GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years--mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

Interested in more discussions like this? Go to the Digestive Health Support Group.

You should ask Cardio Dr, to do a wireless Halter monitor for 7-14 days.
It will pick up all your abnormal heart ♥️ rhythms .
If you have A-Fib then you’ll need to get on blood thinner like Eloquis .
If it’s benign PVCs or PAC’s you can try what I use . It’s called heart calm ( 3 diff magnesium’s w/ Q-10 and potassium. It’s made in USA and that’s all this comp sells .
I take two if I get any palpitations.
Go to http://www.vitalbiologics.com and read about it . It’s not really expensive $30 free shipping in USA and 90 capsules . It’s saved me many trips to ER .
Also maybe ask your Dr. for Xanax or Something to calm your nerves a bit .
Praying 🙏 for you .
I have that feeling too sometimes and I have bad Gastro issues 10 years.

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Profile picture for rozy288 @rozy288

You should ask Cardio Dr, to do a wireless Halter monitor for 7-14 days.
It will pick up all your abnormal heart ♥️ rhythms .
If you have A-Fib then you’ll need to get on blood thinner like Eloquis .
If it’s benign PVCs or PAC’s you can try what I use . It’s called heart calm ( 3 diff magnesium’s w/ Q-10 and potassium. It’s made in USA and that’s all this comp sells .
I take two if I get any palpitations.
Go to http://www.vitalbiologics.com and read about it . It’s not really expensive $30 free shipping in USA and 90 capsules . It’s saved me many trips to ER .
Also maybe ask your Dr. for Xanax or Something to calm your nerves a bit .
Praying 🙏 for you .
I have that feeling too sometimes and I have bad Gastro issues 10 years.

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I am purchasing this right now any relief would be a God sent. Thank you so much.

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I also purchased this B complex under $20 and it has great reviews also. I'll report back Natural Rhythm B-CALMplex, Unique B Vitamin Blend, B Complex Supports Proper Nerve Function and Relaxation, 3 Month Supply, 90 Capsules amazon says you only need 1 per day.

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Profile picture for champton @champton

Hey I read your post. I too suffer from Internal vibrations. You gave me a new feed line to work with. I too have had, not so much now, but I have Gerd n constipation issues. I take Metamucil which helps. Also I e had a Signoid colony surgery back in 2014 and a Subtotal Colectomy in 2017.. Now my vibrations didn’t start until 20’ if Sept so I’ve been struggling with these just over 3 yrs. These are 24/7. I go to bed a wake up with them. Drs did tests n only see a cyst in the spine that fluid might not be flowing through good. I still fight for any answers. I can’t do this rest my life. So many of us have this, Why can’t anyone figure this out yet ? It can get maddening. Feet up to my upper waist and once in awhile I feel it across my left chest and shoulder. Gabapentin helps w my hands abd arms tingling but Vibrations are a different story when they’re 10+ Levels. They’re grinding to the trunk of my body where I can almost hear it. I do have Tinnitus which I’ve had about 12 years now. But I never thought about Stomach or other organs related to the Vibrations till your Post. Of all the Drs of diff sorts too, all say it’s a Brain or Spinal issue. So is there any other Thoughts that I can research 🧐 I need help now. I have excellent insurance for another couple years as I’m 63 now. Hubby says he can’t wait till I’m able for Medicare ( he’s 66) but I feel you get what you pay for. There’s gotta be an answer to this.
God Bless our Country 🇺🇸

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i have had GI issues most of my adult life. I am diagnosed with colonic inertia and am being pushed to have a total colectomy with an ileostomy. I am a retired RN and constantly looking for any sensible solutions. I also have Pelvic Floor Dysfunction.
I found out about John Barnes and all of the courses he offers for professionals to be certified in myofacial release. He hss passed away, but there are many therapists who have taken the different levels of his courses. If you are interested, look at their credentials to see how many levels of training they did under him. I just had my first session two days ago. It's a whole body experience to evaluate what type will work best for you. My therapist is an MD, but now only does now.
https://www.myofascialrelease.com/about/johnfbarnes.aspx

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Profile picture for GISUE @slangston

i have had GI issues most of my adult life. I am diagnosed with colonic inertia and am being pushed to have a total colectomy with an ileostomy. I am a retired RN and constantly looking for any sensible solutions. I also have Pelvic Floor Dysfunction.
I found out about John Barnes and all of the courses he offers for professionals to be certified in myofacial release. He hss passed away, but there are many therapists who have taken the different levels of his courses. If you are interested, look at their credentials to see how many levels of training they did under him. I just had my first session two days ago. It's a whole body experience to evaluate what type will work best for you. My therapist is an MD, but now only does now.
https://www.myofascialrelease.com/about/johnfbarnes.aspx

