Sciatica, it's crippling me: Who to turn to?

Posted by denman55 @denman55, Oct 10, 2023

I have just recently been hit with sided sciatica. The pain down my butt and leg are making it impossible to sit, stand or walk. It's come on quite suddenly. Normally my sciatica is on my side - that has calmed down. What can I do at home to relieve the horrible symptoms?

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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@denman55 Have you consulted a spine surgeon? Personally, I prefer a neurosurgeon, but both orthopedic and neurosurgery specialties can do spine decompression surgery. I know you have been suffering with this for a while. Find the best surgeon you can at a highly rated hospital. surgery at the lower end of the spine is more painful and a more difficult recovery because you are bearing most of your body weight there.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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Find a reputable neurosurgeon or an orthopedic surgeon who has done a spinal fellowship. There are solutions.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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I had exactly what you describe but in episodes that would lessen in severity and then return. I had one injection to L2-L3 (L4-L5 was too constricted to allow the needle in. The timing was while the radiculopathy episode was waning so not sure it helped. My spine specialist was willing to do one more 6 months later when another episode hit. He also wanted me to consult a neurosurgeon colleague in the spine clinic. I did so and scheduled surgery at that 90 minute consult. I had anterolisthesis and dangerous degree of movement of the L4over L5 (shown in X-rays done with your back extended). I needed that to be stabilized since a large additional movement could be catastrophic. My surgery completely solved my leg and butt pain. I could walk pain free the day after surgery. I am 4 months out and gradually getting back to normal level of activity. Still so grateful for the surgery which was done with an orthopedic spine specialist attending and 3rd year neuroscience fellow assisting. I recommend finding a surgeon who spends time to explain your individual situation thoroughly. Mine along with his team spent nearly as long before surgery as during surgery (5 hours) explaining to my husband and me. They accurately predicted the hallmarks of my recovery. Best wishes. We are all different challenges but yours sounds so much like mine I had to write!

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

Jump to this post

What does the MRI indicate as the cause of the spinal stenosis. Cause will dictate remedy and as intense as sciatic pain is, there is (I'm not allowed to say likely on this site) remedy. If you have a readout from the MRI check for description of the stenosis. Bulging disc, folded ligament, spondylolythesis, loss of vertebral or disc height.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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I'm so sorry you're going through this. Here's my sciatica story: Around the age of 45 in 2008, I had the same issue but only occasionally now. I still have slight numbness on the side of my foot and pinky toe but it was much worse and covered most of my toes back then. I also had muscle loss in my calf. So during one ER visit in 2008, I was given IV gabapentin and an overnight stay then sent home on a steroid Medrol dose pack taper. Up to that point, the pain was so bad that I literally wanted my leg cut off! I was scheduled for surgery prior to that ER visit but after completing the steroids I never got the surgery. I even showed up for surgery and got undressed! By the time my son parked and came back up to the waiting area, I had changed my mind because I felt so much better! On discharge from Johns Hopkins for the NON-surgery😁, I was advised to keep my weight down, do the physical therapy stretches, and stay active. It's been almost 16 years and the only time it flares up I notice is when I don't stretch for awhile being lazy and don't get much exercise. My issue was at L5-S1. I also was out of work for 2 months so I think that also allowed me to heal. Good luck and speedy healing to you. I'll be praying!!

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Profile picture for gently @gently

What does the MRI indicate as the cause of the spinal stenosis. Cause will dictate remedy and as intense as sciatic pain is, there is (I'm not allowed to say likely on this site) remedy. If you have a readout from the MRI check for description of the stenosis. Bulging disc, folded ligament, spondylolythesis, loss of vertebral or disc height.

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https://www.ansellchiropractic.com.au/what-causes-sciatica-type-pain/
Even a tight muscle can trap and squeeze the sciatic nerve. The piriformus. If the MRI doesn't indicate a herniated disc, you might consider a chiropractic visit. You can usually get in to see a chiropractor quickly often same day. You'll know a lot more about the pain after a chiropractic assessment because they are usually very thorough.
I didn't mean to send this in two parts.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

Jump to this post

Several months ago I posted that I was experiencing lots of nerve pain after spinal surgery. I had gone to PT for about 10 weeks, and while my muscle strength improved the nerve pain was still substantial. I decided to try a different approach to PT that I had read about called FCS or fascial counterstrain. At the time I indicated that I would update everyone on my progress. I initially found out that most issues require about 4-6 visits to get significant results. In my case it took 5 sessions to eliminate 90% of my pain. This was nerve pain that I had experienced continuously for 9 months. I am now virtually pain free. I think for anyone seeking help, it is worth investigating. To learn about it go to counterstrain.com. You will learn what it is and locate a practitioner in your area. I am now back to the conventional PT that I was doing before to regain my muscle strength.

