Does anyone have daily persistent headache all day, every day?

Posted by mikaylar @mikaylar, Nov 16, 2023

Docs cannot figure it out. Dizziness too.

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@dlydailyhope

I was tested to rule out MS and it took almost 7 years to get fully diagnosed and treated. I had daily headaches and dizziness plus a long list of other symptoms. The order or diagnosis was spinal stenosis/degenerative disc disease, small fiber neuropathy, iron deficiency (special panel), sleep apnea, cervical spondylitic myelopathy, thyroid nodule/Hashimoto's thyroiditis/hypothyroidism, and had breast implants removed due to breast implant illness symptoms. I can tell you I am no longer dizzy and do not wake up with daily headaches! Good luck getting doctors to properly diagnose you and don’t give up! You really need to advocate for yourself and your health. Don’t be afraid to go to new doctors if they do not treat you with respect or really listen to your symptoms to help improve your quality of life.

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Wow, I'm so glad you finally found help and relief! I too have hashimotos thyroiditis/hypothyroidism and suspect having gone untreated for years (and severe headaches blaring and undertreated) I have sustained some "damage." But I am so thrilled to enjoy mostly headache-free days now, I count my blessings.

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I have headaches every day and have been battling dizziness daily. They say I have a neuropathy that effects my blood pressure and my temperature control. My blood pressure drops suddenly very low and I have to take medication to bring it up. It's a daily nightmare.

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@taterjoy

Wow, I'm so glad you finally found help and relief! I too have hashimotos thyroiditis/hypothyroidism and suspect having gone untreated for years (and severe headaches blaring and undertreated) I have sustained some "damage." But I am so thrilled to enjoy mostly headache-free days now, I count my blessings.

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I have hypothyroidism and I don't know why. I take thyroid medication but I thought it was supposed to make you gain weight and I'm struggling to not lose anymore weight because I am severely underweight and I get awful headaches daily and my blood pressure tank's all the time very low. I started walking up the last 3 weeks totally drenched and you can wring out my pj's. I had a couple hysterectomy and oopherectomy when I was 24 and am on estrogen. Any ideas?

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I have to interview the new doctors to make sure they are taking on my case seriously

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@bonez3861

I have hypothyroidism and I don't know why. I take thyroid medication but I thought it was supposed to make you gain weight and I'm struggling to not lose anymore weight because I am severely underweight and I get awful headaches daily and my blood pressure tank's all the time very low. I started walking up the last 3 weeks totally drenched and you can wring out my pj's. I had a couple hysterectomy and oopherectomy when I was 24 and am on estrogen. Any ideas?

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I had daily headaches and it took years to diagnose. Finally doing a flexible x-ray 6 VIEWS, doctors like to order 4.
Facet issues at multiple levels

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@bonez3861

I have hypothyroidism and I don't know why. I take thyroid medication but I thought it was supposed to make you gain weight and I'm struggling to not lose anymore weight because I am severely underweight and I get awful headaches daily and my blood pressure tank's all the time very low. I started walking up the last 3 weeks totally drenched and you can wring out my pj's. I had a couple hysterectomy and oopherectomy when I was 24 and am on estrogen. Any ideas?

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Going on anxiety meds stopped my sweating

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I have to interview the new doctors to make sure they are taking on my case seriously

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@lauracox12

Going on anxiety meds stopped my sweating

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I take clonazepam 3 x day already for panic attacks and PTSD. I also have chronic pancreatitis but I don't know if there is a connection there. Thank you! I am going to Shands hospital for a 2nd opinion because I keep getting all these chronic illnesses yet my gastroenterologist never runs any test's, he just keeps giving me injections in my pancreatic nerves every 2 months now. That's just basically a bandaid. I need to see how all these things tie together!

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@lauracox12

I have to interview the new doctors to make sure they are taking on my case seriously

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I totally understand that. I need to find someone who takes me seriously and knows and understands what I am going through. I am doubting my gastroenterologist because he said I'm at the end of the line, dieing. But yet hasn't run 1 test in 15 years 🤔

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@bonez3861

I have hypothyroidism and I don't know why. I take thyroid medication but I thought it was supposed to make you gain weight and I'm struggling to not lose anymore weight because I am severely underweight and I get awful headaches daily and my blood pressure tank's all the time very low. I started walking up the last 3 weeks totally drenched and you can wring out my pj's. I had a couple hysterectomy and oopherectomy when I was 24 and am on estrogen. Any ideas?

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bonez3861, I was being given to much Thyroid Medicine (Methimazole 5 mg) for Hyper thyroidsim and it would bottom out my blood pressure and make me dizzy. They lowered the dosage and my thyroid levels are great. I have never been able to tolerate any of the meds for Hypothyroidism (I have both Thyroid diseases). I would talk to your Endocrinologist about the thyroid medication. Blessings & Happy Thanksgiving.

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