GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years--mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for tiggertj789 @tiggertj789

Hi, I do have GI issues with reflux, I am shaking inside like vibration and chills, muscle pain, headache. I had blood test and they found out that I have high vitamin D the doctor told me stop taking vitamin D and supplement that contains vitamin D. Check your vitamin D,

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I have this shaking but I have a vitamin D deficiency. My shaking seems to echo throughout my left side. No one can seem to help me and its getting stronger, waking me up. Is this a spastic colon?

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I have what I call a spastic colon when I have an IBS-C flare-up. It is not a shaking sensation at all.

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I also shake when I get cold and my stomach hurts, no one knows I am shaking internally. It takes me awhile to calm down . I get warm and try to quiet my mind. It feels like my stomach muscles are in a knot. Don't worry. It won't help and it too shall pass.

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Profile picture for rt061069 @rt061069

@clutch i could take up to 4 , 1mg pills a day but maybe did two. Didn’t help. Wigged means one outer body not like not in skin. Light feeling. Shaking up and down in chair. For a bit like getting up after 3 big shots of tequila. Weird d thoughts. Wife was with me so told her old stories or something never said before. Lighted headed. Mind tripping some by looking at things. Scared some like hold my hand.

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Hi, I'm a 33yo male.
I realize this post is relatively old but I thought I would share my experience for others in case they find it helpful.

TL:DR: I was diagnosed with Intestinal Methanogen Overgrowth (IMO) - Formerly known as Methane SIBO. And it seems to have caused a cluster of symptoms which include: internal shaking sensation, bloating, fullness, constipation, GERD-like symptoms, cold flashes and last but not least, anxiety/depression (It feels like they're cousins).

My first symptoms were feeling of strange fullness, in head, neck one morning followed by very elevated heart rate (~140-160bpm) after when I finally got up for the day. This lasted maybe 2-3min. I was terrified.

Fast forward two months, and this cardiac event has repeated itself almost every single night along with feelings of fullness/bloating. I ended up doing the following tests; EKG, heart ultrasound, leg ultrasound (to check for blood clots) holter monitor for 5 days, and once everything came back clear, turned my attention to the gut. Ended up doing an endocospy, stool tests, blood tests, and the main one, a SIBO breath test which finally detected a case of Intestinal Methanogen Overgrowth (IMO).

The treatment is relatively high dose of antibiotics; 14 days of Rifaximin and Neomycin which I am actively following as we speak.

Learnings:
1. Not knowing what is happening to my body caused me great anxiety
2. Bloating/Excess gas can cause anxiety and trigger the heart palpitations (Check Roemheld Syndrome and vagus nerve)
3. Anxiety has probably been the worst of all symptoms and it needed to be managed.
4. Gas can be controlled by watching your diet, FODMAP diet seemed to help. Gas X also was helpful in quickly relieving bloating.
5. Feeling soft internal tremors seem to be directly correlated to the gut for me. I feel them most overnight and in the morning as I wake up. Bowel movements or gas relief seem to greatly reduce this sensation
6. Hormones can play tricks on you when all this is going on. I legitimately thought of several occasions that I had spilled cold water on myself but it was just what seems to be a localized cold flash.
7. Nerves felt weird and odd, I think related to anxiety.
8. Depression and feelings of sadness prevailed on some days. I think this is related to pint 6, the hormones.

Lastly: My anxiety was bad as I had a lot of life changes happening. Lost my job, had to let go of my apartment, was planning to move countries. Many things hit at once. It’s entirely possible your IMO diagnosis (or any other) may not cause so much anxiety but for me it did. It felt like my life was completely on pause.

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I just recently experienced the internal shaking for the first time. B/P was also high. I have Crohn's and was diagnosed with B 12 deficiency. I hope it never happens again!

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Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Welcome to Connect, @gigiraj. I did find some information that studies the link between digestive disorders and internal tremors:
– The bowel and beyond: the enteric nervous system in neurological disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5005185/
– Tremor in Patients with Inflammatory Bowel Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3582861/

I’d encourage you to take a look at this discussion in the Brain & Nervous System group on Connect, where @tigertoo, who has been diagnosed with POTS (Postural orthostatic tachycardia syndrome) and Vitamin B deficiency, talks about similar symptoms:
– Monthly shaking episodes that continue to progress https://connect.mayoclinic.org/discussion/monthly-shaking-episodes-that-continues-to-progress/
I’m also tagging @hopeful33250 to see if she might have some more thoughts.

