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Does anybody have Crohn's disease?
Inflammatory Bowel Disease (IBD) | Last Active: Mar 6 11:12am | Replies (66)Comment receiving replies
I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will try. I have had Crohn's for over 40 yrs and I am still here so must be doing something quasi-right. In a flair- go as low fiber as you can. Get calories from from sources that your gut doesn't have to process. Instant mashed potatos, jello, puddings and the like. Do this for several days until things quiet down and/or your doc offers something else. Then add back things still concentrating on low fiber. Most cook books or the internet can offer low fiber diets. The Mediterean Diet is not for you. When you are tolerating this is well, you still have to be careful. Don't get overconfidant and trip yourself up. You will find out your trouble spots and they are likely different for everyone. Look at Low Dose Naltrexone and its effect on Crohn's disease. It helps over 80% of us, me included. I've even had a "normal" colonscopy. I have to eat all my veggies well cooked and as a child, I loved raw vegatables. Believe me, your life isn't over. Far from it. Go and do. Treat yourself well.
Replies to "I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will..."
Crohn’s disease is a serious disease. I have UC ulcerative colitis for 20/25 years. Every eight weeks I receive Entyvio infusions which do their job. Before Entyvio I received Remicade infusions. And before Remicade it was pills and steroids. I do eat healthy and have been on a gluten free diet. As you know it’s very difficult having Crohn’s disease. I wish you well
Karen
Hello! My son has Crohn's disease. He is only 22. He loves to eat well, and then suffers. Can you tell me what your usual diet is like? And maybe you can suggest tasty and nutritious dishes for Crohn's disease?
Hi, this is my first time commenting. My husband was diagnosed 3 weeks ago with Crohn’s disease. He had surgery where part of his intestines was removed. We haven’t had his follow-up appointment yet to discuss the plan for this. Thank you for sharing.
@suetex you gave good advice. In my case I try to eat no fiber as I have intestinal scaring both from surgery and the CD. Could and had resulted in hideous cramping before I quit fiber. 30+ years and still alive. Are you on any anti inflammatory? Steroids meant for short term I hear. Anemic? Fatigued all the time but can’t pin it definitively on CD. Probably contributes. Surgery and CD a bad mix unless no other way. Neither cause nor cure known. Most GI’s have no clue how to ameliorate. Biologics risky. Sorry.
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@suetex Thank you so much Suetex. Excellent info. Regarding the Naltrexone when do you take it and how much? Do i need to run this by my doc?