doesn't have to process. Instant mashed potatos, jello, puddings and the like. Do this for several days until things quiet down and/or your doc offers something else. Then add back things still concentrating on low fiber. Most cook books or the internet can offer low fiber diets. The Mediterean Diet is not for you. When you are tolerating this is well, you still have to be careful. Don't get overconfidant and trip yourself up. You will find out your trouble spots and they are likely different for everyone. Look at Low Dose Naltrexone and its effect on Crohn's disease. It helps over 80% of us, me included. I've even had a "normal" colonscopy. I have to eat all my veggies well cooked and as a child, I loved raw vegatables. Believe me, your life isn't over. Far from it. Go and do. Treat yourself well.
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Hi. It appears you are new to MayoConnect. Its a great community and some point one of our awesome mentors will officially welcome you and make sure your question is on the best focus areas. Sadly, since you have a specific question, let me say I do not have Crohn’s disease. I do have a different autoimmune disorder, Rheumatoid Arthritis. And I have flares with that. And I just had lung cancer removed six months ago.
When you say they told you there is a growth on your intestine can you talk a bit about that? Was it found in testing of some kind? Did the docs say how they want to react to it? Like more testing or imaging?
I guarantee that someone in this incredible community has walked the path you find yourself on. They will find us. Maybe not tonight tho. So in the meantime let’s just explore what you know and how you learned it. If that suits you.
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Like -
Helpful -
Hug
1 ReactionYes for 40years I'm new to this site so please be Patient with me
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Helpful -
Hug
1 ReactionAs wonderful as this site is, it can be a bit confusing to find things to me.
I’m not sure what question you are answering when you say “yes for 40 years”
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Like -
Helpful -
Hug
1 Reaction@tirelands I can see that you’ve been a member of Mayo Connect for sometime now but this is your first comment! So welcome again@
How have you been managing your disease all this time? Maybe you have some helpful answers for @ginabarrick.
Do you have any special questions for the group?
@ginabarrick. I could see that you’ve been a member since June but your question on Crohn’s disease is your first, so welcome! You probably haven’t heard from other members because they’re still traveling for the holiday. I’m really sorry that you’re having a flare right now. Did your doctor give you any medications to control the flare?
A growth on the intestine can mean many things and only your doctor knows. Excellent question to ask! Use the portal, if it’s available.
How long have you had Crohn’s?
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Like -
Helpful -
Hug
2 ReactionsWas trying to text a member that said if anyone on here has dealt with crohns. But I must have sent to you. Yes this is very confusing to me thats why I have not used this. Sorry it's over my head.
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Like -
Helpful -
Hug
1 Reaction@tirelands If you want to text a specific member, put @and member’s screen name at beginning of message, just like I did to begin this message. Just keep sending messages and you’ll catch on!
Can you try and answer her again?
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Helpful -
Hug
2 ReactionsThat’s not an issue! The person you want to hook up with is
@genabarrick
If you go to top of this page for the autoimmune diseases you should see her post asking if anyone has Crohns Disease.
I hope you two can connect
Thanks!
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1 ReactionYes I have Crohns Disease but seems im in denial at times. Just disgnosed last yest but looking back i can see i have been having issues that kept getting worse.
Right now im on the Steroid Entocort but a flare started two days ago!!! When i started the Steroid 8 weeks ago i thought I had my life back, it was amazing and no side effect's. Now im feeling its time to follow a crohns diet plan. Anybody have a plan that works for them?
I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will try. I have had Crohn's for over 40 yrs and I am still here so must be doing something quasi-right. In a flair- go as low fiber as you can. Get calories from from sources that your gut doesn't have to process. Instant mashed potatos, jello, puddings and the like. Do this for several days until things quiet down and/or your doc offers something else. Then add back things still concentrating on low fiber. Most cook books or the internet can offer low fiber diets. The Mediterean Diet is not for you. When you are tolerating this is well, you still have to be careful. Don't get overconfidant and trip yourself up. You will find out your trouble spots and they are likely different for everyone. Look at Low Dose Naltrexone and its effect on Crohn's disease. It helps over 80% of us, me included. I've even had a "normal" colonscopy. I have to eat all my veggies well cooked and as a child, I loved raw vegatables. Believe me, your life isn't over. Far from it. Go and do. Treat yourself well.
-
Like -
Helpful -
Hug
1 Reaction