I can imagine your worry, @gigiraj; how is this shakiness affecting your day-to-day life? Have you considered causes other than GI disorders?

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Thank you, I came here because I have these symptoms, and its scary. On top of the fatigue, and living in a place where seeing a doctor is useless. I have been very worried many nights I am not gonna wake up. I get so dehydrated I can't take medicine to go to the bathroom. Idk what to do. Thank you for this information.

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Profile picture for Laura48(Laura Walters) @david33

Hi, my name is Laura, and I have been having pressure in my head for a long time and it's 24/7. I'm also suffering from contapation. I have to take liquid bowl softener to use the bathroom every day.
I'm also have tingling in both of my hands.
On Tuesday 3/6/19 to see if my food is being digested. I also have some kind of magnigment on or around my heart.
Has anyone been through this? Or knows the outcome?

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I am going through this and am very scared and I don't want to talk to anyone at home about it, I do not want to worry them, but this internal tremor and heart pain may cause me not to wake up I truly am scared without medical insurance I am not sure what o do. I am changing my diet and I am so tired of the fatigue, Nausia, and tremors, on top of these random (rare bouts where I feel like stuck I can't move or breathe or think or act). If you get any updates on what's happening please share. I am sending good Vibes and Prayers for everyone here.

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It is very scary, you're not alone, it gets so bad I can't sleep and I really thought that maybe I was dying and so I didn't want to talk to anyone at home about it, I do believe it's tied to gas that can not get out because when I have gas it lightens up for a few days, and I noticed if I pass gas it eases up. You all have really helped me feel like I am not alone and I am so grateful I am full of tears. thank you!

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Hey I read your post. I too suffer from Internal vibrations. You gave me a new feed line to work with. I too have had, not so much now, but I have Gerd n constipation issues. I take Metamucil which helps. Also I e had a Signoid colony surgery back in 2014 and a Subtotal Colectomy in 2017.. Now my vibrations didn’t start until 20’ if Sept so I’ve been struggling with these just over 3 yrs. These are 24/7. I go to bed a wake up with them. Drs did tests n only see a cyst in the spine that fluid might not be flowing through good. I still fight for any answers. I can’t do this rest my life. So many of us have this, Why can’t anyone figure this out yet ? It can get maddening. Feet up to my upper waist and once in awhile I feel it across my left chest and shoulder. Gabapentin helps w my hands abd arms tingling but Vibrations are a different story when they’re 10+ Levels. They’re grinding to the trunk of my body where I can almost hear it. I do have Tinnitus which I’ve had about 12 years now. But I never thought about Stomach or other organs related to the Vibrations till your Post. Of all the Drs of diff sorts too, all say it’s a Brain or Spinal issue. So is there any other Thoughts that I can research 🧐 I need help now. I have excellent insurance for another couple years as I’m 63 now. Hubby says he can’t wait till I’m able for Medicare ( he’s 66) but I feel you get what you pay for. There’s gotta be an answer to this.
God Bless our Country 🇺🇸

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Profile picture for champton @champton

Hey I read your post. I too suffer from Internal vibrations. You gave me a new feed line to work with. I too have had, not so much now, but I have Gerd n constipation issues. I take Metamucil which helps. Also I e had a Signoid colony surgery back in 2014 and a Subtotal Colectomy in 2017.. Now my vibrations didn’t start until 20’ if Sept so I’ve been struggling with these just over 3 yrs. These are 24/7. I go to bed a wake up with them. Drs did tests n only see a cyst in the spine that fluid might not be flowing through good. I still fight for any answers. I can’t do this rest my life. So many of us have this, Why can’t anyone figure this out yet ? It can get maddening. Feet up to my upper waist and once in awhile I feel it across my left chest and shoulder. Gabapentin helps w my hands abd arms tingling but Vibrations are a different story when they’re 10+ Levels. They’re grinding to the trunk of my body where I can almost hear it. I do have Tinnitus which I’ve had about 12 years now. But I never thought about Stomach or other organs related to the Vibrations till your Post. Of all the Drs of diff sorts too, all say it’s a Brain or Spinal issue. So is there any other Thoughts that I can research 🧐 I need help now. I have excellent insurance for another couple years as I’m 63 now. Hubby says he can’t wait till I’m able for Medicare ( he’s 66) but I feel you get what you pay for. There’s gotta be an answer to this.
God Bless our Country 🇺🇸

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Get tested for neurological disorders. Not normal nor is it essential tremors. All the best. Keep digging. Took me 6 doctors to find relief from other conditions.

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