Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

Jump to this post

Absolutely right

REPLY

I notice that few are taking multiple ESI procedures for relief of pain. I am not happy that the relief is for few weeks,
and with some risk of bleeding, I have not been encouraged to get the injections. I have seen a video about it, also.
I am managing with PT, and just trying to walk to a limited extent, and I am not advised by Cardiology also, due to lack of specific site of injection, and not happy with blind procedures. Just using, more topical pain relieving gels, than many pills ( take only, non-narcotic type, to avoid habit-forming problem),similar to Tylenol.

REPLY

I am taking already some medications, for CAD, don't like to take too many, for pain. I am not interested in any minor surgical procedures, MRI has been seen by 3-4 spine-doctors, and only conservative treatment is advised.
Pain-specialist, advised, Physical therapy, and pills are of no help. I am coping and accept the limited ambulation.

REPLY

I have noticed few having multiple surgeries. My pain is like 9, only when I walk and even with pain meds, in a minute or two, it is relieved by sitting. I am able to do routine activities and do not want, any further handicap than what I
already have.

REPLY

The problem of addiction comes up, with few pain medications. This is because of the narcotic with a simple pain med. like Tylenol. Unless the doctor is convinced of the severity of pain, on an evaluation to give such prescription,
there may be some misunderstanding for the patient.

REPLY

The problem that I had with spinal injections to relieve pain, is that, the consultant of spine surgery, did not talk about any fluoroscopy guidance, and I was not willing for a blind procedure. I had a chance to know about a well-
guided injection, and have the website : Mayfield Clinic.com and may try to contact Dr. Marc Orlando.

REPLY

Hardly I know, about ESI at a specific site for relief of pain, I am rather perplexed about using pain pump with 100-300 times the relief! Is this being done, at Mayo clinic? I have had an MRI, showing DDD with no information from the few spine surgeons, that I consulted, as to the procedure. Briefly,
a nerve block was mentioned. I am just trying to be happy with the routine
activities, that I am able to do. I would like to know as to how and who is
taking part in this procedure, like : Neurosurgeon, spine surgeon. Thanks for
a reply, in this reference.

REPLY
@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

Jump to this post

@oregongirl Yes, because most of my pain now is from my multiple sclerosis and lupus. Most people are unaware of the pain these 2 illnesses bring to the table. I can tell a difference in the pain from my scoliosis and the ms causing pain in my back. After I had almost healed from the back surgery and before I fell I had found SOME relief from my scoliosis pain. I knew the surgery was more for keeping from becoming more deformed than I already was. I could not stand up straight, I had a hump on my back , quite a big one, my right rib cage overlapped my right hip bone, and the curve of my spine was also putting pressure on my lungs, and just beginning to affect my breathing. In two years, without surgery I would have ended , probably ended up in a wheelchair. But as I mentioned in the beginning my back was not the only cause of my pain.

REPLY
@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

Jump to this post

@momij They haven't took my pain meds away yet but it seems inevitable. My neurologist who treats my multiple sclerosis and lupus treats my pain and I am on some very powerful meds. He said the other day that the DEA paid him a surprise visit and subpoenaed a bunch of patient records. Doesn't sound good to me. My doc who I love to death is a real Christian man and said something to the tune of if they come to get your meds....something else. I didn't hear the rest because my brain immediately shut down thinking they can have my meds when they pull them from my cold dead hands.

REPLY
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

Jump to this post

@jimhd I made the decision to try once again to get some help after bad experiences with therapists. This therapist had not a clue. The sharing is legal. Never occurred to me it would end up in the medical chart. Probably the reason she implied there was nothing more she could do. I can't work with her now. Had my fill with therapists and everything. It wasn't intentional and insurance has me limited. Ought not to tried to work on Mental health things again. I made the choice. I am old and useless...how I have been made to feel. I have art to get me through. I even printed it out for her as she did not believe me when I mentioned it. Doesn't matter. This is all set up to improve my health care. Seems like a HIPPA violation, but in reality it is not as I agreed to allow thus...had too. I am still just plain stupid. Unethical, but not illegal. Besides I have PTSD so do not see things realistically. a ver angry and confused person right now. i know i am powerless and likely over reacting. Lesson learned again.

REPLY
Please sign in or register to post a reply.