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Anybody else have Factor V Leiden?

Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)
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@ducklynn

Diagnosed w/ portal vein clot after CT for stomach pain (ulcer) in September. Hematologist did tons of blood tests to find out why I got the clot. Factor V Leiden was found. Started 5mg Eliquis 2x’s a day. I’m so scared of head injury or getting cut accidentally. Lately headaches at top of head but I picked up a virus last week so not sure what’s causing the headache. Anybody else on Eliquis w/headache?
Thanks in advance & hugs to all of you!

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Replies to "Diagnosed w/ portal vein clot after CT for stomach pain (ulcer) in September. Hematologist did tons..."
Colleen Young, Connect Director | @colleenyoung | Nov 30, 2023

Hi @ducklynn, it can be scary to learn that you have factor V Leiden. As you live with knowing you have this, hopefully you will become less fearful of injury. You might appreciate this related discussion:
- Factor V Leiden: What exercise helps with blood clots? What to avoid?
https://connect.mayoclinic.org/discussion/factor-v-leiden/
I'm also tagging fellow members like @dhutch @maribel8 @emarcatkin @sps488 who have experience with factor V Leiden and Eliquis, although I don't know if they experience headaches.

Did your headaches only start with the medication or since you had the virus last week? Have they subsided?

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