Living with Neuropathy - Welcome to the group

My name is Richard, um. From an actual Tennessee area in the recently diagnosed with small fiber in the rapidly been to months among gamer patient. But she wants to put me I like different medicine Do you have a pen? And it's been makes me feel better but still I have lots of pains Swelling not sure what to do, what about Compressions

Welcome @smallfiberpain, Sorry to hear you have just been diagnosed with small fiber neuropathy. Can you share a little more about your pain symptoms and swelling you mentioned? Were you prescribed compression socks to help with the swelling?

Would like to talk with someone that has nueropathy all over body. Mine started in legs 5 months ago and now covers every inch of body. Been to two nuerologist. No answers. Taking gabepentin x 1 month. Cymbalta x 2 days. I am not a diabetic.

Welcome @cdchance, Sorry to hear you haven't gotten any answers to help with your neuropathy. There are several other discussions you may want to view where members mention neuropathy all over their body.

--- All over neuropathy: https://connect.mayoclinic.org/discussion/all-over-neuropathy/
--- Twitching spasms all over neuropathy/meds: https://connect.mayoclinic.org/discussion/twitching-spasms-all-over-neuropathymeds/
--- Fibromyalgia or Neuropathy: Pain all over not just feet and legs?: https://connect.mayoclinic.org/discussion/pain-all-over-not-just-feet-and-legs/

Did either of the neurologists you saw provide a diagnosis or do any tests?

First nuerologist ordered MRI of Brain which was normal. He said no followup was needed, turned out it was in process of retiring , he didn't offer thing further. Second nuerogist order labs all normal, NCS he said had nueropathy in legs. Does not want to see me again to next year. He ordered Gabepentin and Cymbalta.

If you want to learn more about neuropathy and different options for treatment, the Foundation for Neuropathy is a great resource of information - https://www.foundationforpn.org/resource-library/.

Yes, there are days when I need my walker or cane. Some days I’m weaker than others, and feel it’s safer if I want to help minimize the risk of falling. My walker is a great tool to have as I need help stepping up/down curbs or any other little steps, and I need the walker’s assistance in stores to be able to reach & stoop for items. I also don’t do well walking unassisted while carrying something, so again, my walker is a tool to be able to do that. I’ve done this now since age 52.
But I try to avoid using my walker or cane when I’m having good days and know I won’t be confronted with obstacles on my course. I don’t like how my posture has been impacted by using them, plus it’s more exertion on my upper body while leaning on them.
So yes, I use them to avoid falls and injuries, anything to be smart. My goal is to stay upright and hope to never have to be confined to a wheelchair again as much as I might be able to avoid it.

Hi Debbie, Have you seen the upright walkers? I use the regular walker at night when I have to get up for bathroom visits because I don't trust my balance at night when getting up. I've seen the upright walkers and have thought about getting one when the time comes that I have to use one for regular walking. I use trekking poles now and they actually work pretty good for better posture when walking.

No, have not looked into upright walker but will google. I keep my walker and cane settings as high as they’ll go, but they’re not quite tall enough. I love trekking poles! But they normally don’t get in the car with me, as my walker is normally my Swiss Army knife in that it has a pouch (my purse items) and hook to allow me to carry bags. So in my small car, a spare cane stays there, but my walker is what normally gets loaded in & out of the car vs the trekking poles. Like you, my walker stays by my bedside at night, but luckily only to hold onto the 5 seconds it takes me to adjust to standing before starting my steps.

wall walking the sport of the day SMILES....on days it is unbearable...I crawl as it is easy for me to get up off the floor...guess it is the phase of second childhood...my life long motto is I REFUSE DEFEAT... I acknowledge not all things...drugs, socks, walking sticks, moving, diet, supplements, red lasers, spinal controls benefit all people as PN has various and unknown causes....
I pray for everyone in Neuropathy Support Groups
Carry On!