1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Jen, Alumna Mentor | @sandytoes14 | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

@grandmar Hi Ronnie,
I'm sorry to read that the last lumbar injections didn't work for you.I would be very discouraged. How are you dealing with it? Over the past 8 years in particular, I have had so many injections I feel like a pin cushion. One thing I did find was that only one type of steroid worked to relieve my pain.Of course, now that I'm thinking of the name it's not coming to me. It begins with an M.
Hopefully today you are feeling a bit better!
Jen

REPLY
Jen, Alumna Mentor | @sandytoes14 | Apr 28, 2018
In reply to @parus "Maybe those who do not live with chronic (and severe) pain do not grasp the concept..." + (show)
@parus

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

Jump to this post

@JustinMcClanahan Your words are so true. Those of us that experience chronic pain are in no way weak. Sometimes I think I am stronger I have this hurdle to deal with all the time. That was not always the case as I think it is something learned. As a society we tend to believe the negative and not the positive. I'm not sure why that is but if anyone has an idea I'd love to hear it..
Thanks Justin for sharing your story with us. It means a good deal to Connect.

REPLY
Texas Freedom | @oregongirl | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

Can you try to remember the steroid name starting w M? I was going to ask for that. Pretty soon they will stop allowing steroids

REPLY
Texas Freedom | @oregongirl | Apr 28, 2018
In reply to @parus "Maybe those who do not live with chronic (and severe) pain do not grasp the concept..." + (show)
@parus

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

Jump to this post

Parus. I agree with your words. I will never understand why constant pain is something that is not understood even by Drs who refuse to give you a stronger pain med. My primary Dr said quality of life I's important. What does that mean to her. I am allowed tramadon 50 mh.

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

Hi Jen @sandytoes14, is it methylprednisolone?

-- https://www.nhs.uk/conditions/steroid-injections/

John

REPLY
Jen, Alumna Mentor | @sandytoes14 | Apr 28, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

@kristacat Let me begin by welcoming you to Mayo Connect! I'm so glad you joined us! The pain from bursitis in the hip sounds so very painful. Are your doctors treating the inflammation? I also have fibromyalgia although I have a good deal of symptoms that go along with it than you experience. I believe the tiredness you are feeling is from fibro What I do is have a vitamin panel run with all of my blood work orders that my doctor puts in for me. Many people find taking B complex vitamin, calcium with magnesium and a multi-vitamin help ease the fatigue, @kristacat I wonder if you have seen a rheumatologist? Can you please share with us what you are doing at this time to manage your chronic pain?

REPLY
Jen, Alumna Mentor | @sandytoes14 | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

No @johnbishop that isn't the one that I have injected. Methylprednisolone is in the MED DOSE pack I recently took. I'll need to go dig up my file. As MacArthur said, I shall return..

REPLY
Jen, Alumna Mentor | @sandytoes14 | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

@grandmar @oregongirl @johnbishop OK so the brain was in the right church, wrong pew... The steroid that works best is Dexamehtasone. Hope that helps!

REPLY
lioness | @lioness | Apr 28, 2018

One thing that helped me was to de stress once I got rid of my car payments and all it was a hugh lift as I'm 75 on fixed income see if you can with whatever is stressing you out ,it worked for me Altho I still am in pain but a little less mentally.

REPLY
1 reply
grandmaR | @grandmar | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

Thank you!

REPLY
View MoreView Less
Please sign in or register to post a reply.