1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

GailBL, Alumni Mentor | @gailb | Sep 20, 2017
In reply to @geneo "Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got..." + (show)
@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I'm almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

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By the way, I was in a wheelchair for 2 months before I had my laminectomy in December, 2016. I had to retire from my consulting contract, which involved traveling every week. ART has allowed me to be active again, although I have stayed retired. I have T2 diabetes and for the first time in years my A1c was below 7.3, at 6.6! My doctor is so happy as am I. It's because I am more active now, going somewhere and walking each afternoon in a place I enjoy being. This I also attribute to ART.

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GailBL, Alumni Mentor | @gailb | Sep 20, 2017
In reply to @leslie324 "I just found this site and am very relieved to feel less isolated. I am an..." + (show)
@leslie324

I just found this site and am very relieved to feel less isolated. I am an active 75 yr old now slowed down by back and leg pain from spinal stenosis, arthritis, and scoliosis. In addition to surgery, I am looking at stem cell therapy or laser treatment. Added to the mix, I have fibromyalgia. I have tried a chiropractor, massage therapy, physical therapy, acupuncture and am now losing weight. Until recently, I was able to go to the Y for yoga, Zumba, weights and cardio. I welcome any suggestions to reduce pain that does not involve controlled drugs. Leslie324

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@jimhd I have been taking Tramadol for about 9 months now and will begin tapering off next week. Tramadol will not replace morphine. It is for medium to hard pain, but doesn't work for the severe pain that morphine is used for. I take the plain 50 mg version, without the acetaminophen. It just takes the edge off my pain until recently when my pain is nearly gone due to ART. I posted about ART elsewhere in the chronic pain posts.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 20, 2017
In reply to @lyssia "Hi Jim, thanks for responding so quickly. I have cervical facet joint problems and myofascial pain..." + (show)
@lyssia

Hi Jim, thanks for responding so quickly. I have cervical facet joint problems and myofascial pain syndrome and was just looking to see what other people do to help their chronic pain. I get facet joint injections about every 6-9 months and they work very good for me at this time. I used various other things to help with the myofascial pain.

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Hello @lyssia,

I would like to add my welcome to Jim's. Like Jim said, the activity level of certain discussions is completely dependent on when the most recent post has been made. As you can imagine, discussions wax and wain as time goes on, but that should not discourage you from participating in them and trying to reignite them. A helpful piece of advice if you are replying by email is to scroll to the bottom of your email and click on VIEW & REPLY so you can see the full discussions in the proper order.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 20, 2017
In reply to @marilyn624 "I am Marilyn from the state of Washington and was diagnosed with fibromyalgia 12 years ago...." + (show)
@marilyn624

I am Marilyn from the state of Washington and was diagnosed with fibromyalgia 12 years ago. To add to the fun, a antibiotic resistant infection left me with post-surgical pain. Other than that, aging has been a bucket of giggles.

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Hello @marilyn624, I would like to add my welcome to the other members who have welcomed you. You mentioned fibromyalgia, we have a few great conversations on fibromyalgia here on Connect. You may want to check out these discussions:

- Fibromyalgia pain, https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
- Chronic Pain and Fibromyalgia - alternatives to medications? https://connect.mayoclinic.org/discussion/chronic-pain-and-fibromyalgia-alternatives-to-medications/

@marilyn624, if you are replying by email notifications, I suggest clicking on VIEW & REPLY on the bottom of your notification to see the full conversation in the proper order (it is easier to navigate larger discussions).

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Mentor
Jim, Volunteer Mentor | @jimhd | Sep 20, 2017
In reply to @leslie324 "I just found this site and am very relieved to feel less isolated. I am an..." + (show)
@leslie324

I just found this site and am very relieved to feel less isolated. I am an active 75 yr old now slowed down by back and leg pain from spinal stenosis, arthritis, and scoliosis. In addition to surgery, I am looking at stem cell therapy or laser treatment. Added to the mix, I have fibromyalgia. I have tried a chiropractor, massage therapy, physical therapy, acupuncture and am now losing weight. Until recently, I was able to go to the Y for yoga, Zumba, weights and cardio. I welcome any suggestions to reduce pain that does not involve controlled drugs. Leslie324

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Sorry, @gailfaith

Wrong Gail

Jim

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geneo | @geneo | Sep 20, 2017
In reply to @geneo "Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got..." + (show)
@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I'm almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

Jump to this post

Is ART the same as what a masseuse calls deep tissue massage ?

REPLY
lauren123 | @lauren123 | Sep 20, 2017
In reply to @lyssia "Hi Jim, thanks for responding so quickly. I have cervical facet joint problems and myofascial pain..." + (show)
@lyssia

Hi Jim, thanks for responding so quickly. I have cervical facet joint problems and myofascial pain syndrome and was just looking to see what other people do to help their chronic pain. I get facet joint injections about every 6-9 months and they work very good for me at this time. I used various other things to help with the myofascial pain.

Jump to this post

Hello lyssia, I noticed that you have myofascial pain syndrome, and I have been diagnosed with Trigeminal nerve as well as Burning Mouth Syndrome. A dentist thinks I also have TMJ. What is myofascial pain syndrome? What kind of joint injections do you get?
Thanks so much.

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Sep 20, 2017
In reply to @geneo "Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got..." + (show)
@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I'm almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

Jump to this post

@gailg

I'm an advocate for spinal cord stimulators. I had a Burst DR implant in June, and I've had around 80% pain relief (though it's kinda hard to give a specific %). To put it simply, my feet don't hurt nearly as much as they used to. I was between 6 & 8 pre-surgery, and now I usually rate the pain 0-3, with higher pain, up to 5, when I have to stand on a hard surface for very long, or walk through stores for a couple of hours. It's had a positive effect on the depression, as well. Another plus is that I'm slowly tapering off morphine and Duloxetine.

The implant has a week long trial, which gives you a sense of how much a permanent implant will help. It was pretty dramatic in my case. Almost no pain after several years of misery!

With the new Burst DR, you don't feel anything. like the vibrations that were anywhere from annoying to very disturbing with the previous stimulators.

Of course, it doesn't work for everyone, but it surely helps many.

Jim

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deepal | @deepal | Sep 20, 2017

Hello. My name is Dee. I've had chronic pain for a long time and I'm disabled because of it.

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1 reply
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 20, 2017
In reply to @jujubbb "Hi . I'm Judy -70 years old and diagnosed last November with an idiopathic thoracic spinal..." + (show)
@jujubbb

Hi . I'm Judy -70 years old and diagnosed last November with an idiopathic thoracic spinal syrinx. I have suffered baffling pain symptoms most of my life and finally an MRI confirmed the condition. I have been grappling with chronic stabbing nerve pain and my neurologist /pain management doctor prescribed Gabapentin which I tried for 6 months with many side effects and little relief. I am now on 200 mg of Lyrica and hoping to get some sustained pain relief. I also get acupuncture, massage weekly and have gone to PT for 2 months! I would appreciate any input from members who may be familiar with this rare condition. Thanks

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Hello @jujubbb, you may also be interested in checking out the following conversation in the Brain & Nervous System group on syringomyelia, https://connect.mayoclinic.org/search/?search=syringomyelia.

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