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Profile picture for roma76 @roma76

I had exactly what you describe but in episodes that would lessen in severity and then return. I had one injection to L2-L3 (L4-L5 was too constricted to allow the needle in. The timing was while the radiculopathy episode was waning so not sure it helped. My spine specialist was willing to do one more 6 months later when another episode hit. He also wanted me to consult a neurosurgeon colleague in the spine clinic. I did so and scheduled surgery at that 90 minute consult. I had anterolisthesis and dangerous degree of movement of the L4over L5 (shown in X-rays done with your back extended). I needed that to be stabilized since a large additional movement could be catastrophic. My surgery completely solved my leg and butt pain. I could walk pain free the day after surgery. I am 4 months out and gradually getting back to normal level of activity. Still so grateful for the surgery which was done with an orthopedic spine specialist attending and 3rd year neuroscience fellow assisting. I recommend finding a surgeon who spends time to explain your individual situation thoroughly. Mine along with his team spent nearly as long before surgery as during surgery (5 hours) explaining to my husband and me. They accurately predicted the hallmarks of my recovery. Best wishes. We are all different challenges but yours sounds so much like mine I had to write!

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@roma76 Thank you for sharing your experience here which is very valuable. It sounds like you had an excellent surgeon. I am glad to know that your surgery prevented a possible future serious problem by fixing the instability in your spine.

@denman55, you may want to read through this discussion started by @roma76 with her experience as she went through spine surgery.
Spine Health - "Will lumbar spinal fusion solve my leg pain or just add new pain?"
https://connect.mayoclinic.org/discussion/will-lumbar-spinal-fusion-solve-my-leg-pain-or-just-add-new-pain/
Jennifer

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Profile picture for jacqueline1961 @jacqueline1961

Boy do I feel your pain!!!! I have the same and more. Everything with an S I have, I had lower laminectomy with fusions L3,4,5 ?? not sure but think he should have done more, and a lot of arthritis removed. I was OK , for a bit. I am thin so my spine sticks out of my back and has shifted to the right side with a huge curve. Not attractive and can even be seen through a shirt , I can not sit back on anything without a cushion,, standing , sitting all will trigger the sciatic nerve from the back, a major spot that is a large bulge , which is the major source of pain, my Dr still has never told me what it is, scans just show major anatomical changes. I had a choice from Ortho Drs, to do a full on spinal surgery with rods, poles, cages etc,, I said no and my neurosurgeon agreed to do what he did that would be the least invasive.. He is a great Dr, and I did feel like a real person again,, but now I am much worse, I used to be able to walk 20 miles a day, hike up mountains, walk through an airport for hours,. I refuse to let this get me so I still do my treadmill 2 hours a night. granted not the speed I used to or incline,, I walk through the sciatica pain , if it gets bad, I stop , take the right leg and pick it uo with the left hand and stretch it all the way over to the other side,. it feels good and will break the cycle,, until the next time.. I started to do on the floor PT .. laying flat on my back, lifting one leg at a time and stretching,, then knee bends,, then crossovers,. If I can make a habit of this it helps.. On a normal day I work I am on my feet all day and I still have to smile through the pain,, there are times I have to just sit at my desk and put my legs up,. have a roller device I now use to roll on the thigh ,, it helps... What made me respond to you was your desire for the stimulaor. Please seriously think about this,,. My Mom had 2 failed back surgeries plus I am sure she never did much for PT, as she is lazy... so she opted for the St. Jude one when it first came out, the thing never worked,, eventually they removed it. We all begged her not to get another but she opted for that quick fix,,, well that quick fix ended up nearly costing her her life and it has sucked the life out of me.. after about 5 years with that in her, again never really worked as she was always whining about her back pain and on pain relievers , and then spending more and more time in bed.. One day her back was wet.. I looked and she had a gaping hole in her spine the size of a quarter, that was beyond anything I have seen,, I had my dad take her to the Dr right away,, very poor medical here, she was being treated for wound care but it wasnt until the right Dr, looked at her , which was my spinal surgeon,. said the box was visible in the hole and full of bacteria and he did the surgery to remove it,, Dr,. stated the leads were loose or disconnected , those are wires in your body,, foreign substances... he said the box became contaminated , who knows for how long , inside or her that eventually it ate away through her skin,, there is much more to this story but I gave you enough,,, I do not know have statistics to say how many people it has helped or what the infection rate is.. but please ask. My back is severe and I would never put one in,, I have looked into these belts you can wear that have the stimulator on the outside on the back.. ask your Dr about that , a cousin of mine got one,, a company neuro med makes a pad you affix to your spine I am researching,, I am sched, for another MRI to find out what happened , You are not alone,, . and about the neck,, yes the neck is part of the spine, But i do not believe it controls the part that causes sciatica .. I had cervical 3 levels 3 years ago,, horrible surgery, still have pain at night, but I do exercises before bed to loosen them up and wear a collar at night,, I will tell you stress is the #1 reason on top of all of the other life issues that rears its ugly head when we least expect it,, I am a stage 4 metastatic double cancer survivor with 15 months of chemo,,that was hell but I will tell you living with chronic pain on a daily basis has been a lot harder and it can really get you down,I wish you well and to receive some relief from this way under researched phenomena of spinal pain,, Carry on!! Jacquie

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Thank you for your input. Boy! You are a great fighter!

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I think I had sciatica in my last years as a P.E. teacher. but not as terrible as everyone here describes. I have seen some great physical therapists on YouTube who explain in detail what is happening and how you can address the condition. I don't think doctors have a clue how to deal with this. I will try to come back with their names.

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