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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

ed32 | @ed32 | Oct 4, 2017
In reply to @bblinder "I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991..." + (show)
@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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You are enduring a lot. Hope it gets better. I took a meditation course. It has helped me

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ed32 | @ed32 | Oct 4, 2017
In reply to @johnbroward "I'm not very good on technology so bear with me. I've had sciatic nerve pain for..." + (show)
@johnbroward

I'm not very good on technology so bear with me. I've had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I'm not sure if it's from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven't fallen yet but that's my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I'm worried that the amount of narcotics I've been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

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Changing meds and trying to move when uou can may help. I know its not much. Meditation has helped me greatly reduce my pain meds

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1947 | @1947 | Oct 6, 2017
In reply to @bblinder "I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991..." + (show)
@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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@binder
Thank you for sharing you story. I hope you are able to continue gardening and feel better. I have been dealing with back issues for the past 18 months and it sucks.

Sent from Yahoo Mail on Android

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bblinder | @bblinder | Oct 6, 2017
In reply to @johnbroward "I'm not very good on technology so bear with me. I've had sciatic nerve pain for..." + (show)
@johnbroward

I'm not very good on technology so bear with me. I've had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I'm not sure if it's from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven't fallen yet but that's my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I'm worried that the amount of narcotics I've been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

Jump to this post

I have had 3 back surgeries over my 86 years and two hip replacements. Now there is a nerve in the thoracic area causing lots of pain. I cannot take any heavy meds and am taking ibuprofen 3x a day for 12 days and will see what happens. I know the best thing to do is keep moving, otherwise I would be in big trouble, pain or no pain. Surgery does take a long time to heal. I do have many of the things you mentioned. Do not give up.

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bblinder | @bblinder | Oct 6, 2017
In reply to @bblinder "I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991..." + (show)
@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

Jump to this post

I am learning how to live with this and especially if it eases up i will not do anything stupid. In my earlier days I thought I could do everything, well now I pay a price for all of this. If I ever go back to gardening it will be on a small scale. Thanks of caring.

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lillyanne | @lillyanne | Oct 7, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Gail, I don't know if you will find this as it's a response to your posts 10 month's ago. I just joined yesterday & this is my 1st time on a board. I had Stage IV bone cancer for over 12 years before they found it. I went to at least 8 different doctors, 2 PA's, a Naturopath, & a few RN's. I almost think they have a unwritten code that is the 1st few didn't find anything alarming don't rock the boat as it might led to a lawsuit. The one who took a closer look at a bone that wasn't healing after 3 years-with an irregularity-was a close family member of a friend. He handed it to an oncologist. I guessed when I told them ALL my mom had bone cancer following a thyroidectomy -at least ONE of them would consult properly. Yes, they all dismissed the pain to osteoarthritis. I think it's in 95% of my body. I just turned 60, worked so hard & long only to fully realize life is short. I long to try the non-'high' marijuana. I can't understand how an easy growing "weed" can cost so much & insurance doesn't cover it. I guess it's all about the money/taxes...I'm hoping to find support & information here. Maybe if we can get some stories into women's magazines so that 'growing your own' for pain tincture's will be as common as Relay for Life. Maybe my insurance will cover the genetic testing. Thank-you for your input~LillyAnne

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Mentor
Jim, Volunteer Mentor | @jimhd | Oct 8, 2017
In reply to @bblinder "I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991..." + (show)
@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

Jump to this post

Barbara @bblinder

Do you have houseplants? I have quite a few. We have a small cellar where winter over geraniums and other plants that I have on the patio or under the willow tree during the warm weather. It's nice to have blooms all winter. I'd have more in the house, but my wife isn't as excited about having plants on every sill as I am. Houseplants take less energy and physical labor than gardens. They're my winter garden, so I have something to tend to when everything outside is under a foot of snow.

Jim

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Mentor
Jim, Volunteer Mentor | @jimhd | Oct 8, 2017

@johnbroward

My wife is seeing a doctor Tuesday for what might be sciatic nerve pain. I hope the doctor can help her.

Have you ever talked with a pharmacist or another doctor about your medications, about how much you take and how long you've been taking it? A second opinion might be a good idea. Something to think about.

Jim

REPLY
3 replies
johnbroward | @johnbroward | Oct 8, 2017
In reply to @briansr "Hi 19lin. I'm to the point that I can't take this much pain. Surgery or pills..." + (show)
@briansr

Hi 19lin. I'm to the point that I can't take this much pain. Surgery or<br />
pills are a waste of time. I've always said , no offense to people that are<br />
suffering with cancer, but after 33 yrs of this I'm backing in to a corner<br />
with no way out. This is like cancer but no dr can tell me how long I have.<br />
I'm now looking into marijuana use in my state. The govener is<br />
decriminalized as of Jan. 2017 and there is a large push to make it legal<br />
for medical use. I want to try it but if my dr tested me I will lose him,<br />
we've had that discussion. I just don't know if it would help, so I'll wait<br />
and see what happens in November when the people in this state will be<br />
given a chance to vote for or against medical use. Both bills won't make it<br />
until Jan. The federal government. has all the the Drs scared because of<br />
the misuse of narcotics. To many people pretend to be in pain just to sell<br />
there medicine, I've seen it add 4 to 500 to there monthly income. This<br />
puts narcotics in the wrong hands. Excuse me for rambling I'm just lost and<br />
don't know which way to turn. briansr<br />

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Sharon I'm with you I have been in 50 mg fentynol for about five years but 2 weeks ago finally had back surgery so am now in a withdrawal program in a week I go back to25 for two weeks then 12 mg for 2 weeks then off, also cutting back on oxycodone at the same time , wish me luck I'm gonna need it cuz I'm still in a lot of pain, had s-1 thru t-11 fused so am sore and worried it's to fast a reduction

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Charlton Williams | @charlton | Oct 8, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I have peripheral neuropathy at pain level 6-7 24/7. I am on Gabapintin 3600mg/24 plus I take 2 8mg Subutex/24. I have over the past 5 years list my short term memory almost completely.. help!

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