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I looked into that years ago , it’s hard to find someone skilled in that type of therapy or massage .At least where I live in FL .
I think it’s a great thing though !!
I do Myan abdominal massage on myself a lot . I have like 6 chronic diagnoses ( GI ), I had it done ✅ by someone years ago and she taught me how to do it myself .
My gas was so bad , I was belching over 1000 x a day ( deep , wet belches that taste like sewer water ! Plus constant churning gut and intestines.
6 Gastros later and 20 tests in 10 years , I still get these symptoms, but my recent doctor put me on Mirtazapine 15 mg at night ( generic of Remeron ) anti depressant.
I’ve tried others and got terrible side effects.
This seems to help me a bit .
Like a 4-5 out of l0 .
I still take Ambien to sleep most nights or else I’m up half the night .
10 years of hell !
I’m praying 🙏 some day to be healed . I lost 10 years of my life trying everything. Good luck 🍀 to all of us !

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Profile picture for catherine1290 @catherine1290

I just recently experienced the internal shaking for the first time. B/P was also high. I have Crohn's and was diagnosed with B 12 deficiency. I hope it never happens again!

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It could be due to gut-related anxiety. Especially if it happens around the time you need to have a bowel movement. Also, mine I am beginning to think is related to my case of Intestinal Methanogen Overgrowth (IMO). Either due to abdominal distension, gas production, or some other kind of effect related to it. L-Theanine helped calm my nerves.

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Profile picture for jthisgirl81 @jthisgirl81

It is very scary, you're not alone, it gets so bad I can't sleep and I really thought that maybe I was dying and so I didn't want to talk to anyone at home about it, I do believe it's tied to gas that can not get out because when I have gas it lightens up for a few days, and I noticed if I pass gas it eases up. You all have really helped me feel like I am not alone and I am so grateful I am full of tears. thank you!

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Hi,

The anxiety you may feel is possibly related to SIBO or IMO. Perhaps a SIBO breath test could help? Simethicone (gas X) helped me greatly. I also controlled certain foods. Some say activated charcoal helps as well.

Using Miralax or some other laxative was also helpful to keep things moving (speaking from my own experience)

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Profile picture for rozy288 @rozy288

You should ask Cardio Dr, to do a wireless Halter monitor for 7-14 days.
It will pick up all your abnormal heart ♥️ rhythms .
If you have A-Fib then you’ll need to get on blood thinner like Eloquis .
If it’s benign PVCs or PAC’s you can try what I use . It’s called heart calm ( 3 diff magnesium’s w/ Q-10 and potassium. It’s made in USA and that’s all this comp sells .
I take two if I get any palpitations.
Go to http://www.vitalbiologics.com and read about it . It’s not really expensive $30 free shipping in USA and 90 capsules . It’s saved me many trips to ER .
Also maybe ask your Dr. for Xanax or Something to calm your nerves a bit .
Praying 🙏 for you .
I have that feeling too sometimes and I have bad Gastro issues 10 years.

