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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (296)

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@marnix

I have been on low dose Hydroxy for 2 months now - do notice small mouth sores. Otherwise, just fatigue that is mostly manageable. I have JAK2 mutation with Polycythemia Vera... also have had Chronic Lymphocytic Leukaemia for about 15 years ( with little treatment) and was put on Xarelto and ASA low dose for peripheral artery disease. I am 80 years old, and try to keep active with yoga and core classes as well as a good walk once a day. One Phlobotomy, and platelet count has gone down to 400 range from over 600.

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Replies to "I have been on low dose Hydroxy for 2 months now - do notice small mouth..."

Hi @marnix, those mouth sores can be real annoyances to down right miserable. Are you able to manage them alright?