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Positive test results for amyloids

Blood Cancers & Disorders | Last Active: Jun 22 8:13am | Replies (19)
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@colleenyoung

Hi Nancy,
Yes, you are replying right and using the forum as it is intended.

I'm sorry to hear that you have COVID at the moment. I hope you recovery quickly enough to keep the original appointment for the biopsies. I'll be interested to know what you learn. If the suspicion is proven to be AL amyloidosis, I can direct you to related discussions and members with the same diagnosis to guide you.

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Replies to "Hi Nancy, Yes, you are replying right and using the forum as it is intended. I'm..."
NancyWorld | @nancyworld | Nov 28, 2023

Thanks, I will. I expect I'll know more next week depending on how long it takes for results to come back. If the two biopsies are both negative (a 15% chance), then it'll have to be a sural nerve biopsy next, and a longer wait.

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sherryzitter | @sherryzitter | Mar 28 12:09pm

@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with a new immunotherapy (BiTE therapy) it has only been out for six months.

I would love to connect with others who have Amyloidosis or multiple myeloma who have had experiences with immunotherapy. Thanks so much!

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