Jump to this post

Thanks for your helpful idea but I’ve done the Heart Monitors the heart stress tests and it all looks fine. So no worries there. I do know of Afib well, my husband had it and takes meds. Plus cpap machine.
I’m getting bloodwork on Wednesday to recheck my Thyroid (Hoshimoto) it keeps dropping so she lowered my dosage again. You mentioned Zanax, I’ve tried it and doesn’t do anything to calm my Vibrations. I’ve taken Tramadol back in late Aug of 2020 and my Vibrations didn’t start until mid Sept. Earlier this year about March I thought I’d Google if Tramadol could cause Internal Vibrations and it came up with a bunch of info where I called my Pharmacist n asked about it. He looked it up n came back on the phone n said he believes it could happen. I’ve only been on it maybe a year then. When I saw my Family Dr I told him about what I came across n said I don’t want no more Tramadol. But even after stopping it I still have these tremors. I get that everyone’s Neurological system isn’t the same for everyone else so if your meds work for you stay with it then. But I didn’t wanna chance it taking any more. I’m still holding out for hope that someone can calm these even halfway. I’m always telling my family that my Vibrations r angry today. My daughter says I need to put a .25 in the jar every time I say it. lol. Almost like a swear jar. I don’t take pain meds anymore. When I started PM back in 2007 for RSD they put a spinal cord Stimulator in to help control that pain but in just 4-5 yrs it didn’t help. I was on Morphine n Norco. I never took all my meds. My Dr raised it from a 30mg to 60mg morphine. I weened myself off all my pain meds. I just wonder if any of that could have caused any Neurological damage? Once that Dr left the nurse practitioner says oh no, not having you taking so much so she bumped it to 15mg. I was just at the Emergency room couple weeks ago. Hubby gave me a bear hug to tight n crushed my sternum n bruised me. The patient (Amazon driver) next to me got bitten by a dog that ran out of the house. She was there mainly for Drugs. When the Dr looked at her wound there wasn’t any. Just a tear in her sweater but she said she heard of rabid dogs running loose, well she had already said the dog came out of the house. When the Dr gave her a low dose Norco she had a fit. “ 1 pill for this ?” She was shocked. She talked them into giving her the series of shots but she left without any extra pain pills. I mention this because there’s so many people out there begging for meds or drugs. They don’t realize that it can do you more harm than good sometimes. I can talk about this. Been there done that. I was on pain meds 12 yrs. I saw one person’s post about getting back 10 yrs of life and I understand that. I wish I could write a song about all this. I’m just really trying to understand how all my vibrations/tremors started at my feet n moved up. If it’s a spinal or Brain issue like the Drs say. I know something is out of whack. I pray it doesn’t take me another full year to get a Dr to figure out what this is. I feel for anyone whose going through this. It’s not fun having a Motor running in your body to the trunk even 24/7.. it’s miserable and I’m glad I’m not the only one. What I don’t get is of all the Drs I’ve seen in the past 3 years over this, then how come they can’t come up with a solution ? Only thing I have to go on right now is my MRI images. I know the last time I saw my Neurologist on Halloween he said he will have his tech to view the images to see if they see anything. Well it’s been a few weeks since. Guess I best call them n see what they say. I need answers. I pray for all whose suffering. God Bless our Country 🇺🇸 and our People.

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@champton
I take Klonipin generic , I get 1 mg and cut in half .50 mg . It’s cheap Clonazepam .
It helps with the anxiety and shaking when I get it .
The Heart ♥️ Calm Supplement is for PVC’s and PACs heart palps .
Google it , it helps do much w/ those .
http://www.vitalbiologics.com
That’s the only supplement they sell .

REPLY
Profile picture for rozy288 @rozy288

I looked into that years ago , it’s hard to find someone skilled in that type of therapy or massage .At least where I live in FL .
I think it’s a great thing though !!
I do Myan abdominal massage on myself a lot . I have like 6 chronic diagnoses ( GI ), I had it done ✅ by someone years ago and she taught me how to do it myself .
My gas was so bad , I was belching over 1000 x a day ( deep , wet belches that taste like sewer water ! Plus constant churning gut and intestines.
6 Gastros later and 20 tests in 10 years , I still get these symptoms, but my recent doctor put me on Mirtazapine 15 mg at night ( generic of Remeron ) anti depressant.
I’ve tried others and got terrible side effects.
This seems to help me a bit .
Like a 4-5 out of l0 .
I still take Ambien to sleep most nights or else I’m up half the night .
10 years of hell !
I’m praying 🙏 some day to be healed . I lost 10 years of my life trying everything. Good luck 🍀 to all of us !

Jump to this post

thank you for your reply. How did you get rid of the gas? I am so bloated and constipated. I have to take linzess and senna every night but makes bloating worse. I take Wellbutrin every morning. Can't say if it helps. I also take Bentyl 4 x day. I often add Librium which seems to help with abdominal cramping. I take Ambien every night and sometimes add Z-Quill... the one that is clear... only can find on Amazon. My MD's are not happy that I am refusing surgery. I have a great Internal Medicine MD though. I also live in Florida and there are three that have taken the Barnes courses l. The one I picked is also an MD and has taken all of the Barne courses. I have had every GI test possible. I think I'm going to go to Mayo Clinic in Rochester MI at some point. The three hospitals in Florida are all rated about the same.. I think they were ranked 34-35 out of 50 in the nation. Not sure exactly. Rochester is #1 and they have a cohesive team unlike many other hospitals and medical centers. So, if I decide to look at options, I'll go there for a consult. I did have a consult with Tampa General Hospital colorectal surgeon. It was one option and no specialty support. Feeling pretty miserable....

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