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Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
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@colleenyoung

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or "watch and wait". For that reason, I moved your post to this existing discussion:
- Waldenstrom macroglobulinemia: What to expect during watch & wait?
https://connect.mayoclinic.org/discussion/waldenstrom/
I did this so you can connect with others living with WM like @lesliemont @bacord83 @ejrquast @badnewsforme @elainerose @psue4 and many others.

Sagenest, are you in the care of a hematologist?

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Replies to "Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or..."
sagenest | @sagenest | Nov 13, 2023

I have been seeing an oncologist twice a year for my watch since 2010.
So far I feel very blessed. My heart condition is of more concern. I’m 81 yrs old.

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badnewsforme | @badnewsforme | Nov 13, 2023

Hi Colleen, I see that you referenced me as “Watch & See” for Waldenstrom disease. I have been undergoing chemo since August 2023. Treatments are consecutive days once every 4 weeks with Rituximab and Bendamustine. Also receive IVIG infusion of Octagam every 4 weeks for immunodeficiency.
Still undergoing treatments as of this posting.
Cheers

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