Neuropathy: Anyone have any experience with gabapentin?

Posted by sjhedcon @sjhedcon, Mar 21, 2020

I have loss of feeling in my feet and tingling sensation. My doctor prescribed gabapentin. I read the side effects and decided not to take this med.
Anyone have any experience with gabapentin?

Interested in more discussions like this? Go to the Neuropathy Support Group.

i have been taking 900mg a day for years for neuropathy and nerve damage of my spine. it does make me sleepy. i take 300mg in the am and take the rest when i go to bed at nite. i could not survive without it.

REPLY

I was prescribed and was allergic, broke out in hives.
I now take Rolpinirole. But nothing seems to really work.
To help me sleep I use a foot bathe with Epson salt. Then rub
with Bio Freeze and put socks on.
I also have RLS.
I do hope this helps.

REPLY

Been taking 600 mg 3 times a day for 13 years. Helps but doesn’t make it go away completely. Good luck to all who are dealing with this.

REPLY

There’s my meds in top of my (some word that I can’t know, this moment) it’s a place of cold Cokes. So, my Doctor “B”, helps me until the top of my meds… then I get a seizer and go to a hospital, if it is worse if my wife looks if what I’m doing. And Doctor B gives me a little higher if those meds. Thankfully, I am to a point (2x600?x3 times per day) and thankfully that’s been 2.5 years for no seizures. And I add another meds for the safety non-seizures.

You guys use the pain and I use it diffently anti-seizure. The pain meds? No. 2 years ago, I fell down in my garage and hit my butt. I killed my balance and pain - everyday. I can’t do what I I did… even after my TBI… and I loved our cutting grass and loosing my weight when I wot]rhed. Now, my belly fifers a little higher 😔

REPLY
@dodeebug

I was prescribed and was allergic, broke out in hives.
I now take Rolpinirole. But nothing seems to really work.
To help me sleep I use a foot bathe with Epson salt. Then rub
with Bio Freeze and put socks on.
I also have RLS.
I do hope this helps.

Jump to this post

Bio Freeze? It could free the bottom of the right-leg and keep it everyday, but it’s no pain in-the-bottom-leg… I can’t fell it as much if the rest of parts on my legs… yes, the rest of my legs durns-in main when I walk a little.

REPLY
@jakedduck1

@jubantique
I asked you about your dose since there are a number of researchers who believe Gabapentin is ineffective because their dose may be too low.
My brother is currently taking 3,600 mg which is effective but at 2,400 mg wasn’t. I took 3,600 mg that didn’t help my seizures or Neuropathy. Someone took over 7,000 mg (7,200 I believe) and was finally helped at that strength. I’m not suggesting you take 7000 mg but just because studies show many people respond at 1800 mg. doesn’t mean everyone responds at that dose.
Beat wishes,
Jake

Jump to this post

Thank you; have you taken Cymbalta or Lyrica?

REPLY
@harley22

Taking Tramadol and using salon pas pain patches and CBD salve make the pain more bearable for me.
Of course I can’t even walk when I’m in pain, and this is an everyday occurrence.
I would just want one day to be pain free for me!

Jump to this post

@harley22
It seems the neuropathy battle is one that can't be won. Although my horrible neuropathy pains eventually went away when my condition worsened (nerves dying/dead then causing other problems, numbness, ED and bowel problems.
Jake

REPLY
@cax75

I have just been told that my IPNN can't be treated with DRG therapy because another illness requires MRI.
This was my last best chance. Has anyone been using Gum mies with CBD or THC for pain relief?

Jump to this post

I am using 1500mg CBD no THC and it has helped also take Dulaxetine an they they feel they work together.

REPLY
@jakedduck1

@harley22
It seems the neuropathy battle is one that can't be won. Although my horrible neuropathy pains eventually went away when my condition worsened (nerves dying/dead then causing other problems, numbness, ED and bowel problems.
Jake

Jump to this post

So sorry to hear that.
It’s certainly not easy is it?

REPLY
@adejuliannie

I am using 1500mg CBD no THC and it has helped also take Dulaxetine an they they feel they work together.

Jump to this post

Thanks. Are you able to drive or impaired by CBD? What was your starting dose? Thanks for responding.

REPLY
Please sign in or register to post a reply.