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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@gardeningjunkie

Most of us that tried cilantro oil tablets or cilantro oil drops had little success. Since there is no prescibed amount we all just winged it, what I did successfully was to use fresh or fresh frozen cilantro. I used about 1/2 bunch stems and leaves blended in a blender, daily for 6 months because I was so successful I was afraid to go off of it. Most just experimented for 3 months, learning if it helped and then stopped either way. Also most of us that get a twing, the feeling of little bumps returning under our skin and strange skin sensations resume the cilantro for a few days and in my case the bumps (never breaking the skin) disappear.
I was only about 1 month into a recurring breakout when I learned about cilantro and after drinking for about 3 weeks. I notice the severity of this recent breakout was stalled and by 6 weeks I was sure I was healing. Still it took 2 months to feel confident it was working. After my initial GD breakout, 1 year, horrible all over front and back torso, upper and lower, my subsequent pattern was 6 months of activity and 6 months of dormancy and that went on for over 4 years I learne about cilantro. After my first year none of the subsequent breakouts were quite as severe as the inital breakout, the difference being my upper front and back torsos were not solid with papuales, I had spaces between them. Yet the lower torsos were just as bad as the first year. The misery was extreme.
Initially I would add fresh fruit, probiotic yogurt, raw egg, almond milk and add the cilantro. I kept thinking I would get used to the flavor of cilantro. I never did. If I'm doing a cilantro maintenance I now prefer to make my morning smoothy without the cilantro and remove the smoothly, put in cilantro an about a half cup of water, blend and chug down this tonic without breathing and this way I don't notice the taste.
Search the web for infomation about home chelations for heavy metals. There is also information about heavy metals tied to Alzeheimers, Parkinson's and GD, but not a lot. I found several sites, so give it a try. There are no studies tieing in heavy metals to GD that I found, but you understand no pharmacutical company is motived to research this because their is no money in it for them.
Many use the Facebook GD site and I wonder if they have researched cilantro with GD. The Earthclinic GD site is the intial source of testimonials that Kimass1 read and shared this Earthclinic site link information with us on Mayo back mid-Feb. 2019.

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Replies to "Most of us that tried cilantro oil tablets or cilantro oil drops had little success. Since..."

I am putting this out to the GD population in general. Gardeningjunckie is probably the single most knowledgeable person on the subject of this miserable disease around. I have had GD for about 5 or 6 years now and a day does not go by when I don't read what is said on this site. I am incredibly thankful for her knowledge and insight about this disease we all suffer from. I did fresh frozen Cilantro for about 2 years and the itching stopped. It resurfaced about 1 1/2 years ago but only minor, intermittent outbreaks. I am lazy by nature and decided to try the Cilantro oil instead of going through the process of preparing the herb and choking it down in a fruit smoothie. I have been using it since my last outbreak, and in all honesty, I don't think it's as effective as fresh frozen. My outbreak is small, and I manage the itching with ice, which I find very effective, so I continue with the oil hoping it will eventually rid me of any symptoms. On the other hand, I may just go back to the fresh, frozen in an attempt to finally be rid the symptoms entirely. My hat is off to gardeningjunckie for her incredible transparency, and all the research she has done. For my money, she far and away is the best resource about GD there is. Thank you again for all that you do for all of us.

Thank you very much! I did my first cilantro “shot” today. 1/2 bunch blended with a bit of water. It didn’t bother me at all. I don’t mind cilantro and I’ll try anything at this point! I bought several bunches and froze it. I’m very excited to have something to try. I’ve been miserable and searching for help and answers. I’m grateful for all the informative, helpful posts you have made. I’ve been reading through all the posts and it’s great to know there is a community of people trying to help one another. I requested to join the FB group and checked out Earthclinic site as well. I’m so glad to hear that you are feeling better after your last breakout. Thank you again for taking time to write. All the best.

Thanks to your recommendation, I've been buying large quantities of cilantro at a time and blending it in my food processor with a small amount of water and freezing it in cup cake pans. Once frozen I take the frozen cilantro discs and put them in large Ziploc bags. Every night I put one frozen cilantro discs in a small juice glass to defrost with a tiny bit of water and chug it down. The taste doesn't bother me and the burning all over my chest, abdomen, back and thighs is almost gone. 😃