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Body making too much Vitamin B6

Chronic Pain | Last Active: Oct 10 8:23pm | Replies (59)

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@ally78

I just wanted to mention what I've found regarding high b6. My alkaline phosphatase (alp) levels have been consistently low. My b6 was in the 400 range at one point (although I was taking a b complex with 5 mg b6). I found that hypophosphatasia is a rare disorder which can result in low alp. For some reason, b6 is also elevated in individuals with hypophosphatasia. I would encourage those with high b6 to get their alp tested and research hypophosphatasia. It's often misdiagnosed as fibromyalgia in adults. Just wanted to share my findings in hopes it'll help someone.

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Replies to "I just wanted to mention what I've found regarding high b6. My alkaline phosphatase (alp) levels..."

Hello @ally78, welcome to Connect. If you are comfortable sharing, have you been diagnosed with hypophosphatasia? If so, how do you manage and cope with your diagnosis and elevated b6 levels?

Thanks for posting this. My B6 is 420 and yes I have been diagnosed with Fibromyalgia but there is no cure for it. I then had another doctor tell me that the previous doctor didn't write fibromyalgia in the notes so just dismissed it. I saw a neurologist recently where the B6 was high on the blood tests I was sent for.
I note this was in 2023, you wrote this. I'm curious how you got on. I hope you found a way through it.