Has anyone experienced internal vibrations?

@novajeff I would ask for full spine MRI imaging. In my case, I had spinal cord compression at C5/C6 that caused pain all over my body. It is called funicular pain, and that was missed by 5 spine surgeons before I came to Mayo. You could have issues in another part of your spine unless that has been ruled out by imaging. I had pain in my head, neck and jaw and cervicogenic headaches, all of that was above the level of my spinal cord compression. Muscle spasms were partly to blame. I have a bulging lumbar disc which was pretty asymptomatic until I had spinal cord compression in my neck and then a lot of sciatic pain, and pain everywhere, in every dermatome in my body. At first, I cold change where the pain was by turning my head and repositioning the bone spurs on my spinal cord, and it was reproducible. None of those surgeons listed when I said that, and all denied help to me, so I came to Mayo where this was understood after I found medical literature with cases like mine. You might ask about alignment of your skull on top of your spine. If it is askew possibly from a muscle spasm, it can cause those symptoms. A lot of doctors don't put their hands on your neck to feel the alignment of the spinous processes on each vertebrae. Physical therapists do that a lot. After you get imaging and find out if you have instability in any part of the spine (Especially in cervical), you could get an assessment with a physical therapist. It is dangerous for therapist to work on your spine if there is cervical instability.

I was tested for everything and this was the diagnosis. They rule out other things and then look at your symptoms through this lens. Yes, other issues are being dealt with. I found this interesting: You will not be able to make this "go away," but you will be able to manage it to live more of the life you wish to live. This was a new concept to me, and helpful.

@mitfit have you found ways to manage it, things that help?

Relaxation, habituation exercises, cognitive behavioral therapy, Cymbalta.

Yes! I was admitted to the hospital for 4 days. Had lots of blood tests, Cat scan and exams by neurologists, physical therapists. They said they found nothing. Some people say it's long covid(I had covid 2 months ago), some say anxiety. All they found was low Magnesium. I am on Magnesium 400 mgs. I am not getting them as bad but, I stil get them. I was on Mirtazipine 15 mgs. my dr. cut it down to 7mgs. I am at my wits end. The tremors are so annoying. They start in my legs and sometimes goes through my entire body. Sometimes very strong and they can last up to 30-45 min. Has anyone gotten help for this?

@jenniferhunter may I ask if you have been able to manage your symptoms enough to work? This is interfering right now so much that I have had to stop and look into medical leave and maybe disability at lest for a season. What have you found to help you manage your symptoms. Your condition sounds similar to what I’m dealing with.

Are you having some sort of histamine reaction ?