Chronic Pain members - Welcome, please introduce yourself

@jimhd The best way to get attention with some doc's. I too have a neurologist whom is soft spoken, gentle and kind. He is not much into prescribing meds. He is more into treating the body as a whole. I actually look forward to appointments with this doc.

Hello @lyssia @parus

Yes, I know what you both are referring to. Before my diagnosis with Parkinson's (PD) I had several neurologists tell me that I was "stressed," etc. and nothing was really wrong from a neurological standpoint. Finally, one doc recommended a psych consult. So, I thought, why not? I had recently been divorced and was in a career change, etc., both of my parents had been ill - so maybe I was too stressed.

So, I saw the psychiatrist who put me through the battery of tests and finally concluded that I didn't have a psychiatric problem (he did compliment me on how well I handled some of life's changes!) but he said that I did have signs of a neurological problem and suggested that I keep looking for an answer from a neurologist. Finally, a number of years later the PD diagnosis came about.

Teresa

It was, but I think he has retired with a few million $.

Where do you live? My neurologist moved and I'm looking for a new one.

What is OHSU?

@kibwezi Good ?. Ohio State university...a guess

I live in the anal orifice of the Hoosier State...doubtful my info would help @kibwezi there are good doctors------somewhere. My PCP is a waste of my time.

Oregon Health and Science University. In Portland, but soon to open a branch in Salem, With Salem General Hospital.

Salem? Scary...a witch hunt???

Sorryto hear about your experience. Even higly rated institutions and Doctors have their problems. A pain Doctor at Stanford told me they were going to do one more test and if that did not reveal anything I would have to agree the problem was in my head
I had a very bad respiratory infection that I could not get rid of
It left me with dyspnea to the point I could not walk up a flight of stairs and immense chest and back pain.. They ran all the same respiratory tests that my local hospital had done. Though I asked they not do that and look for an unusual cause. The respiratory Dr. said he would do that
He did not and after many months of seeing him he.had no suggestions other than I think it might be coronary. I had seen their cardiology department before. After a stress test tbey said I needed two stents. They did these and immediately after the Dr. said do you feel better now. I did not
The next day they did an endoscopy and found nothing.
I was ready to give up hope and was nearly suicidal.
I decided to go to Mayo Clinic. Within 2 days and several tests that Stanford would have taken months to do they discovered the problems. I neede a previous stent repaired.in the ADL..I also have a whole in my heart. After replacing the stent Dr. Arsenjani suspected I had achalesia. I returned to Mayo.and the did a pressure test that revealed I had stage three achalesia with spasms and ten times the normal pressure in my esophagus. This accounted for the severe pain. I have had 2 surgeries at.Mayo and my pain was significantly reduced. I am still having problems with the esophogus but my dyspnea is gone. Unfortunately it is very expensive for me to travel to Mayo Clinic in Phoenix. I.am trying to resolve the remainig problem with Stanford since June. So far i have not gotten any better and have pain and breathing and swallowing problems. I am returning to Mayo in November. Stanford was on the wrong trac initially. They should have detected both the heartand achalesia in the tests they ran. Though they never did the required pressure test.
Previously I had a respiratory Doctor tell me it was anxiety
If you are in pain.there is areason.
..Trust yourself. Mayo Clinicnic and Doctor Arsenjani saved my life.
I had been to the emergency room several times before due to the pain. They always said follow up with a Doctor
Even had one Dr. tell me there was nothing wrong at the hospital in a very curt manner.