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Factor V Leiden: What exercise helps with blood clots? What to avoid?

Posted by ticket @ticket, Nov 8, 2023

Recently newly diagnosed..what type of exercise is done for blood clots and anything that should be avoided food or daily tasks?

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Mentor
Lori, Volunteer Mentor | @loribmt | Nov 25, 2023
In reply to @swright9 "Thank you for that detailed response. I have Factor V and Homozygous for it. It was..." + (show)
@swright9

Thank you for that detailed response. I have Factor V and Homozygous for it. It was shocking that both my parents had the gene.

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Hi, @swright9. It’s interesting that both of your parents had the Factor V Leiden gene mutation. It’s an inherited condition that can increase the risk for developing blood clots. Inheriting the trait from both sides, that significantly increases your risk. I’m happy to read that you’re ahead of the game with taking blood thinners and keeping active.

Did your parents ever have any clotting issues?

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2 replies
ticket | @ticket | Nov 25, 2023

My mother passed at age 46 of blood clots but I just found out 1 month ago I have FVL at age 79..

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swright9 | @swright9 | Nov 25, 2023
In reply to @loribmt "Hi, @swright9. It’s interesting that both of your parents had the Factor V Leiden gene mutation...." + (show)
@loribmt

Hi, @swright9. It’s interesting that both of your parents had the Factor V Leiden gene mutation. It’s an inherited condition that can increase the risk for developing blood clots. Inheriting the trait from both sides, that significantly increases your risk. I’m happy to read that you’re ahead of the game with taking blood thinners and keeping active.

Did your parents ever have any clotting issues?

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Yes, they would stop taking their medication and end up in the hospital with pulmonary clots and be hospitalized.

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ducklynn | @ducklynn | Nov 26, 2023
In reply to @ticket "Still trying to make head or tails about this?? It's going to take me some time..." + (show)
@ticket

Still trying to make head or tails about this?? It's going to take me some time to adjust to this diagnosis.I have to have positive thoughts...

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I am trying to have positive thoughts as well. It’s a lot to take in.

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ticket | @ticket | Nov 27, 2023
In reply to @loribmt "Hi, @swright9. It’s interesting that both of your parents had the Factor V Leiden gene mutation...." + (show)
@loribmt

Hi, @swright9. It’s interesting that both of your parents had the Factor V Leiden gene mutation. It’s an inherited condition that can increase the risk for developing blood clots. Inheriting the trait from both sides, that significantly increases your risk. I’m happy to read that you’re ahead of the game with taking blood thinners and keeping active.

Did your parents ever have any clotting issues?

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My mother died if blood clots in 1968 but I never had a blood clots till now at age 79

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1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Nov 27, 2023
In reply to @ticket "My mother died if blood clots in 1968 but I never had a blood clots till..." + (show)
@ticket

My mother died if blood clots in 1968 but I never had a blood clots till now at age 79

Jump to this post

Since Factor V Leiden is an inherited trait, it may be that your mom had this genetic mutation and passed it along to you. It can increase the chances of developing blood clots in the legs and lungs. According to an informational article from Mayo Clinic, many people with the condition never develop abnormal clots.
https://www.mayoclinic.org/diseases-conditions/factor-v-leiden/symptoms-causes/syc-20372423
You’ve had a long life without clotting issues even though you have the Factor V Leiden gene. I see in some of your previous posts that you’re now taking Eliquis. Where did you experience your blood clots? Was this a one time event for you?

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3 replies
ticket | @ticket | Nov 27, 2023
In reply to @loribmt "Since Factor V Leiden is an inherited trait, it may be that your mom had this..." + (show)
@loribmt

Since Factor V Leiden is an inherited trait, it may be that your mom had this genetic mutation and passed it along to you. It can increase the chances of developing blood clots in the legs and lungs. According to an informational article from Mayo Clinic, many people with the condition never develop abnormal clots.
https://www.mayoclinic.org/diseases-conditions/factor-v-leiden/symptoms-causes/syc-20372423
You’ve had a long life without clotting issues even though you have the Factor V Leiden gene. I see in some of your previous posts that you’re now taking Eliquis. Where did you experience your blood clots? Was this a one time event for you?

Jump to this post

Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and blood clots in lungs and legs were discovered..

REPLY
ticket | @ticket | Nov 27, 2023
In reply to @loribmt "Since Factor V Leiden is an inherited trait, it may be that your mom had this..." + (show)
@loribmt

Since Factor V Leiden is an inherited trait, it may be that your mom had this genetic mutation and passed it along to you. It can increase the chances of developing blood clots in the legs and lungs. According to an informational article from Mayo Clinic, many people with the condition never develop abnormal clots.
https://www.mayoclinic.org/diseases-conditions/factor-v-leiden/symptoms-causes/syc-20372423
You’ve had a long life without clotting issues even though you have the Factor V Leiden gene. I see in some of your previous posts that you’re now taking Eliquis. Where did you experience your blood clots? Was this a one time event for you?

Jump to this post

Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and blood clots in lungs and legs were discovered..going to hematology Dr now..

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2 replies
Mentor
Lori, Volunteer Mentor | @loribmt | Nov 27, 2023
In reply to @ticket "Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and..." + (show)
@ticket

Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and blood clots in lungs and legs were discovered..going to hematology Dr now..

Jump to this post

That’s a frightening scenario, having blood clots in your legs and lungs! Thank heaven’s you went to the hospital when you did! That could have been catastrophic.
I’m happy to hear you’re seeing a hematologist now. They are doctors who specialize in disorders related to your blood, bone marrow, and lymphatic system. Hopefully now that you’re getting treatments, this won’t happen again!
How often do you have followup appointments?

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1 reply
jp | @jp | Nov 28, 2023
In reply to @swright9 "Hi! I was diagnosed when I was 25 I am now 47. I presented my clots..." + (show)
@swright9

Hi!
I was diagnosed when I was 25 I am now 47. I presented my clots at the time I was diagnosed with Lymphoma. I never had a clot before that. I am also taking Xeralto. If you go to Janssen's website you can get your medication paid for. If you have private insurance you will only need to pay $10.
I avoid large amounts of food containing Vit K. it will counteract your Xeralto as well as the grapefruit and cranberry.
I exercise a lot. Keeping my legs strong has kept any blood clots from forming. However I get the little blood spots around my ankles "Petechiae". I bruise very easily so being aware of your surrounds is important.

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I had a heart attack at my work office when I was 35, I am now 54 and diagnosed way back then. It was a moderately new thing they told me, was on Plavix forever, not anymore just aspirin. The thing is now I get these blood bruises all over even when I just touch my skin does anyone else get this? Should I be worried?

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