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Kidney Transplant plus Parkinson’s

Transplants | Last Active: Nov 9, 2023 | Replies (8)

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@jonwan84

I have Parkinson’s disease and transplanted kidney I got in May 2019. Kidney works well so far, Parkinson’s is managed well. However, I developed severe GI problems (bloating , pain, constipation, etc.) and lost 40% of my body weight as of today. Also, it seems that I developed sensitivity to carbidopa-levodopa in such way that when it touches my skin-the skin peels off, touches eye - the eye gets inflamed. Anybody got same problems?

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Replies to "I have Parkinson’s disease and transplanted kidney I got in May 2019. Kidney works well so..."

Hi @jonwan84, I want to welcome you to the Transplants support group. Good to hear that the kidney is working well. And that your Parkinson's is well managed.

You may also be interested in following the discussions in this related support group:
- Parkinson's Disease Support Group https://connect.mayoclinic.org/group/parkinsons-disease/

Here are some discussions regarding transplant and GI issues:
- Mycophenolate or Myfortic: Do you have GI side effects?
https://connect.mayoclinic.org/discussion/mycophelonate-and-side-effects/
- Side effects of kidney transplant meds
https://connect.mayoclinic.org/discussion/side-effects-of-kidney-transplant-meds/
I'm tagging @geck and @hopeful33250 to see if they have experienced any of the sensitivities to carbidopa-levodopa as you have.

@jonwan84, have your doctors adjusted any of your medications to help with these side effects? Anything working for you yet?

Hello @jonwan84,

I'd like to join Colleen, @colleenyoung, in welcoming you to Mayo Connect. As you may know, digestive tract problems, especially constipation, are typical problems that many Parkinson's patients experience.

The skin and eye inflammation, however, are not something that I have heard of previously. I would urge you to contact your transplant team as well as your neurologist.

After talking with your transplant team, a visit to a dermatologist to check out the skin problem as well as an ophthalmologist visit regarding the eye inflammation would be warranted. While the skin and eye problem may be related to the Parkinson's medication (or the transplant medications), it might also be another disorder that can be treated by one of these specialists.

I look forward to hearing from you again. Will you post as you have more questions and also as you find more answers?