Is it ok to vent a little bit?

Posted by jdnc2023 @jdnc2023, Oct 21, 2023

2 months ago, my rheumatologist prescribed 100mg hydroxychloroquine and 10 mg prednisone, tapered to 5 mg in the second month.

It turns out that he meant for me to take 300 mg hydroxychloroquine, but whoever transmitted to the pharmacy put 1/2 instead of 1 and 1/2. I found this out at my 2 month followup appointment.
My joints have gotten worse over these two months. It's the second time my prescription has been wrong, and also, I had to become a "Karen" when my first follow up appointment was canceled abruptly.
The doctor is very good, but his support staff apparently sucks.
Thanks for letting me vent!

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Becky, Volunteer Mentor | @becsbuddy | Nov 18, 2023

In reply to @mothermary1 "Hi, ALL medical since Covid began, has been on a downward spiral. Yes, we are all..." + (show)

@mothermary1

Hi, ALL medical since Covid began, has been on a downward spiral. Yes, we are all sick of hearing that as the constant reason. I’ll be recognized here by many as my journey began after ACDF 3 fusion cervical spine surgery in June 2020. I refused after a year of treatment to get a total colectomy. My bowels never woke up after surgery.
I have seen many many different skilled specialists and not one wants to dive into why my bowels never woke after surgery. What are they afraid of. It’s not about pointing the finger at anyone. It’s about ME and finding the route cause if their could be one. My surgery was supposed to be in Boston as were by specialists. It was test after test and drug after drug. Here I am 3+ years later still relying on laxatives and if anyone followed my background I’ve tried it all.
Recently moved to Georgia and first appointment Gastro. I walk in, she said I’ve read over 200 pages about you from various doctors. I could tell she actually did. I asked about dietician because I’m so tired of my diet and possibly Neurology to maybe consider it to be nerve related or anything else. She said I’d like for you to try this new drug for severe motility disorders and we’ll see in other in 6 months. I am so tired of it, I said nothing and left. I wasn’t even disappointed because I was expecting it.
That was early September. No,the med has done nothing and I said a dietician is not covered under Medicare but I want one and I’ll pay for it. Finally, in December. I think it will help to maybe make me get energy if I fuel property. I run on empty. So, in conclusion, doctors are seeing to many patients, office staff I’ve encounter has been the worse and it’s simple to fax over meds and move on to their next appointment. This woman didn’t even examine me to possibly come up with her own opinion. I’m searching out someone else.
It is meds, meds, and more meds and no timer to get to route of problem.
Wish everyone all the luck.

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@mothermary1 Hi, we haven’t connected in quite a while! I would ask how you are doing, but your posting kind of tells me. How was your trip to Disneyland with your grandson?
You moved to Georgia! You know there is a Mayo Clinic in Jacksonville, Fl which is just on the border with Georgia. Here’s the link https://MayoClinicConnect.in/1mtmR63.
You have nothing to lose and EVERYTHING to gain!
Will you try it Joanne?