Anyone here with Medullary Thyroid Cancer?

Posted by christys @christys, Feb 22, 2021

I had my 1st surgery in complete thyroid removal in 2017 and 2 more after that.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

planetsunrise | @planetsunrise | Nov 23, 2023

In reply to @trosborn21 "How are you doing now? Did you have radiation or chemotherapy?" + (show)

I’m doing well thanks. It took sometime to recover. I also had an accessory nerve injury during so it took its toll. No other treatment except yearly monitoring which included an injection to see if it raised calcitonin levels. If I could give advice after surgery it would be to ask for something for pain if you have chest drains removed. You may not have them either. 😊

trosborn21 | @trosborn21 | Nov 24, 2023

In reply to @planetsunrise "I’m doing well thanks. It took sometime to recover. I also had an accessory nerve injury..." + (show)

Thank you! That’s very helpful advice! I’m glad you are doing well:) this is very scary stuff for me as my mom is currently dying of brain cancer. 💔

planetsunrise | @planetsunrise | Nov 24, 2023

In reply to @trosborn21 "Does anyone have Medullary Thyroid Cancer? I was recently diagnosed!" + (show)

Im so sorry you are dealing with this with your Mom. My heart goes out to you. I lost my sis years ago from brain cancer. It is such scary stuff! Please feel free to contact Brant me if I can maybe answer questions for you. 🥰

trosborn21 | @trosborn21 | Nov 25, 2023

In reply to @planetsunrise "Im so sorry you are dealing with this with your Mom. My heart goes out to..." + (show)

I appreciate that! Thank you!

trosborn21 | @trosborn21 | Nov 25, 2023

In reply to @alijua "Diagnosed this year with MEN2A. Had thyroid removed in April 2021. Medullary thyroid cancer and primary..." + (show)

What were your symptoms?

alijua | @alijua | Jan 7 3:32am

In reply to @trosborn21 "What were your symptoms?" + (show)

I just felt a small lump in my throat. I had surgery in 2021. Complete thyroid removal and left neck dissection. I believe they removed 38 lymph nodes. No other treatment other than medication daily and lab work quite often.

trosborn21 | @trosborn21 | Jan 7 7:16am

In reply to @alijua "I just felt a small lump in my throat. I had surgery in 2021. Complete thyroid..." + (show)

That’s great news! Hoping you’re doing well!

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