Possiblity of GastroCardiac syndrome?

Posted by step12345 @step12345, Oct 26, 2023

I am a 22 year old male, 140lbs 5'9, Asian. I am residing in the USA, no drug use/smoking. I am currently visiting a cardiologist, and they noticed an abnormal heart rythmn + higher blood pressure (140 when sitting, 160 when lying down). EKG shows voltage spikes are twice that of the average person. Echocardiogram is perfectly fine, and Holter monitor shows no arrythmia. We are doing the treadmill stress test soon. In high school, I used to be decently athletic, but my health took a nosedive soon after.

Starting from the very beginning of the pandemic, I had sudden energy crashes with fast thumping heartbeats (over 90 pulses per min when sitting down). These energy crashes occur almost everyday, I often get knocked out into 2-3 hr naps. These energy crashes would be triggered by eating heavier foods + more intense physical exercise, as well as if I feel any strong emotions such as anger. I also had a bad bout of GERD, but that faded a year later. I also feel a sinking pit in my lower left abdomen sometimes.

I visited an endocrinologist, gastroenterologist, and had a sleep study done. Everything was fine according to these doctors, no sleep apnea/narcolpesy, no thyroid issues, etc.

Do you know what it could potentially be? Could it be related to cardiogastric syndrome? Due to past stomach issues, perhaps it is effecting my heart as well via the vagus nerve.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@step12345

Great, thanks for mentioning this to me!

I just had the treadmill test from the cardiologist. He said everything was fine, but on the treadmill test, I felt more dizzy, and had very brief and very mild chest pain. For the time being, the cardiologist said to wait and see.

If the cardiologist ruled out any problems, what other avenues/specialists should I take a look? A friend suggested Integrative Medicine at Sutter.

Jump to this post

Treadmill test would be one step (of possibly many) in ruling out heart abnormalities (some cardiologists might advocate using a Holter monitor, conducting a (table) tilt test, cardiac MRI, cardiac CT, an EP study, an echo-cardiogram, and extensive blood work, and possibly a sleep study; cardiologists, especially EP cardiologists, often make extensive use of a wide array of diagnostic tests).

Not mere opinion but fact: There is significant misdiagnosis of Roemheld/Gastrocardiac Syndrome. While there is no single dominant diagnostic protocol, diagnosis of Roemheld Syndrome often requires... intervention & coordination/cooperation between cardiologists & gastroenterologists.

If you are confident that cardiac disease is not primarily causative, then proceeding to gastroenterological investigation might well be warranted, with the primary objective being to rule in or out the presence of a...(sliding) hiatal hernia.

Here's Mayo Clinic's summary of the standard diagnostic options for a hiatal hernia: https://www.mayoclinic.org/diseases-conditions/hiatal-hernia/diagnosis-treatment/drc-20373385

As for treating a (sliding) hiatal hernia (as you'll know from reviewing the introductory characterisation of Roemheld's Syndrome, sliding hiatal hernias often compress/press against the vagus nerve, which is what sometimes causes heart arrhythmias), most treatment is...environmental (pharmaceutical treatment & surgery are rarely necessary or implemented).

Net-net: A Roemheld/Gastrocardiac Syndrome diagnosis is often made based on symptoms in the absence of heart abnormalities. And this is when a gastroenterologist might perform the above diagnostics (or even a colonoscopy and ultrasound to rule out other problems in the abdomen).

All the best.

REPLY

Get a patch monitor for two weeks. Your PCP can order it or get a second opinion cardiologist.

REPLY
@windyshores

Get a patch monitor for two weeks. Your PCP can order it or get a second opinion cardiologist.

Jump to this post

I did get a patch monitor for 2 weeks, but despite me recording the events, there was nothing particularly abnormal about the logging results

REPLY
@windyshores

I have atrial fibrillation that is apparently triggered by eating, as well as lifting. I also have GERD. You have received some excellent suggestions.

I don't eat after 5 or 6pm. I take Tums at night, and sometimes Pepcid.

It doesn't sound like you have diabetes. When are you below 70? Is that a few hours after sugar? I would stop the hard candy if you can, and always accompany simple carbs with protein/fat.

Heart, lungs, GI system are all close together and affect each other. GERD can also give me asthma-like symptoms.

I think you are on the right track. It is hard because docs tend to address one system or organ and we need to have them connected!

Jump to this post

GOOD IDEAL

REPLY

Gas-X (simethicone) helps me with heart as well as GERD. I take Pepcid as well when things are inflamed. These things help GI, lungs and heart which are all close to one another.

REPLY
@shoshin

The technical clinical phenotype for "Gastrocardiac syndrome" is...Roemheld syndrome, in which the hiatus (& hiatal hernias) figures largely. Here's a good informational introduction/resource for Roemheld syndrome: https://www.frontiersin.org/articles/10.3389/fcvm.2021.764478/full.

Sliding hiatal hernias, often a feature of Roemheld syndrome, sometime predispose sufferers to experience GERD (as well as heart arrhythmias).

A suite of G.I. conditions also very often predispose and/or are associated with Roemheld syndrome & heart-arrhythmia conditions--& elevated G.I. inflammatory conditions also often figure largely, including G.I.-centered mast cell activation syndrome, IBS, SIBO (C & D), leaky gut syndrome...among others.

