@byaroch, I'm glad that you have joined Connect, and I want to welcome you to the transplant community. It must be a relief for you to know that your newly transplanted liver is heathy and that you are able to return to the activates and career that you enjoy. I have not had experience with cholangiocarcinoma, although I was inactivated from the liver transplant listing temporarily in 2009 while waiting to get a clean diagnosis before being reactivated. I needed my transplant as a result of PSC and was sent to Mayo Rochester where I received my transplant in April 2009. You are in a good place, the best place, for your current care!

Is your oncologist at Mayo? And is he/she in communication with your liver transplant experts? I don't know why he/she has used words that feel so negative to you. My experience with Mayo has always been one of th hope and reality. Unfortunately cancer is one of those conditions that doesn't always follow the expected rules.

I would like to share the following link to a conversation between members about cholangiocarcinoma. I think this is mostly about pre-transplant experiences, but I think you will find that you are among friends who will hopefully know more than I do:

- Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/
I want to invite s the following members to join this conversation - @krissycanada @jerrydrennan @edie78t, @juliapoland, @stanr71

@byaroch, What kind of monitoring will you be scheduled for you? What has the liver transplant team had to say about this as related to their experiences with similar patient episodes?