Toe Pain Associated with Peripheral Neuropathy

My feet are on fire, with sharp stabbing pain under my toe joints… I know it’s going to get worse, my GP seems resigned to “there’s nothing that can be done “ and has been unwilling to administer pain medication..

Good evening @rdear45 and @chipmorton....welcome to the neuropathy support group. You two sure have started off quite informatively with your description of the toe pain in your feet. I sometimes don't even know if I can feel my toes. And, of course, they are sometimes "frozen" and sometimes on "fire". The bottom of my feet is covered with what feels like a leather "sock" which is thick enough to keep me from driving unless I have a couple of MFR (myofascial release) treatments every week.

I understand why your GP doesn't feel there is a "cure". That is correct, at least for the moment. However, there is work going on in an effort to find a way to actually speed up nerve regeneration. It may not arrive soon enough for me but let me share with you what I have found helpful.

"A day in the life of Chris' feet"
1. Upon awakening I begin to start moving them as much as I can.
2. Before getting dressed I do a few minutes of the Yoga posture "Legs up the Wall".
3. A shower and some callus work are next.
4. Both feet are the recipients of Papa and Barkley's medical cannabis balm. There are two choices................ a 3:1 CBD/THC for chronic pain and a 1:3 CBD/THC for
acute pain.
5. If it is Monday or Thursday I head off to the MFR clinic for an hour of work. Shari does my feet and has worked on some new techniques that actually help with
both the pain and numbness in my feet. Her colleague steps up and works on the ankles and entire feet to keep the structures stable and responsive.
6. And now......Within the last few months, I have developed sharp, stabbing pain in my right heel and am experimenting with possible solutions. I welcome your
help and advice.

Finally......you are both correct......the pain and functional instability are progressive.

Do either of you wear special foot covers? Are you able to walk up and down stairs?
May you both be free of suffering and the causes of suffering.
Chris

I have heard that "Nothing can be done" garbage before. That taught me that I have to be my own best advocate. Keep looking! Pain mangement is a good place to start. Don't let one doc tell you "there's nothing to be done". If I had listened to the two orthopedists who told me that 7 years ago, I don't know where I would be today. Docs are often overworked or just don't want to take the time to go the extra mile. Hang in there!

Does anyone have any luck with a particular kind of Neurothapy socks you wear at night? How about compresion socks??

Opioid medications are all that help my peripheral neuropathy. It has been my experience in Texas that Oxycodone & Methadone are becoming harder to get filled. My pain doctor sent out a memo to all his patients stating this after I started experiencing this “alleged shortage”. Please prepare yourself for this event!

Note that some doctors do not want to become involved with the FDA & CDC opioid paperwork if they prescribe these meds for pain.

I also get toe pain that comes and goes, and occurs in any one of my toes.
It can be in my big toes, pinky toes,or in between.
It hurts so bad,feels like my toe is getting caught in a pliers, or stabbed by a knife.
Hwwhen this happens I rub some CBD salve on it, and take an ibuprofen or a pain pill like Tramadol 50 mg.
I usually have to wait for the med to start working, so I rub my toe until then.
Other than that, there’s nothing I can do but suffer with the excruciating pain.
My poor dog runs away from me, she doesn’t like my moaning when I’m in pain.

I also forgot to mention that I use Salon Pas pain patches on those areas of pain in my feet, and they do provide some relief.

I have a spinal cord injury and suffer with neuropathic foot pain at night and often have a sharp pain in my big toe during the day. Nothing has helped that I have tried except the compression socks, which work very well. Alpha Lipoic Acid worked for a few weeks and then the effect wore off.

Thank You