Finding American healthcare providers with interest & competency in diagnosing--let alone treating, these complicated conditions & interactions is...a nightmare. Sufferers (patients) are almost always their own best advocates.

Best wishes.

Jump to this post

@shoshin thanks for the reference to Roemheld syndrome!
https://en.wikipedia.org/wiki/Roemheld_syndrome
I figured out some of the same treatments, myself, including Gas-X/simethicone, Pepcid, Tums and Klonopin (similar to Lorazepam).

I have several spinal fractures and can experience a feeling of fullness and a feeling that my diaphragm has moved up, before an afib episode. Lifting and reaching will do that, even the tai chi I have always loved. I believe it is related to there being less room for everything and so there is pressure on my heart, but it could also be on the vagus nerve.

REPLY
@windyshores

@shoshin thanks for the reference to Roemheld syndrome!
https://en.wikipedia.org/wiki/Roemheld_syndrome
I figured out some of the same treatments, myself, including Gas-X/simethicone, Pepcid, Tums and Klonopin (similar to Lorazepam).

I have several spinal fractures and can experience a feeling of fullness and a feeling that my diaphragm has moved up, before an afib episode. Lifting and reaching will do that, even the tai chi I have always loved. I believe it is related to there being less room for everything and so there is pressure on my heart, but it could also be on the vagus nerve.

Jump to this post

Seriously, I am feeling clearer on my triggers! Thanks again!

REPLY

I'm a 49 year old active male who's been fit my entire life. My main physical activity is cycling. about 10 years ago I began having sudden episodes of tackycardia, highblood pressure and anxiety. For no particular reason my body would go into the flight or fight response soon after a meal. I've ended up in the ER a few times after an episode since it feels like I am or about to have a heart attack. I have seen several cardiologists, nuerologists, urologists and gastrointestinal doctor. After under going many tests, they've never found the cause or problem. It wasn't until two years ago that I linked the episodes to my digestion/ eating. I've suffered from IBS for many years and have been diagnosed with gastritis. On one occurance, I went through a month where I suffered from severe anxiety and depression. Having considered myself a strong minded person, this was the first time I had ever felt this way. It was as if a switch was turned on in my body which I had no control of. During this month I had 3 occurring episodes of fight or flight responses. Doctors could not find an answer to what was causing it since my EKG were fine and all tests were normal. At the time of the episodes my heart rate would spike to 150-165 for a few seconds, My blood pressure would shoot up to 160/110 or so. The episodes lasted anywhere from 2- 10 minutes but my legs and arms felt heavy and I felt tired after each episode. There were days were I just felt so depressed I cried. I had a hard time sleeping due to anxiety. I refused to get on any anti depression or anti anxiety pills as this was not a normal feeling for me. I wanted my doctors to find out what caused this switch to turn on rather than to treat my symptoms. During this time I realized what if I wasnt suffering from IBS but rather it was the cause of my problem. I quickly cut out all sugars, flour, meat and high fat from my diet. I was strictly on fruits, veggies fish and chicken. After two weeks on this diet, the switch was turned off. No more anxiety, no more depression no more fight or flight episodes. I continued on this diet for 3 months and went from 185 to 165 lbs. I began doing some web browsing on diet and my symptoms and came across Romeheld Disease (gastric cardiac syndrome). Needless to say, I tend to get careless about my diet every now and then and but now I'm able to recognize the symptoms before they worsen. Doctors haven't diagnosed me with Gastric Cardiac Syndrome since non of the doctors here are familiar with it. I've given up on Doctors since they're main objective is not find your cure but to make sure you're not dying. Hope this helps someone.

REPLY

EDIT: Recently, I got diagnosed by Stanford University's Chronic Fatigue Syndrome clinic as having met all criteria of the illness. The formal name is myalgic encephalomyelitis.

Apparently, Stanford is seeing a large number of patients with this condition after the pandemic. They are still doing research, but their current understanding is that patients have contracted a viral infection (COVID, mono, etc) may fight it off successfully, but their immune system goes haywire and may cause inflammation of the nerves in the brain. This can cause all sorts of strange neurological/cardiovascular symptoms, and can be linked to other disorders like POTS. This would explain my strange memory loss symptoms+ heart palpitations/higher blood pressure.

In hindsight, this also makes sense, as I may have indirectly been exposed to COVID by an acquaintance shortly before the pandemic started. I may have also had mono, so perhaps the mono+COVID combination led to some strange effects.

They recently placed me on a new medication called "low dose naltrexone", which has anti-inflammatory properties in small doses. It seems to be helping, especially when combined with anti inflammatory foods + supplements!

REPLY

For people with long term illnesses like chronic fatigue syndrome and fibromyalgia long Covid has been a god send. Finally Western medicine is taking these people seriously. Finally they are looking at various mechanisms what causes long term inflammation and how to treat it. Low dose naltrexone was first reported using it on Fibromyalgia in 2009. It has taken years and years before it has made its way in the mainstream. With the onset of 10s of thousands of long Covid suffers western medicine can no longer ignore chronic inflammations linked to chronic pain and fatigue as well as brain fog and all the rest of the symptoms.

REPLY
Please sign in or register to post a reply.