Tapering and methotrexate

Posted by tigre24 @tigre24, Oct 15, 2023

Diagnosed with PMR in March, was on 20 mg of prednisone for 6 weeks and then tapered 2.5 until I reached 10mg in June and then after a month tapered to 9 and after another month to 8mg. I apparently was not aware that pain I felt in tapering was most likely due to an onset of osteoarthritis throughout my body which delayed the tapering. I am now at 7.5, taking it slowly, but the doctor suggested I start methotrexate and supplement with folic acid as she felt I would have trouble tapering.
But I understood that it was advised to taper, after reaching 10mg, only once a month. So it seems to me I may be on track. Has anyone started methotrexate and felt it helped in tapering. Does it have any long term effects to be aware of ? And I wonder if others on prednisone for long periods of time have suffered other complications? Is it just that we have to deal with the long term effects and hope for the best?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@curtvapor

I used steroids and methotrexate over a year treating giant cell arteritis. These meds controlled the arteritis but led to adrenal deficiency. I visited the Mayo Clinic and Mayo prescribed Actemra to replace steroids and methotrexate. Actemra has kept me symptom free and my adrenal function has returned to normal.

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Was it difficult to get an appointment at Mayo Clinic?

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@joybannister

Was it difficult to get an appointment at Mayo Clinic?

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It wasn't difficult. There's medical information and test results to gather, but Mayo provided good instructions and a help line to get questions answered.

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