Stroke medication: Taking Eliquis to reduce risk of stroke

My son was incorrrctly diagnosed with afib and put on Eliquis. He had suffered a mild stroke about a month before and after being on Eliquis suffered a MAJOR hemorrhagic stroke leaving him with severe disability. He wasn’t given any antidote but was helicoptered to a major hospital where he underwent a craniotomy. He miraculously survived but was left with left side Hemiplegia. This was in 2017 and he’s still severely disabled but making slow progress.

Hi, @harp23. Welcome to our ongoing discussions about anticoagulants (sometimes called "blood thinners") by patients exploring whether to start using them. Your condition seems very similar to mine over the last several years -- A-fib, small stroke, anticoagulant, concern about side effects. I have a more serious issue to raise presently. First, though, my A-fib is essentially asymptomatic, normal heart rate over the last 50 years or more (except for the short time after A-fib was diagnosed and a short time later when I suffered a small stroke), relatively good health otherwise for an 80-year-old man, taking a 5mg dose of anticoagulant every day, no upgraded treatment for my A-fib since the beginning.

My "more serious issue" is something you didn't mention -- antidotes for anticoagulants. For any one of those blood-thinners, an antidote has been developed -- sometimes more than one for an anticoagulant. The problems here are numerous, not singular. Here's why I feel that way: A friend from down the street fell off a step ladder in his garage just before I drove by and saw him in pain and blood from his head. I called 911, and the ambulance was there promptly and took him to the new hospital a mile away -- minutes away. In that emergency room with him was his wife who provided immediate information on his medications, which included an anticoagulant. But within a half-hour, he was on a helicopter for a 35-mile ride to a major hospital for treatment of a bleeding head wound. By the time his wife and children could catch up with him in the other hospital, he was in critical condition and died in their arms.

What happened? The crucial factor was that the first hospital he was taken to DID NOT HAVE AN ANTIDOTE IN STOCK for the anticoagulant that he had been on for several years. So he essentially bled to death.

That tragedy overwhelms me every time I go to a clinic or urgent care program or emergency room. So my first question at the outset of every one of those places is whether they have the most recent up-to-date antidote for my "blood thinner." Twice in the half-dozen times I had to ask that question, the answer I got was, "We'll get some brought in from another hospital right away." In both cases, I quickly left the facility and had family or friend take me to a clinic I knew I could trust. I always arrange for friends or family to be with me, right behind the 911 ambulance, for this purpose.

Whatever anticoagulant you are using, check several times a year to see what the latest and most effective antidote is for THAT SPECIFIC "blood thinner" and whether the antidote is available wherever you may need it. Take care and join me in making sure nobody else is told to take aspirin as an antidote for their anticoagulants. Martin