1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

JK | @contentandwell | Aug 26, 2017
In reply to @oldkarl "Peach, the real downer here is that the closest real hospital with pain management, etc, is..." + (show)
@oldkarl

Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.

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@johnbishop John, interestingly I was much more of a hermit myself. I joined my club because I knew I needed exercise and exercise in the water has much less impact on your knees. Over time I found myself really enjoying the other people. I am not friends with any beyond my club but enjoy them there. I also socialize less than many because I really have to pay attention to the leader and watch her since my hearing impairment makes it more difficult for me, and then after class many of them congregate in the hot tub but I continue exercising in the pool for an additional half hour to 45 minutes.
JK

REPLY
cwwilliams | @cwwilliams | Aug 29, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I have chronic, lower back and knee paring. I also have plantar fasciitis, which has lasted for more than a year, despite several interventions.

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Mentor
John, Volunteer Mentor | @johnbishop | Aug 29, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hello @marield65, I think you may have selected "Follow" for the Chronic Pain Group which is going to give you an email notification every time someone posts to any discussion under the Chronic Pain Group. If this is the case, go to the top of this screen and click the Group name and if it shows Following just click on the word Following and select to unfollow the group and then click Update.

Then locate any discussions under the Chronic Pain Group that you want to receive notifications from and click on Follow in the Discussion description area at the top of each discussion. This will change +Follow to +Following.

You can see all of the Groups and discussions under the groups that you are following by clicking on your Connect username (@marield65) then clicking on Account Settings. Once in your Account Settings you can scroll to the bottom to find Email Notifications and choose to unfollow specific discussion or just Disable all email notifications at the bottom of Account Settings window.

John
REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Aug 29, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hello @cwwilliams, Welcome to Mayo Connect. I'm glad you found us! Connect is a great place to share your story, ask questions and learn from other Connect members what they are doing for similar health issues. Can you tell us anymore about the several interventions? Hoping some others will be able to join the discussion and offer some insights or treatments that have helped them.

John

REPLY
cwwilliams | @cwwilliams | Aug 29, 2017
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I've had two cortisone shots and pt.

REPLY
lilgrizz | @lilgrizz | Aug 31, 2017

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I'm 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I'm just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i'm taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

REPLY
11 replies
oldkarl | @oldkarl | Aug 31, 2017
In reply to @lilgrizz "Hello, new here! Hope to make some friends. When I talk to my family( I have..." + (show)
@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I'm 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I'm just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i'm taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Hi, lilgrizz. Thanks for your note. I only have one little content, about the mega but crack. If you cannot laugh about your own scoliosis, just what is the point of having scoli in the first place? Just do like the politicians do. Tell the world you don't have it, and it will be gone. Retroactively. Sorry.

REPLY
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Aug 31, 2017
In reply to @lilgrizz "Hello, new here! Hope to make some friends. When I talk to my family( I have..." + (show)
@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I'm 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I'm just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i'm taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

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Hello @lilgrizz, I would like to add my welcome to oldkarl's.

Thank you for sharing your background with the other members of Connect. First, you don't have have to apologize for getting off topic, as Connect is here for however you want to use it! Getting off topic can be therapeutic in itself isn't it?

Here are some other discussions that you may want to check out based on some of the diagnoses you metnioned. Each discussion has many members for you to meet who will understand where you are coming from and what you are experiencing. Just click on the links below to check them out:

- Multiple Sclerosis (MS) - please introduce yourself, https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/
- Scoliosis, Introduce yourself and meet others, https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

REPLY
jenapower | @jenapower | Aug 31, 2017
In reply to @lilgrizz "Hello, new here! Hope to make some friends. When I talk to my family( I have..." + (show)
@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I'm 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I'm just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i'm taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

Jump to this post

Hi Lilgrizz, i'm no longer on that much pain medicine but when I was I was given a long acting Oxycodone, it's called
Xtampza. It's similar to the one you said you were using that they took off the market. I don't think they've taken Xtampza off the market yet. It will probably be next,hope not!

Welcome to Connect and I hope that that medication can help you. It did me when I needed it. Jennifer

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Aug 31, 2017
In reply to @lilgrizz "Hello, new here! Hope to make some friends. When I talk to my family( I have..." + (show)
@lilgrizz

Hello, new here! Hope to make some friends. When I talk to my family( I have no friends) about my pain and my pain meds they look at me like I have a 2nd head. While I suffer from chronic pain brought on by ms and lupus and just recently degenerative scoliosis I did get some relief from my back pain, just some, when I had two surgeries to correct a 64 degree curve that was curving at a very fast rate at about 10 degrees a year. I'm 50 and already could not stand up straight and had a significant hump on my back. Sorry getting off topic. The surgeries consisted of putting in 2 rods and about 50 something screws running from the base of my neck down to my tailbone. I got quit a laugh in mikee post about the longest but crack. Sorda reminds me of myself. Getting off topic again. sorry. you will find that I do that often and I do apologize. since my ms has become active my cognitive abilities have suffered greatly. At one point I was once a very intelligent person now I'm just stupid. THe chronic pain I endure from all my conditions is controlled mostly by 10mg of oxymorphone 4xday. and a 75mcg fentynl patch. I was also recently on Opana ER 40mg 2xday but that has now been taken off the market because of the idiots who melt it down and shoot it up. So I wonder if anyone knows an equivalent to opana er 40mg because what i'm taking now just aint getting it. my doc increased my fentynl patch from 50 to 75 to make up for no longer having the opana but it is just no enough. Would love to hear from anyone.

Jump to this post

I'm sorry that you're having to deal with so many health issues at once. I talked with the neurologist the other day, and we discussed how seemingly unrelated problems can be related - or unrelated. I'm trying right now to figure out what meds are helping, which ones, if any, I don't need, which ones I might need to increase and what to do about the things that still need to be addressed. I agree with you that, in today's climate, it's become even more of a challenge. It used to be true that what a doctor told me 20 years ago, that no one needs to be in pain because if one med doesn't work, there are others that will. It doesn't seem to be that cut and dried anymore. I hope that it's true for you, @lilgrizz.

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