1. < Post-COVID Recovery & COVID-19

Have you been cured of POST COVID?

Posted by mccoydj1 @mccoydj1, Sep 28, 2023

I would love to hear from folks that have been cured from Post COVID. What were your symptoms.... what things helped you improve? what things made it worse for you?

I ask because I am currently on a recovery journey - would love to understand what you've done

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

kentkemmerling1949 | @kentkemmerling1949 | Nov 25, 2023
In reply to @ericy210 "It’s been in 18 months and I’m in great programs and trials. A cognitive therapist told..." + (show)
@ericy210

It’s been in 18 months and I’m in great programs and trials. A cognitive therapist told me straight in our first appointment- I will likely never return to the “old me.” My work with her will help me adapt and find new tools to help my memory, which help. I’m not cured, but living better. It’s like these people who lose a leg, then get an artificial get and develop into a great athlete whose attitude gives encouragement and inspiration to everyone.

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Great news! I must say that I am worse after 4 years. I can’t walk well or stand up. I can’t seem to get enrolled in studies or programs. I got turned down by Mayo and another study. Where did you go?

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Diba7290 | @dianabajandas72 | Nov 28, 2023
In reply to @covidstinks2023 "God Bless You! It is a journey my friend. I have been to so many doctors..." + (show)
@covidstinks2023

God Bless You! It is a journey my friend. I have been to so many doctors to get answers. I was diagnosed with Long Covid back in July. I am now going to an Integrative Medicine doctor who treats Long Covid. I am getting IV infusions to boost my immune system. I have only had 1 and go next week for my second one. I will say this. I felt like I was coming down with asthmatic bronchitis again a few days ago and I cleared up....I have to say, it must be the infusion working along with my boatload of vitamins I take. LOL. It's like unpeeling an onion with long COVID....one layer at a time. I already battled asthmatic bronchitis, but, with COVID last year, I got double pneumonia. I have had asthmatic bronchitis about 4 times since COVID and pneumonia twice (including COVID with both issues ) and 4 sinus infections. I am on a nebulizer now for my lungs. COVID tends to attack where we are weakest. That would be upper respiratory, GERDS & joints for me. I believe I have another autoimmune disease, but, the rheumatologist cannot give me a diagnosis. My numbers are all over the place for inflammation. My arthritis got worse and so did thyroid diseases. I feel like if I can get my immune system booted up it will help so much. Praying for all of us to recover from this because God can do it! Blessings....

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What kind of IV infusion do you get?

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1 reply
kentkemmerling1949 | @kentkemmerling1949 | Nov 29, 2023
In reply to @dianabajandas72 "What kind of IV infusion do you get?" + (show)
@dianabajandas72

What kind of IV infusion do you get?

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I don't receive any infusions or any other treatment for that matter. The things I have tried have not worked.. paxlovid, accupuncture, physical therapy.

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iamawriter2 | @iamawriter2 | Mar 19 5:11pm
In reply to @carlosmayo "I would not say I am cured but I am 75% better and that has been..." + (show)
@carlosmayo

I would not say I am cured but I am 75% better and that has been life changing. I credit Abilify for most of the improvement (currently taking 0.9mg/day), also Naltrexone (3mg/day). Pacing has also been key - at my worst I set a timer and was active for 45 minutes and then rest for 15 minutes, all day long. Now I can go 2-3 hours without a rest. Napping, meditation, and doing things I enjoyed (art work, being in nature, etc) also helped.

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Carlos - That is great to hear! I considered LDN, but my understanding from people taking it (and medical professionals) one has to keep taking it or symptoms will return. The most reported change was the lifting of the fatigue. Return of that symptom(s) was also the experience of those who had stopping taking it. Were you told the same thing?

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carlosmayo | @carlosmayo | Mar 19 5:56pm

Hello Writer. Yes, that is exactly what I was told, same for Abilify. That you are on it for life (or until they find a cure). And like you said when you stop taking it symptoms will come right back. But at the low dose that I take - 3mg/day - there are no side effects, so completely worth it for the tremendous reduction in symptoms. For me I got huge reductions in fatigue, brain fog, pain breathing, and more.
I get 50mg tablets and dissolve them in 50 ml water to make a 1 mg/ml solution that I take with a syringe (no needle) - cost is under $5 dollars a year after insurance.
Good luck to you

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florabel | @florabel | Mar 20 10:46am

I am not cured of post-Covid symptoms but would like to know your symptoms and what did you do to be on the road to recovery. It will be helpful for us still suffering from post-Covid symptoms. Like light at the end of a tunnel. Hopefully, you are fully recovered by now. Thank you.

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gerdi | @gerdi | Mar 25 9:27am
In reply to @denglish19 "Yep! I totally remember the constant drip down the throat -- especially when trying to sleep!..." + (show)
@denglish19

Yep! I totally remember the constant drip down the throat -- especially when trying to sleep! It's really annoying and frustrating! I slept 1/3 inclined for weeks to help with that...

Solutions are easy and you're definitely on the right track but you need to eat an anti-inflammatory diet + low histamine diet as well. Have you tried that? (Strictly?) You can look up which foods have high histamine levels -- it may surprise you! I was eating things that I thought were healthy but they actually have high histamine levels (tomato, avocado, fermented foods etc). That way your body can get out of the inflammatory/high histamine response... Are you taking any histamine blockers? It helps! (Allegra etc)

Happy to send you my overall protocol when it's ready.

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I realise this is an older post - how have you been? Have you been able to finalise your protocol? I'd be interested to see it.
Thanks and all the best!

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